Fibro Programme at Hospital Physio

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Fibro Programme at Hospital Physio

Postby Wish » Tue Feb 15, 2011 11:25 am

Hey all

Have been diagnosed about 12 months now, had two sessions of physio a couple of weeks ago and now have been invited to a Fibromyalgia Programme at the hospital, I just wondered if anyone had attended one of these and what to expect.

Many thanks
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Re: Fibro Programme at Hospital Physio

Postby loubie » Tue Feb 15, 2011 11:31 am

oow sounds interesting :D

it could be like going to physio, and when i went it was all very gentle
so don't get worrying about it.
some one might be on soon that has been.
let us no how it goes :hugs: :blowkiss:
loubie xx

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Re: Fibro Programme at Hospital Physio

Postby Wish » Tue Feb 15, 2011 11:43 am

Thanx Loubie. the letter says its 4 sessions from 9.30am to 12 noon (one a week) the programme will include gentle exercise and relaxation as well as advice sessions. Its seems quite long sessions, I hope they don't expect me to exercise that long, theres no way I could do it, i am having a bad spell at the moment and it starts on Thursday letter only came today. I do feel lucky to have something like this to attend though, just a bit anxious about it, as I don't get out a lot I feel a bit stressed about meeting people and being judged etc.
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Re: Fibro Programme at Hospital Physio

Postby loubie » Tue Feb 15, 2011 12:00 pm

yes know how you feel :(

think a lot of us tend to hide away, it really shouldnt be like that though.

it is long sessions but i defo don't think they will expect you to exercise
all that time.
they will not be judging you and it will be good to meet others with FM
i hope you go along and try it :hugs:
i no you said your not good at the min but it would show them just how
bad things can get for you.
we do hide so people don't see us when we are real bad, then when they do
they don't believe us because we are in the coping mode :roll: :roll:

please don't get wound up, as that will make you worse :hugs:
you can only try, if its not for you then you don't have to go :hugs:
loubie xx

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Re: Fibro Programme at Hospital Physio

Postby Wish » Tue Feb 15, 2011 12:03 pm

:hugs: Thanx Loubie, I will definately go, I am lucky to be given the opportunity, I guess services like this could be cut in the future, which is sad.
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Re: Fibro Programme at Hospital Physio

Postby loubie » Tue Feb 15, 2011 12:13 pm

glad you are going to try it :D
i would if i was offered but perhaps they don't do it here :dunno:

let us know how it goes :hugs:
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Re: Fibro Programme at Hospital Physio

Postby Wish » Tue Feb 15, 2011 12:24 pm

I will report back here on how it went.

I was referred by my consultant, I didn't know it existed either, why don't you ring your consultants secretary and see if they offer the service, or the Physiotherapy dept at your hospital.
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Re: Fibro Programme at Hospital Physio

Postby budda » Tue Feb 15, 2011 2:43 pm

Hi wish, i have been on one of these sessions, you will enjoy it, if you are not able to do anything they ask, then you just say to them, know one will judge you, we are all in the same boat as you. :goodluck1:
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Re: Fibro Programme at Hospital Physio

Postby denys » Tue Feb 15, 2011 2:54 pm

I agree with the others if I were you Id try to go and just explain you aren't so good at the moment, we dont have anything like that that I'm aware of so :goodluck1: :goodluck1: :goodluck1: with it :hugs: :hugs: :hugs: :hugs: :hugs: :hugs:
Denys

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Re: Fibro Programme at Hospital Physio

Postby Adele » Tue Feb 15, 2011 6:03 pm

hi wish, it sounds similar to a pain management course - just specifically for fibro. it is really easy to bond with the others as you all know how it feels so you're never the odd one out.

for example: on my pain course we were encouraged to change position so we didn't seize up. it was perfectly normal to see people on all fours or flat out on the floor joining in.

we also had regular tea breaks to split the session up. there is theory to learn, relaxation to practice and when they say gentle exercise - they mean gentle.

on my course you didn't build up the exercise until you could do it without your pain increasing. for example rotating your neck from side to side. normal physio would tell you to do it a dozen times twice a day. on a course that understands chronic pain you do it ONCE and see if your pain level has increased over the next 24 hours. it is several days before you increase the number of reps. you never do more than you could do on a bad day.

i hope this has made sense. i know they are different courses but this is where i was sent with my fibro. there was loads of advice on how to do more safely and easily. and importantly it was fun.

:goodluck1: and enjoy. :blowkiss: adele
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Re: Fibro Programme at Hospital Physio

Postby nutty1 » Wed Feb 16, 2011 12:09 am

:wave: this is new one to me to .please let us know how it goes .not heard of any here :fingerscrossed:
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Re: Fibro Programme at Hospital Physio

Postby bexfitz » Wed Feb 16, 2011 8:31 pm

The good thing about these specialist programmes is that they are designed for (and specifically targeted at) those of us with FM and associated rheumatological (cor that's a bagger to spell) conditions. you might meet someone who lives in the same area with FM too which immediately gives you something to talk about. before long, you will be meeting for coffee and getting your life back. Well Done You for actually doing something!! I am still waiting for my appointment........maybe i'll meet you..........? :dunno: :goodluck2:
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Re: Fibro Programme at Hospital Physio

Postby shazq » Thu Feb 17, 2011 12:09 pm

Hi
:goodluck1: hope it goes well today. :hugs:
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Re: Fibro Programme at Hospital Physio

Postby loubie » Thu Feb 17, 2011 12:23 pm

thinking of you today wish :goodluck2: :goodluck2: :goodluck2: :goodluck2:
loubie xx

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Re: Fibro Programme at Hospital Physio

Postby Wish » Sat Feb 19, 2011 2:01 am

Hello guys :D

Thank you all for thinking of me, well I went to the programme, had a bit of nerves beforehand which resulted in a dodgy tum, nearly bottled out because of that, but was so determined to go as I wanted to feel like I was doing something positive to try and combat my illness.
Well there were 8 of us in total, with 7 no shows (probably they felt how I did in the morning) We all sate in a semi circle and there two physios, they told us if we needed to move about during the session then to feel free as they didn't want anyone stiffening up etc.
Then they basically ran through a power point of FM and talked about symptoms etc, at times we all chipped in our symptoms and it was comforting in a strange way to hear that other people. feel like I do too, bizarre as that sounds.
Then we had a gentle exercise session and we could dip out of it at any time, mainly stretches, then we had a break and we could chat to one another, I found someone who lives in my town which was nice and the ladies were all lovely.
Then we did a relaxtion thing, I didn't do well at this as my anxiety is through the roof at the moment and I found it hard to relax in that kind of situation, but at least I now have the tools to try to do that at home.
I go again next week, on the whole it was a very positive experience and I would highly recommend it to anyone who has the opportunity to attend one.

Thanks xxxxx :hugs:
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