I'm Devastated

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I'm Devastated

Postby Happygolucky85 » Mon Mar 07, 2011 8:06 pm

HI everyone,

Sorry i have not been on here for a long time but i've had alot of personal problems.
My fibro is geting worse and now my doctor has told me there is nothing more he can do for me.
I'm on Morphine patches, the lowest dose and co-codamol, i'm 25 years old, i feel like my life is over.
I knew one day it would be said and i'm not expecting a miracle, i just want to be comfortable for a little while.
I feel like everyone is against me and i really cant cope.
I fed up of people digging at me, saying i'm lazy, its in my head, telling me to pull myself together, get a job, do this do that.
If i could have a different life don't they think i would.

Sorry for rant i just dont know what to do.

Louise x
Take each day 1 step at a time
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Re: I'm Devastated

Postby Adele » Mon Mar 07, 2011 8:51 pm

hi louise,

there are other drugs you could try instead of/as well as the drugs you take. please do not give up hope. it may be time to change gp, either within the practice or at a new practice all together. have you be referred to a pain clinic or a rheummy for specialist treatment? there are other treatment options available such as; physio, counselling, accupuncture and hydrotherapy

psychological help can help you adjust to how your life is now, it does work. things like heatpads, wheatbags and hot water bottles help ease muscle pain as can a duvet under your bottom sheet if your mattress is too hard.

an OT, at social services, can provide aids and advice to make life easier and reduce your pain levels.it also helps to meet others who know how you feel either at a fm support group or at a pain management course run by the pain clinic.

i personally have high pain levels everyday but i live in hope that one day things will improve. best wishes and gentle :hugs:

adele xx
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Re: I'm Devastated

Postby denys » Mon Mar 07, 2011 9:13 pm

Hi Louise,your life isnt over, its just beginning, print out some of the info on here such as 'onefor the non-believers' and 'the spoon theory' and let your friends and family read it and then they may learn to understand a little better. FM is not a life sentence some people manage to live a nearly normal life.

Even those of us who are severely affected by this condition can still manage to 'live' as long as we learn to listen to our bodies and pace ourselves. As Adele has said there are other therapies that you can ask to be referred to. Go back to your GP and ask, read through the posts first and take some information with you to show him :goodluck1: :goodluck1: :goodluck1: with it and dont forget you arent ever alone with all this we are here for you whenever you need us :hugs: :hugs: :hugs: :hugs:
Denys

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Re: I'm Devastated

Postby Happygolucky85 » Mon Mar 07, 2011 9:24 pm

Once my dla tribunal (sp?) is over i am going to change doctors.
I Saw Dr Williams last year who said it was down to my doctor to help.
I've done physio and that didn't help.
I am going to see a covering doctor at our surgery on thursday morning, to see if she can help me.
I feel like my doctor cant be bothered to help me if you understand what i mean.

Thank you xx
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Re: I'm Devastated

Postby FluppyPuffy » Mon Mar 07, 2011 9:57 pm

Louise, here is a linky to the meds used to help with FM. It might be worth having a look at it to see if there is something on there you could try as an alternative
http://www.nhs.uk/Conditions/Fibromyalgia/Pages/Treatment.aspx

While you're waiting for your tribunal and changing drs, is there another one at your surgery who is there on a regular basis you could see to see if they're more understanding than your current gp??
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Re: I'm Devastated

Postby nutty1 » Mon Mar 07, 2011 10:10 pm

:wave: sorry you so low ,but as others say try another gp :fingerscrossed: you get help :hugs: :flowers:
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Re: I'm Devastated

Postby loubie » Mon Mar 07, 2011 10:41 pm

hi louise :wave:
the girls have said it all so nothing more i can add
but just a :hugs:
your not alone we are always here, just come on and have a good old rant
when ever you want.

sending :hugs: :hugs: :hugs: :hugs: :flowers: :flowers: :flowers: :flowers:
loubie xx

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Re: I'm Devastated

Postby Adele » Mon Mar 07, 2011 11:03 pm

hi louise

i forgot to mention that when i see my doctor i ask him for specific medications, tests or treatments and explain why. it seems to work alot better than waiting for him to come up with ideas.

before you go to see the covering doctor, have a think about what you want to get out of the appointment. what is most urgent. i always write a list of the things i need to discuss in order of priority, starting with the most urgent. i work down the list until my precious 8 minutes is up.

:fingerscrossed: you get what you need,

:hugs: adele
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Re: I'm Devastated

Postby Ldyalb » Mon Mar 07, 2011 11:52 pm

I haven't got any extra advice I'm afraid, I do know how you feel though - I lost my job 2 months ago (am 22) and felt like everything was over, you need time to grieve your old life. You do have a life and a future, it's just a bit different to how you anticipated. Your GP is talking :swear1: - there's loads of meds etc you can try. Loads of self help stuff as well like hot baths, massage etc.

I second the advice about the wheat bags/heat packs etc - they make a big difference, I find using them in bed stops me getting stiff. an electric blanket could also be of use to you in winter.

With regards to family and friends definitely show them the spoon theory - my bf said that was the best thing he read to understand how some days I can do things I can't do on others. You learn to adapt over time, today was a low spoon day (on Saturday my bf and I rearranged the furniture in our bedroom so we can fit in an extra desk (we argue over whose laptop gets the desk and not the dining table regularly), on Sunday we bought a 22kg desk from argos, only a few mins walk from flat but now my left bicep hates me and it's triggered a bad day from the carrying). So I adapted, much more restful day, had a good lie down and spent most of the day doing relaxing things on the computer and avoided stuff with arms. By pacing I even managed to give the bathroom a quick clean as we have a guest tomorrow night for pancakes. I few months ago on a day like today I wouldn't have managed it but it does get easier with the right meds and some time to adapt. I take amitriptyline 10mg and paracetamol throughout the day. On bad days I also take up to 3 diclofenacs a day. Before I was diagnosed I was on dihydrocodeine, I've been told on a very bad day I can take an emergency codeine to get me through if I have something urgent to do like an interview or hospital appointment. Sometimes we need to experiment to see what works for us, I'd definitely see a different GP for a second opinion.

:hugs:
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Re: I'm Devastated

Postby narnie » Tue Mar 08, 2011 2:15 am

I am just coming out of a flare up and my god, it has been a bad one. I am going throught the ear infection and chest infection part, but it has left my hands and feet worse than ever, I just cannot seem to shift it at all. Memory is bad and so it concentration, also I am having a bad time remembering how to spell some words too.
I have grieved for my old life, I wouldn't have understood that before now, but it does come.
I wouldn't be bothered if I never went back to work, the situation is out of my hands now, I have decided, that I am going to think of me for a change. What I want out of life. I will be hard financially, but I would like to have a bit of life. :hugs: This forum helped me so much, even though I haven't been in for a long time
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Re: I'm Devastated

Postby shazq » Tue Mar 08, 2011 4:12 pm

Hi Louise

It really does make a big difference having a good gp with fibro, you really need to get your meds sorted to be able to get your pain under control, is there another gp in your surgery who you could swap to? if not i would change.
There are lots of meds to try so plz dont give up.

flup put a link up for meds, print that off and ask your gp to read it and ask it you could try some of the meds they have listed on it. :goodluck1: keep us updated. :hugs:
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