Bath rheumatology hospital

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Bath rheumatology hospital

Postby felixkitten » Sun Mar 13, 2011 10:31 pm

Hi there,

Has anyone been to, or is in the process of being referred to the Rheumatology hospital in Bath (UK)??

I have been referred by my amazing consultant, who used to work there but he cant seem to remember what they will do for me, as he thinks it has all changed!!

As far as I know I will be in there for 5 days maybe more.. and I am assuming it will involve Physio.. but I dont know what else!!

If anyone can help enlighten me I would be most grateful!!

Many thanks!!


felix xxx :catrun1:
'rare progressive' Fibromyalgia (including all symptoms found in textbooks & others which are not in there!), M.E., P.C.O.S., I.B.S., Diabetes, Hypothyroidism, Asthma, ... the list goes on.... :(
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Re: Bath rheumatology hospital

Postby denys » Sun Mar 13, 2011 11:01 pm

Sorry Felix not in that area :hugs: :hugs: :goodluck1: with your appointment
Denys

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Re: Bath rheumatology hospital

Postby nutty1 » Mon Mar 14, 2011 12:03 am

sorry me neither but :goodluck1:
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Re: Bath rheumatology hospital

Postby felixkitten » Mon Mar 14, 2011 12:43 am

I know they accept referals from all over the country, either through GP or consultant...

When i know whats going on and what they will do I will let everyone know ... if its good everyone can be refered!!!


:) :grouphug:
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Re: Bath rheumatology hospital

Postby Adele » Mon Mar 14, 2011 1:13 am

hi felix, the Fibromyalgia Coping Skills Programme offers:

•Specialist Multi-disciplinary team assessment, diagnosis and rehabilitation
•Specialist Therapy Lead Outpatient Coping Skills Programme•Education and advice on self-management of this complex condition
•Advice from an Expert Patient throughout the programme
•Patient-centred goal setting
•Condition specific education
•Exercise advice
•Hydrotherapy
•Dietary advice

the information above was extracted from:

http://www.rnhrd.nhs.uk/departments/rheumatology/FibromyalgiaCopingSkillsProgramme.htm

i've heard good things about the hospital.......can you tell me if the programme is residential or outpatient?

adele :wave:
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Re: Bath rheumatology hospital

Postby felixkitten » Mon Mar 14, 2011 1:20 am

hi Adele, I did see the blurb on the website, but I was lead to understand that the 'coping skills' thingy is an outpatient thing, and I am going to be going as an inpatient for at least 5 days?

Im hoping they will be able to help me get my meds all sorted and stuff,.. as I think im a bit different! :crazy: :crazy: :crazy:

I also know that they offer young ppl a flat or something to l ive in when they go for treatment!!

i guess I really just have no idea,.. and was wondering if anyone else had gone in to the hospital as an inpatient for fibro,... and they knew what was going to happen to me!!

Its a long way for me to go, and I guess I just want it to be worth it!

Many thanks for sending the link though bless you,... researching it for me an all :) *shucks* mighty grateful :)


I think I will have to start writing on my blog again when I go and update everyone!!

I dont even have a date yet,.. but my consultants sec rang me th e other day to say that the doc wanted me to personally know that my referal had gone thru :D he is great!!


sorry about the ramblings.. I do tend to go off on one...

main point is thanks!!! :) :flowers:
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Re: Bath rheumatology hospital

Postby nutty1 » Mon Mar 14, 2011 9:09 am

:wave: it will be interesting know how it goes :goodluck1:
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Re: Bath rheumatology hospital

Postby felixkitten » Sun Jul 10, 2011 8:27 am

HI guys,

I went to the RNHRD @ Bath, to do the coping skills programme.

I was quite unwell from the long journey down there and being in an unfamiliar place, aswell as my throid function was off the charts. So they decided to do the coping skills thingy which basically means you see a physio, an OT and do hydrotherapy once a day for 5 days.

My experience of it was this. The physio's and OT's just told me I had to sort out a sleep routine to help me get better sleep (like its not from want of trying to sleep!), they told me about pacing but didnt help me work it all out, and they told me about meditation and talked me through two. all this they also gave to me on A4 photocopies, then had the (nerve) to write in my discharge letter that I didnt implement anything!!

GRRRRR :evil:

My cousin who has M.S. taught me more than they did, and most of it I already knew!!

Im not sure what else they/we would have accomplished if my bloods hadn't been waffy.

So, my advice would be, ... get a referal from your G.P. or specialist and tell me how its supposed to go!!

Jen xx :grouphug:
'rare progressive' Fibromyalgia (including all symptoms found in textbooks & others which are not in there!), M.E., P.C.O.S., I.B.S., Diabetes, Hypothyroidism, Asthma, ... the list goes on.... :(
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Re: Bath rheumatology hospital

Postby FluppyPuffy » Sun Jul 10, 2011 9:43 am

Have you had any more advice since you went to RNHRD@Bath on how to work out pacing for you Jen?? If you're still trying to find a way that's right for you, I'll gladly tell you what I did to find a way that is better for me :wave: :wave: :wave:
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Re: Bath rheumatology hospital

Postby ciderpig122 » Sun Jul 10, 2011 12:11 pm

Please share fluffypuppy :)

Im due to go to UCLH in September but am quite up the wall at the moment :p :D
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Im not ill, I am just special :D
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Re: Bath rheumatology hospital

Postby FluppyPuffy » Sun Jul 10, 2011 12:42 pm

I had a psychologist go thru pacing with me and I found a way that does help me, so hopefully there might be something in it that might help.

I tried working on an approach of doing something for a set amount of time (eg half an hour) then stopping for a break for the same amount of time, then carrying on again. That approach didn't work very well for me as it was too long to do something, but not a long enough rest between things for me to feel a bit better.

The approach I then tried, which is what I still use now, was to see how long I was able to do something for on a decent day without causing myself too much discomfort, then do the same thing on a rubbish day. I did the same with the length of rest I needed as well. With the various lengths of time, I took the average for each bit and that is what I now work on.

So now, I do something for 10 mins at a time, with a rest of 20 mins, then I start again. It is a bit frustrating at first and it looks and feels like you're not getting as much done as you would like, but once you're into it it does help.

Hope there's something in this that makes some sense. And hopefully you'll be able to find a way that helps you as well :fingerscrossed: :fingerscrossed:
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Re: Bath rheumatology hospital

Postby spirery » Tue Aug 02, 2011 11:18 pm

I had my first appointment at RNHRD 2 weeks ago. The dr I saw was very thorough and changed my meds as they were not helping. She also arranged for me to see a OT to arrange more help for me, which is in 2 weeks.
I have been put on the waiting list for the 5 day pain management course. I hate staying in hospitals so I am hoping that I just go in every day and not stay over, I only live 20 miles from Bath, it makes things easier as I have a bus pass.
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