Now I know why I prefer to see another GP in the practice !!

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Now I know why I prefer to see another GP in the practice !!

Postby HazelB » Fri Apr 22, 2011 12:19 pm

ok, yesterday morning I went to the GP with my daughter - who has been experiencing all over muscle pains since last Sunday and was so severe with pain on Tuesday she couldnt even manage out of bed to go to college. My main worry was that the pain was maybe an early sign of her having FM - so i went with her to be there to ask the doctor that question (even though her appointment was 8.40am and it was a major struggle for me to be up).

Anyways, the doctor she was seeing was the one we are registered with, and who diagnosed me with FM ... but she is so out of touch as to what FM is I'm always glad to see another GP in practice. (pity is the best GP for my FM is retiring next week :'( ). Anyways she says that Nik does have some tenderness down her spine, and some restriction in her neck (she has experienced neck problems since our car crash in 07). She then starts asking Nik about the amount of time she spends on the computer and using facebook ... tells her she is addicted to facebook (which is probably true ... if she's out she's always checking facebook & her phone for texts) and she is in such pain because of the amount of time she lies on her bed using laptop. She also started going on about how teens of this generation dont socialise properly and its all done via a screen. This is despite her being told that Nik is out regular with her friends, and no consideration given to the fact that this severe pain/stiffness started after she'd been at the under-18's club she goes to, and after dancing. Now she goes to this club virtually every Saturday - so if it was simply she was dancing too much she'd be the same every week.

Her answer was Nik was to spend less time on facebook and get more exercise (which is probably something she needs) and if she is still experiencing pain in a month to come back.

I said to her my concerns it was early stages of FM .... to be told that as I know FM is 50 % depression and 50% physical ... and it couldnt be FM because she isnt showing any sign of low mood or depression. Bearing in mind that it was not even 9.00am and I was still only half awake, I didnt even bother to waste my energy trying to explain to her the latest research on FM is showing that there is a clear link to the central nervous system. I'm still not 100% convinced that these pains are not related to possible mild FM (she has had pains like this before - told last time it was a viral infection affecting her muscles), especially as she is hypermobile, has IBS, has terrible sleep patterns (for example, slept 10 hours a few nights ago and woke up totally exhausted and also these periods of severe all over pain have only started since we had our car crash. So I have gave her one of my pain/symptom charts and asked her to keep a diary for the next month .... and see what comes of it. Even without a diagnosis, i'm erring on the side of caution - considering I know a he!! of a lot more about FM than the GP does !!!
(soft hugs)
Hazel xxx
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Re: Now I know why I prefer to see another GP in the practice !!

Postby Ldyalb » Fri Apr 22, 2011 4:58 pm

Send Nik to a different GP, mine tried to dismiss me but as I have a history of ankylosing spondylitis, osteo-arthritis and rheumatism (i.e. fibro) in my family they referred me to shut me up (I think asking her how many 22 year olds who could barely walk she'd seen that month did the trick). My Mum and Nan both have fibro as well so it can happen. Hopefully it's not fibro but it's worth her seeing someone who will check her out better.

Did she prescribe her anything? and :swear1: to the depression thing, I've never been depressed in my life. I still have fibro. Depression is a symptom, not a cause and with every illness - you don't have to have every single symptom!
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
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Re: Now I know why I prefer to see another GP in the practice !!

Postby HazelB » Sat Apr 23, 2011 11:37 am

Thanks, our surgery operates a triage system where you speak to duty doctor and are then allocated next appointment space ...you don't phone for an appointment with a particular doctor, unless that doctor wants to see you.

I will give it the month and see how Nik is ...and if she is still having problems I will go with her armed with copies of the latest research, and a list of FM symptoms that Nik has experienced.

I refuse to let her suffer for years without a diagnosis like I did, due to the incompetence of GPs when I know more about FM than they do.

I was 24 when my symptoms started after Niks birth, and by time I was 30 I was using a wheelchair my mobility was so bad (I use 2 sticks now) ...so I totally get you when you say how many 22 years olds use sticks...you are at an age when you should be loving and enjoying life...not living each day in pain & all the other crap that goes with FM xxx

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(soft hugs)
Hazel xxx
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Location: Renfrewshire, Scotland, UK


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