Can you believe the so called professionals?

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Can you believe the so called professionals?

Postby nicola27 » Thu Apr 28, 2011 11:40 am

When I was first diagnosed 2 yrs ago. The first specialist I saw at the hospital, the one who diagnosed me. He told me the future diddent look good for me that I was the worst case he had seen for someone of my age (30 at the time). He said there was nothing that the only thing that could help was to........ 'go and have a baby'! I was shocked. he said it would reset my hormones again. I didnt believe it and researched on the net to find only one study done in Norway (I think it was). and there is no evidence to say this would help.
I asked my GP to be referred. I waited a long time for the next appointment and had to travel a fair way to the hospital. I walked int ot the doctors room and he asked why I wa there. I said that I had FMS. He looked me up and down and said 'You dont look like you have fibromyalgia'! This was the first thing said to me. he then aske what meds I was on. He asked if the meds was for depression. I said yes. He looked me up and down again and said 'you dont look like your depressed'!

Anyone that knows anything about either FMS or depression knows that you cant tell these things by looking at someone after seeing them for not even 2 minutes. I was furious. getting no where with the medical professionals I turned to this forum and have had more help from here than I ever got from them, so thankyou.

nicola
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Re: Can you believe the so called professionals?

Postby denys » Thu Apr 28, 2011 11:48 am

So sorry Nicola, but it seems like your experience is par for the course, lots of us have had similar experiences. Does your GP believe in FM if so stay in their care and give the others a miss :hugs: :hugs: :hugs: :hugs: :hugs:
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As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Can you believe the so called professionals?

Postby Adele » Thu Apr 28, 2011 12:31 pm

i wish having a baby would cure fms. what an insensitive idiot.

the worst i've had is:
from a nurse at a pain clinic who helped me shuffle along with my sticks, i was about 33 at the time, and she just said to me "what a waste". thanks!
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Re: Can you believe the so called professionals?

Postby nicola27 » Thu Apr 28, 2011 1:15 pm

I know that most people face battles against health care professionals regarding FMS but I just couldnt believe that after being referred because of the first 'idiot'. The second pro was as much of an idiot. To say someone dosent look like they have fms or depression by looking at them for not even 2 minutes is insane. Its such a shame that the only people that really understand this condition is the people who suffer from it. I dont know where I would be without the internet to find all my info on the condition.
My Gp is really good but I am now under the nurses. They can advise on things but they cant tell me anything I dont already know.

Sorry for the rant! :?
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Re: Can you believe the so called professionals?

Postby budda » Thu Apr 28, 2011 3:08 pm

Sorry to hear what you had to listen to by a mmmm specialist, you are write in what you say, we do get better answer or help on the forum than from these stupid people, because the friends on here know what we are talking about, as they suffer the same as us, I feel myself this is more than an FM forum, I can come on here and tell people my problems and they will advice me what they would do, so its like having an agana aunt(sorry about spelling) for ME, could not do without this forum, can come on and off when it suits ME and knowone says anything about not being around for a while, so am saying thanks to everyone who take part. :grouphug:
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Re: Can you believe the so called professionals?

Postby Ldyalb » Thu Apr 28, 2011 5:19 pm

Even if having a baby did help with FM it'd be hard work making one!!

I think I would have complained, there's something quite sexist in that comment - it used to be believed (like hundreds of years ago, not last century to best of my knowledge) that a lot of female health conditions were caused by the womb being 'underused' and having a baby was believed to cure a lot of women's ailments. Sexist claptrap.
'Think of all the beauty still left around you and be happy' - Anne Frank

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Re: Can you believe the so called professionals?

Postby tonydin » Thu Apr 28, 2011 7:13 pm

aint going to work for me is it :mrgreen: :mrgreen: :mrgreen:
what about men with fm doc was a pratt :swear1:
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Re: Can you believe the so called professionals?

Postby nicola27 » Thu Apr 28, 2011 8:07 pm

I was mortified as at the comment about having a baby as I have a 13 yr old daughter from a previous relationship but only one child with my partner (it was after having my son that the FMS started). He really wants another , as I DID, but with this condition it would be really difficult to look after another one aswell as my young son (who is a handful). We came away from the app with my partner really wanting to try and me defiant that I dont. It caused arguments. I told the second specialist what the first one had said about this and he laughed, apologised for laughing and said he had never heard of it before and to ignore it. Also the trying part would be very difficult, lol.

This is definately a place I shall be visiting more often as the people on here are the only ones who can actually underdstand how it feels.
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Re: Can you believe the so called professionals?

Postby BlueBerry » Thu Apr 28, 2011 8:40 pm

this a place great need advise or should cry on it is the place :wink:

is that only doctor you can see ? I would drop him like hot potato and find new one wft fm is really and you may not look depressed but it in the head not on you god sake my bloody flare up with stupid doctors at min....

he need go back medical school or read up fm it real and here :clap: :clap: :clap: wish it wasn't :facepalm:

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Re: Can you believe the so called professionals?

Postby sjc » Fri Apr 29, 2011 7:00 pm

:wave: Hope you are ok, blimey, that is one insensitive GP. I really can understand your situation about how professional's from the NHS treat those with hidden disability.....

I have nhs workers myself who presume that because I dont look a certain way then I am making the illness up or not has bad as I am saying......These medical people have got to realise that not all disbalities always show itself in a physical way.....The trouble with people from the NHS and in general life is that they think that when people are disabled or ill, then one has to be in a wheelchair or using walking sticks or dribbling in a chair......Most people with disabilties are infact normal looking people that don't look ill.

I like yourself get mad at these medical people as if we went into our gp surgery with some other illness, they would question our condition.....But these medical people do not want to understand about Fibro....

Did you complain about your experiences - a good doctor would have said them things to you.....so make a complaint about it.....if you can.....

Take care and really can sympathize with your experiences :grouphug:
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Re: Can you believe the so called professionals?

Postby nicola27 » Fri Apr 29, 2011 7:10 pm

Hi. I didnt make a complaint, but I told my GP (the one who referred me for the second time) what had been said and he didnt seem interested he just brushed it off and said he was sorry about my experience and that I was now under a team of nurses instead. I have to say that the nurses I have spoken to are lovely.

:)
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Re: Can you believe the so called professionals?

Postby cherryblossom » Fri Apr 29, 2011 10:32 pm

Hi. I was told this once as well - to have another baby as it would 'reset' my hormones!! It was many years ago and before I knew about FM. Due to the pain I was constantly in I eventually lost my job and finally after our 4th child I had a hysterectomy - at 21! The consultant came round and apologised profusely to me about having to do it on someone so young and went away crying. It wasn't his fault - it was either that or I would have died by the next day! But I get comments even now regarding how 'un-ill' I look and how well I do look! I think I've said somewhere on here before it's because I have chubby rosy cheeks and of a good womanly farm-worker stature, so always get told 'am I sure I'm ill, I don't look it!' You do get fed up with hearing it when you try to tell someone how flippin awful you feel and they question you! Yes, thankyou, I'm quite sure I feel bad, sorry if I don't look it! It makes you realise how narrow people's perception is of how an ill person should look! Loadsa :hugs: all round. Cherry :blowkiss:
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Re: Can you believe the so called professionals?

Postby chopper » Tue May 03, 2011 12:10 pm

My doc is on holiday at the moment so I had to see another partner, and I swear to god she had never heard of fm never mind able to treat it. I said to her that I had fm and had been told to make ao apt to discuss my meds and my symptoms. So I told her that I had been getting pains in my wrists and fingers which I had never had before and she said well you are 53 its probably a touch of arthritis. I have therefore decided to try and last til my gp comes back, it is just too tiring to try and explain everything to a doctor with less knowledge than a medical student
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Re: Can you believe the so called professionals?

Postby Schnoodle » Tue May 03, 2011 5:19 pm

oh my goodness i cant believe they said that. how does one look with depression exactly?

and as for go have a baby? - well i been trying that for 18 months and im still not pregnant.

what a diot.

xxxx
Diagnosed with severe fibromyalgia/cfs febuary 2009.
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Re: Can you believe the so called professionals?

Postby nicola27 » Thu May 05, 2011 12:39 pm

I cant believe the idiots either. I was told the same thing, that it would reset my hormones. When I told the second dr he laughed at this. I dont have much faith in the medical system now.
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