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The UKFibromyalgia Forums • View topic - dont know what to do. help anyone?



dont know what to do. help anyone?

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dont know what to do. help anyone?

Postby GhostyBooman » Thu Jun 16, 2011 3:50 pm

to introduce myself first. Hei im Ghosty im 17 and from Gosport Hampshire

ive had fibro (undiagnosed) since i was really little (i was in junior school) when id get random pains which often ended up with me in the hospital to see if id broken anything. when nothing was found wrong i got labeled a fake and now my dad rarley believes im ill.
in the last few weeks the pain has gotten so bad i can no longer walk and i have to take a nap every hour or so.
yesterday i went to the doctors to see what he could do and he as usual refused to listen (to the point of telling me in a more polite way to stfu) he just prescribed me this thing called *finds box* Naproxen? i googled it and it says its an anti inflamitary drug but i have no swelling and its not working for the pain.
my friends mum (who is a physio (sp) in the local hospital) gave me some execises to try but i litrally cant do them it hurts to much.

i have anxiety disorder and am depressed and have been seeing a therapist person (i cant spell the proper word sorry you will see alot of bad spelling from me ) and just recently ive been able to go out and be completly ok with it and have never felt so (mentaly) good but then the whole not being able to walk further than from the kitchen to the lav (about 2 meters) is kinda spoiling that.

going to the doctors i had to have my dad holding me up but he has a broken hand is really old and his heart failure so he cant really hold up his daughter (espcially seeing as im taller and heavier than him) and apart from my younger bro and sis and 77 year old aunt i dont have any other family so im kinda screwed as what i can do.

in september im going to college and i was planning on getting a job so i can move to finland for uni and the hopefully stay there but i cant do any of that if i cant leave the house.

the pain i can live with but the not being able to walk and the not being able to stay awake i cant live with so any advice would be really great.

apologise if this isnt allowed or is in the wrong place or if its to ranty and makes no sense (which is typical of me )

now i must go as my baby bro is firing a nerf gun at me to get his laptop back
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Re: dont know what to do. help anyone?

Postby FluppyPuffy » Thu Jun 16, 2011 4:29 pm

:welcome: to the forum Ghosty :wave: :wave: I've moved your post into here as you'll get more of a response as you're introducing yourself.

Has fibro been mentioned as a possibility as to what could be wrong with you, or is it something you've come across when googling possible reasons for your symptoms :?: :?: If it's something you've come across based on some of your symptoms matching those of FM, then you probably won't be too keen on the next bit I need to add to this.

FM isn't a straightforward condition to diagnose. It can take a long time to arrive at the decision that it is what you're suffering with. There are several other conditions with symptoms that mirror FM, and these need to be investigated and ruled out before your are told you have FM.

If your GP is as unhelpful as you say, then you really need to try and see a different doc at your surgery to see if they are more understanding. If that isn't possible, them you may need to find another surgery with a doc who will listen to what you have to say. With your mother being a physio, does she not have any contacts that she ask about what might be your problem and see if things can progress further that way :?: :?:


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Re: dont know what to do. help anyone?

Postby GhostyBooman » Thu Jun 16, 2011 5:32 pm

Hei thanks for moving this post

I missed out that I am now diagnosed with it just my doctors won't treat me

It says my friends is the physio my mum was a nurse but she passed away when I was 11

I want to move docs but dad won't let me my old gp was awesome but retired last year The new one just gives out random prescriptions without listening to the patient (he tried to give my dad penicillin even though he's allergic)
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Re: dont know what to do. help anyone?

Postby FluppyPuffy » Thu Jun 16, 2011 5:52 pm

Sorry about misunderstanding the physio bit of your post :oops: :oops: I reread it several times, but after looking thru numerous posts I do get things wrapped around my neck at times :oops: :oops: I hope I didn't stir up anything to upset with mentioning your mum :hugs: :hugs:

If your new GP is trying to give your dad a med he is allergic to, I would have thought it might have helped change his view of swapping GP :dunno: :dunno: Have you tried going to see your GP armed with info about FM and the various things used to try and manage it, there are pages on the NHS Choices site, so they can't say it's not recognised or anything. Maybe you need to take a more direct approach, say that these are the meds commonly used for FM, which of them might be suitable for me :?: :?: This linky will give you more info about treatments etc

Not sure what else I can say, I don't know if, at 17, you still need permission from your dad to try and find another GP :dunno: :dunno:


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Re: dont know what to do. help anyone?

Postby GhostyBooman » Thu Jun 16, 2011 8:28 pm

Nah it's cool everyone makes mistakes :)


Yeah I would have thought that but my dads a bit thick

I have taken in plenty of info he still couldn't give an F

I'm thinking of just giving up getting myself some energy drinks to stay awake and a wheelchair but dad says no and that the doc will listen next time which I highly doubt
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Re: dont know what to do. help anyone?

Postby FluppyPuffy » Thu Jun 16, 2011 8:32 pm

I know this is going to sound like a typical adult thing to say, but be very careful with the energy drinks. They're not designed to be used long term, just as a short term energy boost. Having too many can make you jittery then bring you crashing down super fast :facepalm: :facepalm: :facepalm: Is there not another doc at your surgery that you can try and see instead of your regular one :?: :?:


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Re: dont know what to do. help anyone?

Postby GhostyBooman » Thu Jun 16, 2011 8:40 pm

I wouldn't really drink an energy drink I never have before same with coffee don't get how Anyone could

The doc I saw was the emergency doc my usual one thinks all kids are lying dad just said he's going to try and get me an appointment with the nice Indian doctor there because he was great with my baby bro (who has lots wrong with him) but it's hard to get appointments with him as everyone wants to see him
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Re: dont know what to do. help anyone?

Postby FluppyPuffy » Thu Jun 16, 2011 9:17 pm

Unfortunately that's always a problem when there's one decent doc, everyone wants to see them. You would think that it would give the surgery an idea of what their patients think :dunno: :dunno:

Hope you can get an appt with the decent doc and get started on finding something that will help you :fingerscrossed: :fingerscrossed:


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Re: dont know what to do. help anyone?

Postby GhostyBooman » Thu Jun 16, 2011 9:21 pm

Thanks
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Re: dont know what to do. help anyone?

Postby denys » Fri Jun 17, 2011 12:33 am

At 17 you can choose to see whoever you want so you phone up and get an appointment with the doc you want to see, ask for a referral to see a rhuematologist specialising in FM and ask them to prescribe for you :fingerscrossed: :fingerscrossed: :fingerscrossed: you'll get some effective treatment soon as at your age they should be able to get something to help you :goodluck1: :goodluck1: :goodluck1:
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Re: dont know what to do. help anyone?

Postby GhostyBooman » Fri Jun 17, 2011 1:25 am

the problem is i cant GET to the phone its on the third floor grr but i will try if not i will wait till sunday for my aunt to come over for dinner and ask her to go over to the doctors and sort it for me

i hope i get some proper help soon from the doc i cant stand not being able to go outside any longer the weather is so beautiful (even if i have to use a wheelchair i need to get out of this damn house its all ive seen since january im going crazy here lol )

the doggie in your icon is ADORABLE *loves animals* i have 3 dogs (2 great danes and a boxer who thinks hes a cat)


:chicken-dance: <- this smiley is epic *its half 1 im tired so crazy*
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Re: dont know what to do. help anyone?

Postby budda » Fri Jun 17, 2011 2:46 am

First, :welcome: to the forum GhostyBooman :wave: so glad you have found us, there is not much more i can add, but i do hope you get the help that you need, and that your GP can give you something to help the pain. :hugs: we are here to support you in anyway we can.
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Re: dont know what to do. help anyone?

Postby FluppyPuffy » Fri Jun 17, 2011 8:18 am

There's always a bit of :crazy: :crazy: :crazy: :crazy: :crazy: floating around on here, usually when there isn't anyone here but us :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: :chicken-dance: and :penguin: :penguin: :penguin: :penguin: :penguin: :penguin: :penguin: :penguin: :penguin: :penguin:

Think I've found my serious head now.....................................but then again :shock: :shock: :shock: :shock: :shock:


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Re: dont know what to do. help anyone?

Postby GhostyBooman » Fri Jun 17, 2011 10:13 am

thank you guys


everyone needs a bit of crazy in their life otherwise how boring would life be :pigoink 1: :penguin:
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Re: dont know what to do. help anyone?

Postby shazq » Fri Jun 17, 2011 12:55 pm

:welcome: to the forum :wave: :fingerscrossed: you get to see the good gp and hope you get some meds to help control your pain. Make sure you tell the gp that you have been stuck in the house since Jan they might refer you to a Rheumy and physio. :goodluck1:
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