does it just get worse over time

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does it just get worse over time

Postby tnissan38 » Wed Jul 13, 2011 8:05 pm

Hi all i am just waiting to have some more tests done even though fm is what they say i more than likly got . i am in lots of pain all time and so tired. But was wondering after reading quite a few stories and comments you have all put , does it just get gradually worse over time and years or can we start to feel better or normal again . just wondered with the folk who have had it years . how you started and how it has progressed got worse or any better .THANKS TRACEY XXXX
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Re: does it just get worse over time

Postby shazq » Wed Jul 13, 2011 8:26 pm

Hi Tracey
Everyone is different, some people do get stages where they do get good days/weeks but then you get others that will have pain everyday like myself.

I have found with myself i have got worse over time, when i got flares i never recovered from them, where some people will. With me i am still getting more and more symptoms :facepalm:

I have had to give up work, i have to use a walking stick as i fall over,i dont know now much more i will deteriorate :dunno:
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Re: does it just get worse over time

Postby FluppyPuffy » Wed Jul 13, 2011 11:18 pm

I've definitely got worse over time. I don't recover from a flare, the pain levels from the flare become my new "normal" and things bobble along until the next one hits me :shock: :shock: :facepalm: :facepalm: It's been like this from day one, I've not had a pain free time since things started to appear.

Like shaz has said, some people have times when they feel better for a few days or weeks, but a lot of us have pain and other things all the time :( FM affects us all so differently which means you can really predict what will happen, all we can do is take things day-by-day and work with what is dealt to us :dunno: :dunno:
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Re: does it just get worse over time

Postby denys » Thu Jul 14, 2011 1:00 pm

Me too, definitely got worse. not much more to add to Shaz and flups replies though :wave:
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Re: does it just get worse over time

Postby tnissan38 » Thu Jul 14, 2011 10:55 pm

thanks for that info it was i was just wondering . wishing you all some days with relief xxxx Tracey xx
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Re: does it just get worse over time

Postby denys » Thu Jul 14, 2011 11:22 pm

You too Tracy :hugs: :hugs: :hugs:
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Re: does it just get worse over time

Postby FluppyPuffy » Thu Jul 14, 2011 11:26 pm

Same to you as well Tracey :fingerscrossed: :fingerscrossed:
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Re: does it just get worse over time

Postby McVinster » Fri Jul 15, 2011 12:06 am

I have to add my FM seems to have settled lately now that I'm on Amitriptyline. I do have flares, but it seems that it takes about a week to recover from a medium one, maybe 2 for a serious flare, but it does settle down again. In the days after a flare I do have to watch for anything that will set me off again and prolong the flare, everything from stress levels, even getting too excited about something, to food and how I sit, so all I can recommend is when it's possible, take a day off after any flare (or regularly if you get the chance anyway), do as little as possible, relax with whatever you can.

:fingerscrossed: things don't keep getting too bad for all of you.
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Re: does it just get worse over time

Postby FluppyPuffy » Fri Jul 15, 2011 8:09 am

It sounds like you've got some control over your FM with the amis, which is fab :woot: :woot: I hope things stay as they are for you :fingerscrossed: :fingerscrossed:
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Re: does it just get worse over time

Postby viota » Fri Jul 15, 2011 12:50 pm

mine does seem to be getting worse as well as my ME.
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