Hi I'm newish

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Hi I'm newish

Postby Jo75 » Fri Jul 29, 2011 10:27 pm

I have been on here before but that was when I thought my probs were caused by having Hyperparathyriodism. However, I have seen my endocrinologist this week and I am, in his opinion cured of that problem and there is nothing in his view that can be causing me so much pain and exhaustion; hes now referring me to a rheaumatologist as he feels I have fibromyalgia. So, ive sort of got a dx but not officially. Been in terrible pain especially with fingers, hands and arms, feel so tired I get exhausted at doing the slightest little thing, that's without the griping stomach pains and urgency to use the loo!! Sleep patterns are all over the place due to the pain.
I work full time, but on reduced hours at the moment, 3 days per week 9-1 but find that a struggle as I can just manage to drive.
Can anyone advise what benefits are available for sufferers of fibromyalgia? I'm just preparing for the worst as the linger this foes on the worse I feel.
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Re: Hi I'm newish

Postby FluppyPuffy » Fri Jul 29, 2011 10:37 pm

:wave: Jo, with you still being in work, the best person for you to talk to is your local Disability Employment Advisor, based in your local jobcentre. They will be able to go thru the various options that are available to you, as well as working with your employer to try and improve things so you can work as effectively as possible :mrgreen: :mrgreen:
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Hi I'm newish

Postby Jo75 » Fri Jul 29, 2011 10:47 pm

Thank you, do you know if they will do home visits?
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Re: Hi I'm newish

Postby FluppyPuffy » Fri Jul 29, 2011 11:06 pm

I don't know about that Jo :dunno: :dunno: The best thing to do is ring them and talk to them, see what can be arranged to see them.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
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Re: Hi I'm newish

Postby shazq » Sat Jul 30, 2011 3:08 pm

Hi Jo
Sorry you are finding work a struggle, many fibro sufferers have had to pack up working. Like flup has said the DEA are the best people to talk to at the job centre. :goodluck1:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: Hi I'm newish

Postby denys » Sat Jul 30, 2011 4:28 pm

Hi Jo I agree with Flup and Shaz, they may just talk to you on the phone and then send you info in the post :fingerscrossed: :fingerscrossed: :fingerscrossed: for you :wave:
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