Please help. :) Having a nightmare.

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Please help. :) Having a nightmare.

Postby pitbull » Thu Aug 25, 2011 8:18 pm

Hi my name is Gary and im a 40 year old man living in Suffolk.. On Christmas eve i ended up in hospital as they found an irregular heartbeat and i came home the proud owner of a a pacemaker. Since then i have had a nightmare with anxiety etc and have been seeing a psycologist regularly. About four weeks a go i began feeling weak and achy around my knees and heavy legged and a bit bloated with a bad tummy. I have also had a stuffy and achy head. I went to see the doc who told me i had a heart murmur!! PANIC stations!!! lost the plot and ended up seeing an out of hours doctor who checked my murmur and reassured me it was not too bad!! So im thinking to myself whats wrong? Like a fool i came home and googled motorneurone symptoms then promptly lost it again and convinced myself this is the end!! I have been on valium since then, Sat dinnertime and have been in hell. On Monday i saw the heart specialist who has told me i have a mitral heart murmur and when i told him my fears checked my reflexes etc and assured me i do not have MND. I have since seen and been checked by two other GPs who agrre that i show no signs even though i have had twitches in my muscles, although this is all over and not localised.
Today i even rang the Mnd association and spoke to a specialist who also said the same thing. I have since looked on this site and also another Fms site and feel that i fit right into this bracket.
Here are some of the symptoms ive experienced in the last 12 months

Dizzyness lightheaded
Aching and weak feeling in arms and legs. (current)
forearms tingle sometimes and burn to the touch (current)
headachy, almost like a hangover (current)
burning in genitals feels like i want to to pee all the time, tingly (current)
litle twitches all over, arms legs stomach hands, feet face etc randomly (current)
pins and needles in hands and arms
restless legs, i struggle to get to sleep at night.
sweats or cold hands ( comes and goes)
pains in leg muscles, i had a massage today and it was agony!!!
my heart specialist reports i have a mitral valve murmur, poss prolapse...
two teeth have cracked and need capping
i find it painfull to jump or jog. (current)
These are just the one i can remember, please can anyone tell me if this makes sense to them or if they are/have experinced similar..
I would appreciate some help on this as i am going out of my mind with worry and pain!!
Regards
Gary
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Re: Please help. :) Having a nightmare.

Postby FluppyPuffy » Thu Aug 25, 2011 8:36 pm

:welcome: to the forum Gary :wave:

You'll appreciate that we can't tell you what is the reason for your symptoms and things, for that it needs to be a medical professional. Looking at the list of things you've been experiencing, some of them could be due to FM. But they could also be due to several other conditions that shares very similar symptoms with FM, plus there is always a possibility that symptoms can be masked or mimicked as well :facepalm: :facepalm:

FM isn't a straight forward condition to dx as it doesn't show in any tests, scans or anything. Usually a dx for FM is given when these various other conditions that show similar symptoms have been tested for and eliminating. It is then that FM is arrived at.

You need to see your GP to start things off for finding the cause of your symptoms. Maybe keep a diary of symptoms for a while, then go and see your GP with it, and explain why you think it may be FM. Hopefully from there your GP will start the ball rolling with blood tests, and any other tests, scans etc they think may be helpful.

When the results are in, depending on what they indicate, you could either be reffered onto an appropriate specialist, or your GP may feel able to give you a dx and start a suitable treatment plan for you.
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Re: Please help. :) Having a nightmare.

Postby shazq » Thu Aug 25, 2011 8:42 pm

Hi Gary
sorry to hear you are having a rough time.
It's hard to say if it`s fibro or not as fibro does mimic other conditions as well ie. M.E.& C.F.S. they all overlap each other, fibro will not show up in any blood tests either so it can take a long time to get diagnosed as they have to rule other things out first.

Some Gp`s will dx fibro themselves but most send you to a Rheumy for the dx.
Have a read around the forum and see if there are other symptoms you have and make an appt to go see your gp and mention being refered to a Rheumy. :goodluck1:
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Re: Please help. :) Having a nightmare.

Postby denys » Thu Aug 25, 2011 8:47 pm

Hi Gary and :welcome: to the forum, I cant add much more than Flup has already say. I would say you need some talking therapy or such like to help you cope with your anxiety.

Its understandable that you are going to worry about your health after all you have been through, but no matter what you finally get diagnosed with, panic is going to make your symptoms worse, Print off some of the info from here or the NHS website regarding FM and visit your doctor :fingerscrossed: :fingerscrossed: :fingerscrossed: you get some answers soon and :goodluck2: :goodluck2: :goodluck2:
Denys

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Re: Please help. :) Having a nightmare.

Postby pitbull » Thu Aug 25, 2011 8:54 pm

Thanks people, I think my doc is sick of the sight of me as ive been there every day this week!!! Im an extremely anxious person so this just increases the intensity of my symptoms... I have made an appnt with a neuro so will need to be patient there( or try at least!!)
The funny thing is that since i started panicking i have noticed these little twitches inside all over me and burning sensations!!
Maybe all the meds ive seen so far are right it may be just anxiety :)
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Re: Please help. :) Having a nightmare.

Postby denys » Thu Aug 25, 2011 8:57 pm

Just take deep breaths you'll get there :hugs: :hugs:
Denys

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Re: Please help. :) Having a nightmare.

Postby FluppyPuffy » Thu Aug 25, 2011 9:03 pm

It could be anxiety, like has been already said, it could be due to something else causing the problems, unfortunately the only way to start finding out is to go for another appt with your GP :facepalm: :facepalm: When you've got various health problems, you do seem to spend all your time seeing various medical bods :facepalm: :facepalm: I've been at mine so much recently, I've seriously considered moving in there so they're on hand when I need them :yikes: :yikes:
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Re: Please help. :) Having a nightmare.

Postby *Lisa* » Thu Aug 25, 2011 9:55 pm

:wave:

Anxiety symptoms mimick those of fibro, i was told in my early days it was anxiety but as time went by i was diagnosed FM

My anxiety makes my fibro symptoms worse but :fingerscrossed: iv had CBT and my anxiety atm is under control and im hoping it stays that way!! iv had so much stress lately and kept it at bay so i would recommend some CBT to help your anxiety

The most commen symptom of fibro is severe muscle stiffness all over the body which cause severe pain...BUT tensing up like anxiety sufferes do can also lead to this symptom

I found that when we get a trauma in our life anxiety can strike like it did with me and i lost control of myself, i became agrophobic and had health anxiety and some OCD

The sypmtoms of severe anxiety are those you listed. Anxiety is awful and very dibilitaing but anxiety also mimicks other illnesses which dont help when your in a state of panic!

when your body goes into shock for example your news about your heart then the body reacts, like the saying* flight or fight * you seem to be in a constant panic and your body cannot calm down from it... your body reacts and gives out sypmtoms like you discribe, its your bodies way of realising the fears. Iv had many cbt sessions and it was a very good way in understanding your body and why it reacts and how to control and cope with symptoms and how to learn the triggers so u can act before anxiety gets a grip

:hugs:
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Re: Please help. :) Having a nightmare.

Postby hamstergirl » Fri Aug 26, 2011 7:35 am

Hi

Can i ask you when you went into hospital xmas eve with an irregular heartbeat, did you have any episodes of an irregularity or racing heartbeat before?

Reason i ask is because my M-I-L suffers with major anxiety and i mean major. She had been complaining of heart racing, dizziness for months at beg of last year. Anyway July last year f-i-l took her to hospital. It was a monday and they hooked her to a monitor. Trouble is she hates being there so that was doing nothing for her heart rate. Wouldnt let her husband leave he was there 8 till 9 but she was in a state when he went home.

This showed up as her having an irregular heartbeat and was told she needed a pacemaker fitted and they would do it while she was in hospital on the Wed. However, an emergency came in so they didnt do it and scheduled it for the Friday. But she got food poising that night (from hospital) and was so sick she begged to come home Thursday and go back as an outpatient to have it fitted.

When she went back they decided to do a monitor on her again and decided that actually she didnt need one. they put a monitor, told her to go home and come back in 7 days. It showed while she was in her own enviroment that actually her heart was ok. They said it would have done her more harm than good if they had fitted one.

Now were trying to convince her that they are panic/anxiety attacks but unfortunetly f-i-l has convinced her theres something wrong with her heart and we are going round in circles.

Anxiety is awful and these heart racing, dizziness, feeling weak are all part of them. Like lisa says your body goes into fight mode and the symptoms are scary to deal with so you start to panic more and it becomes a vicious circle.

However, not everything can be put down to anxiety and if your worried it is upto your gp to find something that can help you.

I bought my m-i-l some meditation cds, because her gp has told her she needs to do relaxtion and she says they are helping her. I've tried them i and i struggle to use them. If you can get into using them my m-i-l says they take her mind off her heart cos she's always worried that she's going to have another attack.

Hope you get some answers soon

Lorrraine
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Re: Please help. :) Having a nightmare.

Postby pitbull » Fri Aug 26, 2011 7:06 pm

Thanks people,
Yes i am VERY anxious, i have been more worried about motorneurone than anything else and have been torturing myself , though tryin hard to snap out of it. I seem to think every time i try to beleive i will be ok that i am only kidding myself..
I now have a neurologist appnt for the 6th Sept and he actually called me and after having a chat says that hes is positive that im ok.
He says the twitches are benign facilations and are nothing to worry about.. The crazy thing is that im not at all bothered about my heart..
On that subject Lorraine no i had no problems before the gp found that i had an irregular heartbeat on xmas eve. I had just felt a little tired is all.. I just wish i knew how to snap out of it and get off the hamsterwheel.
Regards
Gary
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Re: Please help. :) Having a nightmare.

Postby tonydin » Sat Aug 27, 2011 8:18 am

hii gary (pitbull) ?? well i to live in suffolk and guss what i have a ireguler heart beat , harmles im told , and a murmer as=lso harmless ,, i used to have awfull anxity nbut got through that with hypnotherepy ,, dx with fibro lat jan and now its just the pian im having to cope with as well as the other tingling jerking thigs ect, but its getting to me at the momment

my advice is stop worrying wher are you in suffolk do you come under the ipswich hospitial area

keep chin up
tony
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Re: Please help. :) Having a nightmare.

Postby murdayl » Sat Aug 27, 2011 9:54 am

hi gary,

I have a diagnosis of fibro after 3 years of tests and medication. The last consultant i saw asked me to have an echo scan because she thought she heard a murmur. I had one done and it showed a leaking mitral valve. Never had any problems with heart or breathing, just the occassional hard beat - come as a bit of a shock. but its fine, just have to have another scan in two years. But it does make you anxious, no matter what they say. I automatically now try and not do so much, like climbing lots of stairs or over-excercise, always aware of it now, even though i didnt know about it before xx
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Re: Please help. :) Having a nightmare.

Postby pitbull » Sat Aug 27, 2011 10:21 am

Hi Tony, I live near Sudbury mate and i come under West Suffolk Hospital however i am lucky enough to have a healthcare scheme with work so im using that at the moment. The reason i went to the docs is that i feel weak in my legs and the muscles feel very tense and i feel heady and stuffed up in my head.. After they reassured me that my heart is ok i then started looking for an explanation and for some stupid reason i googled symptoms of motorneurone and then decided that it was me!!! Not a winner... I feel better but i still have that niggling doubt and my initial symptoms are still here so maybe the neuro will be able to identify... I have loads of grip and strength but just feel weak and my upper and lower legs are aching on and off. I also get little twinges all over me which is very disconcerting..
Regards
Gary
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Re: Please help. :) Having a nightmare.

Postby FluppyPuffy » Sat Aug 27, 2011 11:35 am

As you've discovered, Gary, googling symptoms comes with it's own potential problems which then aggravate the one you were googling, and so on and so on :facepalm: :facepalm:

Hopefully the neuro bod will have some ideas for you :fingerscrossed: :fingerscrossed:
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Re: Please help. :) Having a nightmare.

Postby tonydin » Sat Aug 27, 2011 12:13 pm

hi garyy that was a daft thing to do wasent it??????????????? been there had t shirt ,, just let them do thiere job and work out whats wrong ,, dont listen to some of the mis dx horrer storys you hear , they do know what thire doing 99% of the time , if it turns out to be fibro althoug horrid at least it wont kill you :lol: :lol: :lol: :lol:

keep going and remember worrying will only make matters worse a lesson i wich i learnt years ago
talk agian later
tony
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