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The UKFibromyalgia Forums • View topic - IBS and FM or just my imagination...?



IBS and FM or just my imagination...?

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IBS and FM or just my imagination...?

Postby The Trumpinator » Mon Oct 10, 2011 8:44 pm

Following 8 years of suffering with anxiety and depression I have finally been diagnosed with IBS. However, my symptoms are 24/7 and I can’t help but thinking that my problems extend beyond IBS..I have terrible stomach cramps and so much wind its embarassing. The specialist has said that my exhaustion and dizzy spells are common with IBS, but I somehow feel there is more than meets the eye..

When I wake in the night, I have restless legs and thought it was because I was hot, but have realised that it is because of shooting pains in my back and legs. I constantly have lower and upper back ache and all the muscles in my upper body ache terribly. Sometimes it takes me 15 mins to get out of bed because my back feels locked and all day, every day all my upper body muscles ache..some days in the background, others so severe.

But the issue I cannot deal with is the exhaustion...I was led to believe that if IBS was to cause exhaustion it would come and go and not be permanent? Mine is permanent! Admittedly in degrees. I start the day with brain fog and exhaustion, it eases for about an hour or two mid morning, comes back with a vengeance and eases again for an hour or 2 in the afternoon to return in some style later! When I get the main attacks, I get dizzy, feel sick, have no energy at all and if I try to walk up an incline, you’d think it was a mountain! I cant keep my eyes open, my memory goes to rack and ruins and at the worst point if I don’t go to sleep I would be arrested for drunk and disorderly! :-)

I play tennis but have difficulties because of my symptoms..I might arrive and feel really good, but within mins of playing, I get brain fog, dizzy, unable to concentrate and feel as though I just need to lie down. But I force myself through it, as I do every day of my life. I have done an excellent job of hiding this from my work colleagues, but I cannot continue to live a lie..Unless I have a confirmed diagnosis of my illness I know I will not be believed and I also fear losing my job, because I have to sleep in my car during the working day or I would never get through it.

So I value your experiences and comments and wonder if IBS may well be my only problem or do you think I should pursue the FM with my Dr...? Kind Thanks, Steve
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Re: IBS and FM or just my imagination...?

Postby FluppyPuffy » Mon Oct 10, 2011 9:16 pm

:welcome: to the forum :wave: :wave:

You'll appreciate that we can't say if your symptoms are to due to FM, all we can do is comment based on what you've said and our own experiences as to whether what you're experiencing is anything like what we have come across with FM. The only person who can tell you what the reason behind your symptoms is, is a qualified medical bod :facepalm: :facepalm:

What you have described could be attributed to FM, and I experience quite a few of the things you've mentioned. However, things are not simple and straight forward when finding out if it is FM. There are several other conditions with similar symptoms to FM, and FM is also quite clever and can mimic other problems. I can speak from experience about it appearing to be another problem as when I first started with symptoms, the first ones were all balance, dizziness related which led to be being dx'd with Meniere's Disease (an inner ear problem) and being treated (unsuccessfully) for the wrong thing.

When trying to find out what it causing the symptoms, a lot of people start with keeping a diary of their symptoms. This can help show of there are any potential triggers, a pattern to things etc etc. You would then need to make an appt with your GP so you can explain what your various problems are. Taking the diary with you can help as you can let your GP have a read of it, as well as it helping you remember things you may want to ask/mention.

From there, it's usual for your GP to send you for what ever tests they feel could help give some answers. These tests tend to be ones that can show up the other potential causes of your symptoms, depending on the results there could be various options/possibilities. Your GP may refer you on to a specialist/consultant for further investigation and/or diagnosis. Or your GP may feel they can give you a diagnosis themselves, based on the info they have.

Whatever route is taken, it can take a while to get to the answer, I'm afraid :facepalm: :facepalm: A diagnosis of FM tends to be given only after all the possible other reasons have been fully investigated and ruled out.

I wish it was a more upbeat and definitive answer for you :facepalm: :facepalm: Unfortunately things are not straight forward when it comes to FM :shock: :shock: :yikes: :yikes:


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Re: IBS and FM or just my imagination...?

Postby denys » Mon Oct 10, 2011 9:19 pm

Hi Steve, I have moved your post into here as its your first and can be seen as an introduction so you may well get better replies. :welcome: to the forum to start, we couldn't comment on whether or not you have FM but with the symptoms you describe it can't hurt to persue it with your doc.

Print out some of the information of the site and take it with you the next time you go and a list of all your symptoms and :fingerscrossed: you can get some answers :fingerscrossed: :goodluck1:
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Re: IBS and FM or just my imagination...?

Postby The Trumpinator » Mon Oct 10, 2011 9:51 pm

Thank you Fluppy Puffy and Denys...

My road to this point has been long and winding and I purposely made my post as short as I can.

I started with depression and anxiety with bad palpatations and panic attacks..However since the age of 16 (now 39) I have always suffered with sore muscles and stomach problems..Over the last 8 years I have been to the drs with many of my symptoms, owing to unable to sleep, bad headaches, balance problems, for which I saw a speciliast at hospital and after a thorough examination said I was fine?? But yet I was dizzy and walking around as if I was drunk and my ears hurt along with temp loss (but not total) of hearing...
There always seems to be a vicious circle..Anxiety and depression makes me low, my stomach plays up and all my muscles then ache and I get even more light headed and dizzy..Take the anxiety and depression away and Im still left with dizziness and back ache.
I seem to pull muscles really easy and they take for ever to heal. My joints click and I have numbness in my forearms to my finger tips and thigh to my toes (but the dr didnt bat an eye lid at that??). I also suffer Raynards and I get cold far too easy...And strangley, at different times of day my aches can turn from what appears to be background ache, to incapacity, where they are locked for no apparent...
I guess I am looking for someone who also suffers IBS to tell me that my symptoms are just that...but my muscles ache so much I cant accept the IBS's specialist word on that!!
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Re: IBS and FM or just my imagination...?

Postby FluppyPuffy » Mon Oct 10, 2011 10:04 pm

IBS often comes along with FM, I started with that way way before anything FM related. altho I had aches and pains, the IBS related stuff didn't seem to have an effect on other things. The stomach spasms, pains, changes in bowel movements seem to be very separate to other things for me.

What you're describing could well be something else in addition to IBS, but you need to go back to your GP to get started out on finding out. That was why I suggested trying a symptom diary, as you can right everything down in it, and as you add to it, it may show up things like triggers, patterns, connections between situations, foods, places etc.


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Re: IBS and FM or just my imagination...?

Postby The Trumpinator » Mon Oct 10, 2011 10:45 pm

Thanks for the responses. I will do as you suggest with the diary...I have previously done a diary and could not personally find any links or triggers and stranegly enough I found I was constantly ill with EVERYTHING causing a trigger!! :shock:
However, this time I will take it to show the Dr..Cheers :-)
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Re: IBS and FM or just my imagination...?

Postby FluppyPuffy » Mon Oct 10, 2011 11:09 pm

It's something the vast majority of us have done at some point when trying to find out what it is that affects us :facepalm: :facepalm: Altho we may not be able to see any sort of sense or connection in it, it can help the GP see how it affects you, and they may pick something up that we might not have considered before.


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Re: IBS and FM or just my imagination...?

Postby denys » Tue Oct 11, 2011 1:26 am

I totally agree with Fluppy keeping a record will make it easier for the doc. If you have issues with your doc, it might be an idea to look for another more sympathetic one as with any chronic condition having a good doc is essential :fingerscrossed: :fingerscrossed: :fingerscrossed:
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Re: IBS and FM or just my imagination...?

Postby shazq » Tue Oct 11, 2011 2:37 pm

:welcome: to the forum Steve :wave:
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Re: IBS and FM or just my imagination...?

Postby chookie » Sun Oct 23, 2011 11:50 pm

Steve, depression and panic attacks and IBS shouldn't be ruled out as the culprit of your symptoms. These alone are very capable of producing nasty full on and debilitating pain. Go in with an open mind and visit your GP, tell them what you have told us and start from there. Don't rule things out at such an early stage, be positive and take one day at a time.

Good luck mate :)
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Re: IBS and FM or just my imagination...?

Postby The Trumpinator » Mon Oct 24, 2011 11:29 pm

Firstly, many thanks to everyone for their replies.
I have today returned back to my GP and linked with a report sent from my Chiropractor he has confirmed a diagnosis of Fibromyalgia..
I know some of you had the impression that I was maybe quick to assume FMS, but I have been visiting the GP over many years and the tests, including bloods and specialist referrals that have been carried out to narrow down other possible issues, have reached the bottom of the list of all possible tests they can suggest doing..Every GP I have seen has been at a loss as to how to diagnose me and admittedly I self diagnosed myself prior to posting and seeing the Dr. It appears that the only concern the Dr had was the lack of sleep and the tired/dizziness and 'foggy headed' I get on a daily basis. I dont think he is too familiar with the chronic exhaustion that the FMS cause and couldnt quite grasp that it was the pain and frequent urinating visits I make during the night that wakes me. I have opted not to receive any medication for my symptoms for the next 3 weeks as I want to see what effects the chiropractor will have on me.
Already I have gained some noticeable flexibility back but it will be interesting to see if they can diminish the pain..Treatment is virtually unbearable, as I have intense pain in all 18 trigger points, but I am prepared to see how this turns out...Has anyone else had any 'good' experience using chiropractors..?
In three weeks we have agreed that we will discuss meds and he will refer me to a specialist who he knows to be particularly interested in FM of whom he hopes will help decide how my sleeping/exhaustion, IBS and FM are linked and how best to manage it...
The only concern I have is that the meds he is talking about is a sedative and is to make me sleep...I am a little concerned by this as he said they were quite powerful. I told him my concern was the issue of me being tired in the day and the two colliding with each other!?..
Does any one have any experience or suggestions on sedative medication and what I should be asking for doing?
I would appreciate your comments on this issue...Many thanks. T
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Re: IBS and FM or just my imagination...?

Postby FluppyPuffy » Tue Oct 25, 2011 10:34 am

There is a whole host of things to try in various combinations to try and manage FM. This linky will tell you about some of them Talk thru things with your GP and see what may be suitable for you. One of the first things often tried is something like amitriptyline, and older anti-d that can help with pain and sleep. If you're wary about being given something that could knock you out, something like this might be worth considering first.


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Re: IBS and FM or just my imagination...?

Postby shazq » Tue Oct 25, 2011 1:04 pm

Hi
Glad you got the answers .

Did you get the name of the sedative medication?

The affect people differently so they will be worth trying. :goodluck1:
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Re: IBS and FM or just my imagination...?

Postby clarasmummy » Thu Oct 27, 2011 9:45 pm

Hi Steve

For wind and IBS, avoiding carbohydrates makes a big difference :-)

IBS is one of the symptoms of FMS though not always due to FMS of course, but looking at your symptoms, if I had to put bets, I would bet you have FMS ...

Take care

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