So frustrated

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So frustrated

Postby Duke2010 » Wed Dec 07, 2011 12:13 am

Hi all,

This is my first posting on here.I am currently being monitored for fibro, however, after visit to gp yesterday, he is doubting his first thought of it being fibro.

When I think back I have probably had symptoms for 2 years and went to see my gp after thinking it was more than just being tired all the time and everywhere hurting. On first visit, gp mentioned fibro but wanted to boost my b12 as I have a deficiancy that I take tablets for, he also gave me gabapentin.

On second visit he gave another b12 injection and doubled the doesage of gabapentin and also sent me for blood test. On third visit yesterday, gp said bloods ok and ruled out thyroid issues ect and wants to ween me off gabapentin, he also gave me another b12 injection, even though my levels are ok. I asked where we were going with this long term and did he still think it was possibly fibro, he ummed and arrred and thought it could more be the b12, although mynlevels have been ok for 3 years.

He has said if no better when i go back in jan he will refer me to be looked at by someone else. I believe he wobbled on the fibro situation just because I said I had had a couple of good days. I started keeping a pain diary but that went out of the window after a couple of weeks so I have started doing it again.

Then today felt really bad after a bad night, pain mainly in my ankles today with shooting and burning pains up my shins and calves when walking. My symptoms so far have been all over body pain, especially in joints i.e shoulders, hips, knees and ankles causing me to walk like a 90 yr old, pins and needles and shooting pains down both arms, vagueness or fibro fog, bad sleep patterns, tremendous pain on waking and first getting out of bed, hair falling out, suffering really bad with pain in hands and hands going in to spasms and really bad shaking of hands. These are all what i believe to be symptoms of fibro and not that I have ever had any probs with my gp before, I cannot believe that he would put all this down to my b12.

My family history is that my sister has fibro, hypermobility and epilepsy, mum has thyroid issues and osteoarthritus and aunt has fibro. Sorry to waffle on, but would like other opinions on whether these sound similar to anyone else's symptoms.

Thanks for taking time to read

Sarah :-D
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Re: So frustrated

Postby FluppyPuffy » Wed Dec 07, 2011 1:13 am

:welcome: to the forum Sarah :wave:

I've moved your post into here with it being your first one, so hopefully you should get more hits to your intro :fingerscrossed: :fingerscrossed: I've also split things up into small, clear paragraphs as a lot of us on here struggle with reading large blocks of txt :facepalm: :facepalm:

You'll appreciate that we can't say one way or the other if you have FM or not, you need a dr/specialist I'm afraid :facepalm: All we can do is say whether we share any of the symptoms you have.

There seems to be quite a buzz about b12 deficiencies, similarities to FM symptoms and things. From the little I have read about it tho, opinion still seems to be divided as to whether increasing levels makes a difference to symptoms tho.

A lot of what you have described could be due to FM, and I share a lot of the same symptoms with you. With your family history as well, it does seem to add more weight to the possibility of FM. Just because you have had a couple of good days, that shouldn't be enough to make your GP wobble about what it could be. A condition like FM isn't constant, it fluctuates day-by-day, even hour-by-hour, and there are FMers who do get pretty decent days as well as the rubbish ones.

Carry on with your pain diary until you go back to see your GP in January, and take it with you when you go for your appt. It will give a good idea of how things are for you, show any potential triggers/patterns in what you experience etc etc. If your GP is still wobbling about the cause, then ask for a referral to a rheumatologist as these are the people who usually see potential FM cases.

In the mean time, have a look thru the posts and things on here as they are full of info and suggestions you may find helpful. Anything you want to know, just ask away and we'll try to help you with it :wave: :wave:
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Re: So frustrated

Postby shazq » Wed Dec 07, 2011 2:03 pm

:welcome: to the forum Sarah.

Hope you get some answers soon. :hugs: :wave:
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Re: So frustrated

Postby denys » Wed Dec 07, 2011 4:39 pm

Hi Sarah :welcome: to the forum as Flup has said we cannot say whether you have FM or not, I have pernicious anemia and have to have B12 injections every 12 weeks, it makes no difference to my pain levels at all so :dunno:

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Re: So frustrated

Postby animalhouse » Mon Dec 12, 2011 11:20 am

hi, hope you are well i would forgot all the whys and wherefores and just say how you feel, what hurts, fatigue etc.

as how you are feeling can be lost in the psycho analysis if you are not careful.

i developed fibro nearly 2 years ago after car accident. was in constant pain since so was referred to rheumy then diagnosed.

have had meds increased since for pain and prescribed dosulepin to help with sleeping.

i have had soem benefits from meds and helps to dumb the pain but it gets alot worse when i do anything nevermind too much so i do very little now adays.

take care and hope you get some help soon. :-)
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Re: So frustrated

Postby ribbons » Mon Dec 12, 2011 10:45 pm

hello and welcome x
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Re: So frustrated

Postby Duke2010 » Wed Dec 14, 2011 10:02 pm

Thanks all for your replies. It's nice knowing there are people who understand. As for any more good days, yeah right lol! Think I spoke too soon. Will wish you all a fab xmas as don't know when I might get back on here nx, the joys of working in retail as xmas. xx :mrgreen:
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Re: So frustrated

Postby buxbunny » Thu Dec 15, 2011 12:33 am

Sorry to hear about your problems. I think its fibro but like others said not doctor to say for sure. I just know i shared your symptons and was told vitimin d deficiency and had take D3 tablets rest my life. Fair to say its not that as i'm still in pain if anything its worse. I think vice versa i the a defeciancy cause i dont go out due to FM.
I find keep dairy hard due to fog and trouble writing.
Best of luck snd hope get sorted fast.
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