[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4780: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4782: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4783: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4784: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
The UKFibromyalgia Forums • View topic - 22 and going crazy



22 and going crazy

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

22 and going crazy

Postby buxbunny » Fri Dec 09, 2011 11:48 pm

I have been pacing back forth on forum and feel finally time to post something.
I'm unsure If i should type a little bit or spew my heart out but I'll try keep it short and simple.

My Name Paul and I'm 22 uni student. I believe I've had fibromyalgia since I was 12 but i had a kind of "tiger mum" and she would send me to school even when i was ill but it wasn't as crippling as it has become now. I do not have an official diagnosis but i am at my gps every other day trying hard to get one. I keep coming back and reading people post but I bit bullet signed up and posted. I have a daughter who is 1 and she means the world to me and main reason I pursued getting a diagnosis. My partner been most supportive but understandably at 23 having to take care of another person causes a lot of tension. But on plus note were engaged and its nice to know someone you can count on although you entire world is falling apart.
I feel I need interact people who understand Firbromyalgia as I always feel suicidal unfortunately as I've been through thesame things it would seem as others in terms of GPs who don't understand (I've seen about 8 past 2 years and changed surgery and looking for another again.) and people i.e friend family who think it's all in your head. I get comments like "you need try harder" and "too lazy" and "go to church".
Before I knew Firbro existed I started believing them although I was struggling with home,work and education. I think I'm quite lucky since I'm in uni yet I haven't completed college even though I attempted for 4 years and that I'm completely struggling with yet It my last life line.
I don't leave my house unless I absolutely have to so i no longer socialise much which i think is great cause 90% time i feel anti social.
I only recently saw symptoms of Firbromylgia after it was suggested by my uni's councillor and saw that it all fit. Even symptoms like TMj which i thought was unrelated.
I've noticed most people on this forum have had it longer then I've been alive and are mostly female but hope you can still understand my dilemma.
Also last life line at Uni and the councillor says i need a diagnosis so i can get help from them to complete my course. I can't work due to Fibro and once Uni is gone i think i'll just shut down and wither away.

Apologies in advance for rumbling on and i hope i didn't confuse anyone with my poor spelling and grammar but I've tried my hardest.

I thought list symptoms I'm facing just to put it into prospective:
Widespread pain always
IBS
lack of sleep/unrefreshed and unable to sleep
Tired all the time and randomly fall a sleep
presure points come and go but seem to vanish at GP (i used to think i had high pain tolerance but slightest touches can cause pain now)
Deepression
Morning stiffness (make me miss uni ALOT)
Can't stand long after few mins pain kick in
Can't walk long (i will drive a 2 min walk to avoid pain)
Firbro-Fog does not mix with Uni. (once was stuck on 5x4 for an hour so just went home in tears)
Forgetfulness (People think I do it on purpose)
Tmj (worse pain in the world wouldn't wish it on anyone)
Mood swings (Angry one min / fine / controllable sobbing next)

This fraction my symptons dont want bore you with list plus Fog only allowming think of these.
Oh and Amitriptyline and co codamol have no effect on me. Maybe they gave them for placebo effect.
Someday, we'll look back on this, laugh nervously and change the subject.
User avatar
buxbunny
UKFM Member
 
Posts: 81
Joined: Fri Dec 09, 2011 7:27 pm
Location: Croydon

Re: 22 and going crazy

Postby loubie » Sat Dec 10, 2011 12:24 am

hi paul
welcome to the forum
well done for taking the plunge and joining us, i know that can be very hard to do :yikes:
it was for me to.
i so so feel for you younger ones it makes me :(

you are not going crazy :crazy: you are ill and you need to find the right GP to understand
you.
having said that, it can be very hard as you are finding out. don't give up, you will find one
and its amazing how much difference that will make to you
just having someone believe you are ill and in pain.

good to have you with us :-D
loubie xx

As a Public Moderator of this forum my opinions/views expressed are personal and are
no more valid than those of other members and not necessarily those of
UKFibromyalgia.
User avatar
loubie
UKFM Regular
 
Posts: 2491
Joined: Mon Jun 08, 2009 8:57 pm
Location: staffs

Re: 22 and going crazy

Postby buxbunny » Sat Dec 10, 2011 12:50 am

Thank you your words are comforting and glad i did it now.

It's not easy having a prelife crisis. Looking 20 and feeling 90.

Life alone is pretty tough + economic state + Firbro = K.o
Someday, we'll look back on this, laugh nervously and change the subject.
User avatar
buxbunny
UKFM Member
 
Posts: 81
Joined: Fri Dec 09, 2011 7:27 pm
Location: Croydon

Re: 22 and going crazy

Postby FluppyPuffy » Sat Dec 10, 2011 1:07 am

:welcome: to the forum Paul :wave: :wave:

I think most of us understand your dilemma, having been thru similar things ourselves. Hope you don't feel too unnerved posting on here, we are quite nice and friendly and try to help and support each other with what comes along with a condition like FM.

I can appreciate how difficult things can be for you and your family, knowing what it has been like for mine. It is difficult for someone to take care of another person, regardless of age. My son has grown up only knowing me with FM, he's a teenager now and doesn't seem to be turning out too bad, so there's a good chance, even tho things may be fraught and upsetting at times, that your daughter will grow into a happy and confident girl, even tho her daddy may not have been able to do all the things with her that her friends fathers may have done :hugs: :hugs: :hugs: :hugs:

Have you had a look/Google to see if there is a support group in your area, either for FM or CFS/ME?? If not, it might be worth a go, and if there is something, trying to get in touch with them to see if they have any recommendations about helpful GPs, or even ones to avoid. I know it will probably mean another transfer to the surgery, but if it could mean you find a supportive GP, it would be worth going thru it, hopefully for the last time :fingerscrossed: :fingerscrossed: :fingerscrossed:

This linky is about the meds used to try and manage FM I know you don't have a dx yet, but the meds mentioned can be used to try and help with the various symptoms you have listed. Have a look at what there is, maybe go armed with some info from the site as your GP won't be able to doubt it's credibility with it being from the NHS, also you could explain how/why you think it could be FM, then see what is said. Maybe a calmly assertive approach with you querying possible causes could start things getting you some answers :fingerscrossed: :fingerscrossed:


If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: 22 and going crazy

Postby buxbunny » Sat Dec 10, 2011 3:01 am

Thank you very much i feel welcomed.

I did ask my GP about Support groups but he had no idea what i was on about. I will try to find one when FM permits.

One main reason I haven't searched from now is I've been reclusive about it. I have not spoken to anyone in-depth about it since being made to feel crazy by GPs till my councillor that is. I used to pretend I wasn't in when people came round knocked on door cause feel so anti social. I feel bit less crazy so I will give it ago and I think I should feel more social with people of same mind set and if it helps find a good GP then I'm up for it.

Also I have a lot mobility issues and with this winter I might as well be butt naked cause the cold finds it way into my core sort of paralysing effect.

I did want to go private but to be honest i don't have money and they still ask for GP referrals anyway.

I think i will have a book for GP to read with the amount of material i am printing out i will take it all in on my next appointment.

Thank you very much I really appreciate the support and sharing of knowledge.
Someday, we'll look back on this, laugh nervously and change the subject.
User avatar
buxbunny
UKFM Member
 
Posts: 81
Joined: Fri Dec 09, 2011 7:27 pm
Location: Croydon

Re: 22 and going crazy

Postby shazq » Sat Dec 10, 2011 12:17 pm

:welcome: to the forum :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
shazq
UKFM Veteran
 
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.

Re: 22 and going crazy

Postby Ldyalb » Sat Dec 10, 2011 5:39 pm

Glad you posted, it really helps to know you're not alone.

I know what you mean when you say 'look 20, feel 90'. I got refused paracetamol earlier this year about 2 weeks before I turned 23 on the basis I looked 'under 16' (I was wearing my Uni hoody and buying them in school hours! and yes - I'm small :-) ). I felt like screaming that I actually feel about 80, was in a lot of pain and just give me the :swear1: drugs!! (I'd just lost my provisional licence so couldn't prove I was 22, scrambling for ID and saying 'oh I lost my driving licence' probably didn't help my cause lol).

Print off some info on Fibro when you see your GP and ask them to send you to a specialist, you want a Rheumatologist ideally. My GP tried to refuse (I was your age) so I asked her how many 22 year old she'd seen that week who could barely walk. I got my referral. Don't be afraid to pester, if they don't know how to help you/what's wrong then it's time to send you to someone who can diagnose you and help you.

Good luck :-)
'Think of all the beauty still left around you and be happy' - Anne Frank

TMJ, RLS, HMS, Fibro, Dyspraxia - ASD + Dyscalculia overlap, Eczema + Rosacea + suspected Psoriatic Arthritis.

Being an Adult is nothing like it said in the brochure...!
User avatar
Ldyalb
UKFM Regular
 
Posts: 1667
Joined: Sat Nov 13, 2010 6:46 pm
Location: Lincolnshire

Re: 22 and going crazy

Postby buxbunny » Sun Dec 11, 2011 12:31 am

Thanks for all your support.

Fingers crossed for my rheumatologist appointment in two weeks. I'm just preparing all my evidence in advance.
But to be honest i'm better equipped to deal with the nasty comments and ignorance as it's not just me.
Someday, we'll look back on this, laugh nervously and change the subject.
User avatar
buxbunny
UKFM Member
 
Posts: 81
Joined: Fri Dec 09, 2011 7:27 pm
Location: Croydon

Re: 22 and going crazy

Postby animalhouse » Mon Dec 12, 2011 10:42 am

hi paul,

fibro makes you feel so isolated and reclusive, i know what you mean.

i haven't even visited oh family members for past year, i didn't see 2nd child and only went this summer when they had the 3rd.

the only place i go is drs or supermarket in next town where i feel anonymous.

rfecently saw old friends/colleagues at daughters parents evening and felt so :oops: :oops: :oops:

be strong and there are always people on here to talk to.

:-) :-)
User avatar
animalhouse
UKFM Regular
 
Posts: 1170
Joined: Fri Oct 08, 2010 8:42 am
Location: Derbyshire


Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 4 guests