Hello, and a bit about me

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Hello, and a bit about me

Postby Scout108 » Wed Jan 11, 2012 12:56 pm

Hello,
I have read quite a few posts on here. Been tyring to figure out what's wrong with me for the last year, sigh. Joined up to other forums, e.g. Lupus, RA, but finally seem to be reading lots of things that make sense. Have made another appointment to see my GP, having stayed clear for a few months feeling like a flipping hyperchondriac. Last time I went she told me it looks like I have IBS.
Here's a bunch of other symptoms I get:
Soreneck, with swollen glands
Had Costochondritis for a whole year
burning feeling on skin around elbow.
Sore elbow joints when carrying shopping bags
a sore shoulder just from carrying my handbag
sore shoulders and neck (both sides) sometimes feels like a trapped nerve
last year I got a cold wet feeling on my legs, but that has stoppped
The last couple of weeks have been getting tingling in my fingers (have had same in toes in past)
aching upper calves at night
used body pillow at night for years, and have to put duvet under my feetso they dont hurt at night - even though I have a memory foam mattress!
Was diagnosed 3 years ago with interstitial cystitis, and thanks to that and the IBS
I really cant enjoy alcohol at all any more (very sad!)

Whole nightmare started a year ago when I had a cough virus which the specialist says attacked my liver, had abnormal liver bloods and a night of extreme pain(got the Costocondritis around the same time, docs reckon from all the coughing), i continued getting symptoms of liver pain for months (Dr said he didnt think was liver) and had 3 clear ultrasound scans, and normal bloods, finally started takings Zantac to see if it would help, it did a bit. Then started taking Glocosamine and condroitin for Costo, and still taking Zantac, and no more liver pain, so it's quite possible that its was skeletal pain. Just don't know.

I should also mention that the last 2 years of my life have been ultra stressful. Emigrated back to UK after many years abroad. Bought house, had a nightmare teenager, and just 3 weeks before this all began last year, had probably the work week of my life when my mother took suddenly ill, was in intensive care, and ended up having emergency brain surgery for a tumour, which we were told 2 days later was terminal. She is still with us, but sadly we have been told she only has a couple weeks at the most. I just read this back and it sounds like I live a life full of drama, but I dont usually, I am happily married, and lived a very normal life for many years before the last couple!

Wow that was a long post, thank you if you reached the end and sorry that it is so long. getting all these symptoms down in writing felt good. I know I cant get a diagnosis here, but a lot of these symptoms are ones that I have read on other peoples posts, and would be genuinely grateful for you opinions on them.
Thank you for reading :)
Scout108
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Re: Hello, and a bit about me

Postby FluppyPuffy » Wed Jan 11, 2012 1:25 pm

:welcome: to the forum scout :wave: :wave:

Sorry to hear what you've been going thru over the last year, esp with your mum :grouphug: :grouphug: It's awful having to see someone who you hold so close and dear go thru such an awful thing :hugs: :hugs:

Looking at what you've said about symptoms and things, a lot of them could be due to FM. Typically tho, it's not that easy :facepalm: :facepalm: There are several other conditions with overlapping symptoms as well, so you've done the right thing in arranging to go and see your GP again.

If you take some info with you to explain why you think you could FM and talk to your GP, hopefully that will put things in motion for you finding out the reason for your pain and things. Be prepared for it to take a while as tests and things may need doing to make sure all other possibilities have been ruled out and/or your GP may feel you need referring to a rheumatologist for a more expert opinion. Hopefully tho, you'll get a name for your particular problems :fingerscrossed: :fingerscrossed:

In the mean time, have a look thru the site as it is full of advice and info that you may find helpful in managing your symptoms and things. We're quite nice and friendly on here, with only a little bit of :crazy: :crazy: :crazy: so anything you want to know about, ask away and we'll try to help you with it :wave: :wave: :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Hello, and a bit about me

Postby denys » Wed Jan 11, 2012 1:41 pm

Hi Scout and :welcome: to the forum you will understand that we cannot say whether or not you have FM as we are not trained health professionals go back to your GP and if you think it would be helpful, print of some of the info from here or the NHS website so that you can explain why you think you may be suffering from it and hopefully they can start the process of testing that may lead to a diagnosis. Sorry to hear about your mother its an awful thing to be facing. Stress loves FM and so if you do have it you are bound to feel worse during this horribly stressful and upsetting time.
Denys

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Re: Hello, and a bit about me

Postby Scout108 » Wed Jan 11, 2012 5:01 pm

Thank you Denys and Fluppy for the advice and sympathy. The worst part with my Mum is watching her suffer. I am ready to hear something from my GP, not sure if it is a case of be careful what you wish for, as I really could do without any more horribleness! Im going t
o take in a list of the symptoms I wrote down, because there are too many to remember. The receptionist asked what it this appointment for, I said I'm really hoping that the Doctor can tell me that! Thanks Again,
Anna
Scout108
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Re: Hello, and a bit about me

Postby shazq » Wed Jan 11, 2012 5:56 pm

:welcome: to the forum scout :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: Hello, and a bit about me

Postby lolabolla » Wed Jan 11, 2012 6:21 pm

:welcome: :hugs: :hugs: :hugs: :hugs:

lola x
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Re: Hello, and a bit about me

Postby KTN86 » Wed Jan 11, 2012 9:43 pm

:welcome: :-D
Kate x
Well this is a magical trip to the wrong side of the wardrobe.....
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Re: Hello, and a bit about me

Postby Scout108 » Sat Jan 14, 2012 11:24 am

So the doc gave me a low dose of amytriptaline (10mg) and said she doesn't want to investigate just yet (cause of the stress of what is happening with my mum) seemed open to the idea that it could be fibromyalgia, after looking it up and comparing my symptoms. It was quite a good visit, she said that investigating now while I'm already under masses of pressure would add more stress. She has a point!
Amytriptaline seems to agree with so far, and has certainly helped me to sleep, which I need! Also it can prevent migraines, which I also suffer from, so guess it's just wait and see :)
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Re: Hello, and a bit about me

Postby FluppyPuffy » Sat Jan 14, 2012 12:39 pm

It sounds like it was quite a positive appt for you Scout :clap: :clap: :clap: It's understandable why your GP wants to wait before doing investigations.

Hope the amitriptyline keeps helping you. If there's anything you want to know about, symptom wise or how you're feeling, just ask as it isn't usually too long before someone comes along with. Even if we don't have an answer, a few :grouphug: :grouphug: :grouphug: or bars of [chocolate] [chocolate] [chocolate] [chocolate] can make a difference :wave: :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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