Hello and help

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Hello and help

Postby Mands1972 » Fri Jan 13, 2012 11:09 am

Hi there x

My name is Mands and I will be 40 in about 6 weeks time. I have 4 boys nearly 14, 12, 10 and nearly 7.

I have been feeling aching in the tops of my arms now for about 4 months - sharp pain when using arms and also aching, on top of this feel low and I am just so tired. I am going to bed every night at 8pm but still feel ever so tired in the morning. I occasionally also have pains - a bit like sciatica in my bum and pains in the tops of my hips.

I went to the Dr's (I'm never at the Dr's - I tend to stay away as much as I can, LOL) as I was having these pains and at first the Dr suggested that it could be PMR. Had a blood test and this came back normal. I went back to see my Dr as the pains were still there and this is when she felt that it could be down to the stress of my youngest son Oliver having had a tumour removed back in March 2010 and put me on Fluoxitine for depression. She also carried out another blood test to check on my thyroid and anemia levels, this came back normal.

I went back to see my Dr as I was still suffering and was feeling sick (almost like a hangover) every morning. Told me this was the Fluoxitine and not to worry but they would do another blood test (the last one they could do) to check my muscle enzymes.

I had the blood test done, was still feeling sick, arms ached, with the added sciatic pains and total tiredness and the test came back borderline ... was told this could have been down to me being ill with an infection at the time of the blood test. I was totally fine! She then recommended physiotherapy which I said I was not sure about - so asked for some Ibruprofen - which doesn't really work and then was told to come back in a few months to have another blood muscle enzyme test - not been back yet.

I totally feel I am being fobbed off by my Dr's (seen a few gp's at the surgery) as all they will say is it is depression down to my son's tumour and that my body has just given up.

I stumbled upon your website last night - and thought this sounded like some of my symptons and thought that someone would be able to help me. If this does not sound like Fibromyalgia then I will go away LOL - but I am at a loose end and just feel so drained.

Love Mands xxx
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Re: Hello and help

Postby sharon28 » Fri Jan 13, 2012 11:48 am

Hi there Mands,

I was diagnosed at the end of October last year by a Rhumatologist as my gp was stumped by my symptoms. Maybe you could asked to be referred to a Rhumatologist or perhaps suggest you suspect you may have Fibromyalgia. I too had normal blood test results.
Good luck,

Sharon xx :cup1:
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Re: Hello and help

Postby FluppyPuffy » Fri Jan 13, 2012 11:49 am

:welcome: to the forum Mands :wave: :wave:

First of all Mands, when you do eventually find out the reason for your symptoms, you won't have to go away from here, you can stick around and join in with the :crazy: :crazy: :crazy: if you want to. We try to help and support each other on here, whatever comes along :hugs: :hugs:

Secondly, you'll appreciate that we can't say if you have FM or not as we aren't medically qualified. For that, you need a GP or specialist to give you a diagnosis.

A lot of what you have described could be due to FM, but typically things aren't that straight forward :facepalm: :facepalm: There are other conditions that share a lot of the same symptoms that FM has, plus FM can mimic other problems/illnesses, so all these possibilities need to be investigated and ruled out (which can take time) before FM is diagnosed.

To find out if FM is the reason for your problems, as your GPs don't seem to have an answer for you, you could ask for a referral to a rheumatologist for further investigation and hopefully an answer. You'll need another visit to see you GP to start things off, so take some info with you about why you think FM could be the problem. If you have a look at this linky http://www.nhs.uk/conditions/fibromyalgia/pages/introduction.aspx and explain that you've found some info out from the NHS Choices site, hopefully they will send you for any other tests they may think necessary, as well as refer you to the rheumatologist. Or, they may feel confident enough to give you a diagnosis themselves, which seems to be happening in quite a few cases now. You could also ask about some more suitable meds as the linky has info about the different types used to try and manage a condition like FM.

In the meantime, have a look around the site as there is a lot of info and advice that you may find helpful while you're waiting to find out about things.

I'm sorry to hear what your son had to go thru, I hope he's recovered from things as well as possible :hugs: :hugs: That stressful time may be linked to the start of your symptoms as in a lot of cases, conditions like FM seem to slip in during the times when people under extreme pressure, or have had some sort of trauma (emotional and physical.) I can't say if that was definitely the case as so much is still unknown about these things, but as you look around the forum, you'll come across lots of similar ideas about what triggers things off.

I think it's time to leave you in peace for a bit after jumping out on you with such an epic reply :facepalm: :facepalm: Anything you want to know about, just ask and we'll see how we can help you with it :crazy: :crazy: :crazy: :crazy: :crazy:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Hello and help

Postby denys » Fri Jan 13, 2012 1:02 pm

Hi Mand and :welcome: to the forum, cant add much more than Flup has already said but wanted to say hi :wave:
Denys

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Re: Hello and help

Postby shazq » Fri Jan 13, 2012 1:54 pm

:welcome: to the forum Mand :wave:

Sorry you dont have any answers yet but keep pushing your GP until you get some. :goodluck1:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: Hello and help

Postby Mands1972 » Fri Jan 13, 2012 5:25 pm

sharon28 wrote:Hi there Mands,

I was diagnosed at the end of October last year by a Rhumatologist as my gp was stumped by my symptoms. Maybe you could asked to be referred to a Rhumatologist or perhaps suggest you suspect you may have Fibromyalgia. I too had normal blood test results.
Good luck,

Sharon xx :cup1:


Hi there Sharon

Thank you so much for replying to my post x and thank you - I am so fed up I am going to go back and see my GP on Monday and tell them how I feel and ask to be referred x

Love Mands xxx
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Re: Hello and help

Postby Mands1972 » Fri Jan 13, 2012 5:28 pm

FluppyPuffy wrote::welcome: to the forum Mands :wave: :wave:

First of all Mands, when you do eventually find out the reason for your symptoms, you won't have to go away from here, you can stick around and join in with the :crazy: :crazy: :crazy: if you want to. We try to help and support each other on here, whatever comes along :hugs: :hugs:

Secondly, you'll appreciate that we can't say if you have FM or not as we aren't medically qualified. For that, you need a GP or specialist to give you a diagnosis.

A lot of what you have described could be due to FM, but typically things aren't that straight forward :facepalm: :facepalm: There are other conditions that share a lot of the same symptoms that FM has, plus FM can mimic other problems/illnesses, so all these possibilities need to be investigated and ruled out (which can take time) before FM is diagnosed.

To find out if FM is the reason for your problems, as your GPs don't seem to have an answer for you, you could ask for a referral to a rheumatologist for further investigation and hopefully an answer. You'll need another visit to see you GP to start things off, so take some info with you about why you think FM could be the problem. If you have a look at this linky http://www.nhs.uk/conditions/fibromyalgia/pages/introduction.aspx and explain that you've found some info out from the NHS Choices site, hopefully they will send you for any other tests they may think necessary, as well as refer you to the rheumatologist. Or, they may feel confident enough to give you a diagnosis themselves, which seems to be happening in quite a few cases now. You could also ask about some more suitable meds as the linky has info about the different types used to try and manage a condition like FM.

In the meantime, have a look around the site as there is a lot of info and advice that you may find helpful while you're waiting to find out about things.

I'm sorry to hear what your son had to go thru, I hope he's recovered from things as well as possible :hugs: :hugs: That stressful time may be linked to the start of your symptoms as in a lot of cases, conditions like FM seem to slip in during the times when people under extreme pressure, or have had some sort of trauma (emotional and physical.) I can't say if that was definitely the case as so much is still unknown about these things, but as you look around the forum, you'll come across lots of similar ideas about what triggers things off.

I think it's time to leave you in peace for a bit after jumping out on you with such an epic reply :facepalm: :facepalm: Anything you want to know about, just ask and we'll see how we can help you with it :crazy: :crazy: :crazy: :crazy: :crazy:


Thank you so very much for the link - I will have a look at it now, and thank you so much for the warm welcome.

Oliver is a lot better now - thank you - was a very worrying time - and that was what I read about the possible start of the symptoms corresponding with FM. As I say above I am going to see my GP again on Monday.

Love Mands xxx
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Re: Hello and help

Postby Mands1972 » Fri Jan 13, 2012 5:31 pm

Also thank you to Shazq and Denys for the warm welcome too x

I really am hoping that something can help me soon, even if it appears that it isn't FM - I would just like to know what could be causing my symptoms. Even more so as I am in bed so early and hardly get a chance to see my poor hubby :(

Love Mands xxx
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Re: Hello and help

Postby FluppyPuffy » Fri Jan 13, 2012 5:54 pm

Glad to hear Oliver is a lot better now :blowkiss: :blowkiss: I can't even begin to imagine what it was like for you and your family having to go thru such a worrying time :hugs: :hugs:

Hopefully from your next appt, things will start to improve for you :fingerscrossed: :fingerscrossed:

The linky also has info about various meds used to try and manage the various symptoms. If you have a look at them, then you could ask your GP which of them might be suitable for you to try :fingerscrossed: :fingerscrossed:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Hello and help

Postby Mands1972 » Sat Jan 14, 2012 11:46 am

FluppyPuffy wrote:Glad to hear Oliver is a lot better now :blowkiss: :blowkiss: I can't even begin to imagine what it was like for you and your family having to go thru such a worrying time :hugs: :hugs:

Hopefully from your next appt, things will start to improve for you :fingerscrossed: :fingerscrossed:

The linky also has info about various meds used to try and manage the various symptoms. If you have a look at them, then you could ask your GP which of them might be suitable for you to try :fingerscrossed: :fingerscrossed:


Thank you so much x

I really hope so - I've had a horrendous night - aching from head to foot, so tired and no energy at all ... woke up to pins and needles and between my thumb and finger it hurts - think I need putting in a bag and shaking up, LOL.

I spoke to my dad about your site yesterday, and he advised me to print off the info you sent me on that link and ask his advice. Thanks again.

Love Mands xxx
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Re: Hello and help

Postby FluppyPuffy » Sat Jan 14, 2012 12:18 pm

Hopefully this will be the start of you finding the reason for your symptoms Mands :fingerscrossed: :fingerscrossed: :fingerscrossed:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Hello and help

Postby Mands1972 » Mon Jan 16, 2012 5:09 pm

FluppyPuffy wrote:Hopefully this will be the start of you finding the reason for your symptoms Mands :fingerscrossed: :fingerscrossed: :fingerscrossed:


:fingerscrossed: I hope so too x

I have done and update on the where to say hello section ... I have to go for another blood test on Friday and then need to speak with another Dr when the results come back and then hopefully referred to a rhumatologist (sp?)

Love Mands xxx
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