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The UKFibromyalgia Forums • View topic - new and need help



new and need help

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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new and need help

Postby Vintagepink » Tue Feb 28, 2012 8:37 pm

before you got diagnosed did you go down the hyperventilating route?
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Re: new and need help

Postby FluppyPuffy » Tue Feb 28, 2012 8:46 pm



If your dog doesn't like someone, then you probably shouldn't either
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Re: new and need help

Postby Vintagepink » Tue Feb 28, 2012 8:51 pm

I'm sure i put this in dr section. ooh eerrr

i think i got fibromyalgia. i went to see my doctor and he said he thinks its hyperventilating. but i swear if this pain is hyperventilating give me a brown bag

i was just wondering if anyone was diagnosed with many other diagnosed was hyperventilating. before officially getting diagnosed wi
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help any tips will be grateful

Postby Vintagepink » Tue Feb 28, 2012 8:58 pm

i am at the beginning of trying to get fibro diagnosed. i tried today with no result. how did you go about it. i am scared and at the end of my tether as i have been living with this for since i can remember. oh dear god the pain. i am on tramadol.
i don't think i can face being patronised, by doctors thinking its all in the head. this seriously is not.

sorry for ranting.
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Re: new and need help

Postby FluppyPuffy » Tue Feb 28, 2012 9:06 pm

It was initially in the Drs and health Services part of the forum, with it being your first post I moved it into here as the intro topics tend to get a better response. I had explained what I'd done in my post, but for some reason only part of what I posted has come up :-? :-? :-? :-? We've been having Gremlins messing around with things today, looks like I'm their next candidate. If you've made another post, I'll take it down and leave this one running, as we end up with all sorts of confusion and duplicated posts.


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Re: new and need help

Postby FluppyPuffy » Tue Feb 28, 2012 9:17 pm

I've merged your posts into this one topic, so everything is together with you making the extra post.

What makes you think that you could have fibromyalgia?? Hyperventilating isn't a specific symptom of fibromyalgia, hyperventilation tends to occur more in cases of stress, anxiety, panic. If you can post some more info about yourself, your symptoms, length of time you've been trying to get a diagnosis and have had symptoms etc etc we may be able to give you some general advice. We can't tell you if you have FM or not, a diagnosis needs to come from a suitable medical professional.


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Re: new and need help

Postby Vintagepink » Tue Feb 28, 2012 9:38 pm

why i think i got fibo

pain its like knifes going through you i am so sensitive to touch. cold water is like putting your hand in a freezer. i get numbness and tingling down left side chronic pain in left shoulder blade. physio tried to do acupuncture but i had to scream to get it out of me.
brain never there. when i write or brush my teeth i get burning pain. headaches, dizzy (graphic here very painful periods) dizzy light headed breathing problems. and list goes on
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Re: new and need help

Postby loubie » Tue Feb 28, 2012 9:57 pm

hi and welcome to the forum :wave:

if you are not getting anywhere with your gp then change gp

but also have to say lots of thing have to be ruled out before a dx of fibro.
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Re: new and need help

Postby Vintagepink » Tue Feb 28, 2012 10:00 pm

hi loubie :wave: :wave: :wave: :wave: :wave:
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Re: new and need help

Postby Vintagepink » Tue Feb 28, 2012 10:04 pm

I'm trying on thurs (doubt i get anywhere)
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Re: new and need help

Postby FluppyPuffy » Tue Feb 28, 2012 10:21 pm

When you go for your appt, take some info with you about FM, this linky gives you some details http://www.nhs.uk/conditions/fibromyalg ... ction.aspx Also explain why you feel your symptoms could fit in with those of FM. Hopefully this will start things off for you.

It's not a case of a quick check and being told you have FM tho, as loubie has said, there are various other conditions that share a lot of symptoms with each other, incl FM. These possibilities need investigating and ruling out as to the cause of your problems, and it can take time for this to happen. Once the results of tests, scans and/or any other things your GP feels need doing are back, your GP may feel in a position to give you a dx themselves, or you may be referred to a rheumatologist/specialist to be diagnosed.

How long have you been experiencing these problems?? For FM, it's usually a case of having pain in all 4 quadrants of the body for a minimum of 6 months, you've mentioned the left side of your body, but nothing about your right side :-? :-?


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Re: new and need help

Postby Vintagepink » Tue Feb 28, 2012 10:34 pm

no I'm aware that it not a quick appointment. :(
all over body from top of scalp to tips of toes. and on both sides. seriously whats with the pain
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Re: new and need help

Postby FluppyPuffy » Tue Feb 28, 2012 11:03 pm

I wish I could tell you what it is with the pain :( :( :( It's something we'd all like to know :-? :-?


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Re: new and need help

Postby denys » Wed Feb 29, 2012 11:29 am

Hi and :welcome: to the forum :wave:
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Re: new and need help

Postby shazq » Wed Feb 29, 2012 2:46 pm

:welcome: to the forum :wave: Hope you get some answers soon.
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