Newly diagnosed

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Newly diagnosed

Postby Gemsaic » Thu Apr 05, 2012 7:47 pm

Hi
Like others I have recently been diagnosed with fibromyalgia. I'm unsure that this is correct as no specialist has been involved, just GP. I do have a list of unexplained symptoms that I've been suffering from on and off for years. Amongst these are:
Unexplained skin rash around joints ( usually elbows, sometimes knees ) which is burning hot to the touch, red and very itchy. It spreads until it reaches a certain point and then just disappears for months!
dizziness - has been diagnosed as labyrinthitis, menierres disease, benign positioning vertigo and a migraine symptom
Chronic Joint pain - particularly hands, hips, knees and neck - blood tests have slight increase in inflammatory markers and Uric acid - no RA
Cluster Migraine - with stroke - like symptoms - suffered with this for 25 years
Muscle pain - this is my newest symptom around my knee but also had random unexplained chest pains in past
Tiredness and lethargy - seems to be getting worse as I get older

Does anyone else have these symptoms? I have been given amitriptaline 10 mg and naproxen to take.

I don't like going to docs as symptoms are usually blamed on my excess weight (I had 12 stone to lose and i am halfway there) if I overdo things I just get tired and this week have not been able to put any weight on my knee at all so activity is difficult.

I sound like a right misery here but I'm a happy positive person most of the time, honest! :-D

Can I ask though ...does fibro get progressively worse and do I ask to be referred to a rheumatologist? I am also going to have my knee x rayed for O A soon.

Thanks in advance for any advice

Gem
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Re: Newly diagnosed

Postby FluppyPuffy » Thu Apr 05, 2012 8:24 pm

:wave: :wave: Gem and :welcome: to the forum :bear-dancing: :bear-dancing: :bear-dancing:

If you want to sound like a right misery, you've come to the right place as we all understand how things make you feel, so feel free to get some of those pent up frustrations and worries out :penguin: :penguin: :penguin: :penguin: :penguin:

The number of GPs diagnosing patients with FM seems to be increasing. If it's worrying you that you may have been diagnosed with the wrong condition, you can ask to be referred to a rheumatologist or other specialist dealing with chronic pain conditions for clarification of your dx. Your wondering if you have been diagnosed with the wrong condition is something that a lot of us have done ourselves. There tends to be a number of stages that we go thru before we finally accept that FM is now paer of our lives, it's like working your way thru the stages of grief, this linky tells you about some of what you may experience viewtopic.php?f=2&t=10653

As you have a look around the forum, you'll find that we share a number of symptoms that include most of the ones you have listed and experienced. I share a lot of them with you, and the meds you have been given are to help try and manage things. Amitriptyline can help with pain and sleep, and naproxen, as well as being an anti~inflammatory, can help with pain relief as well.

Congratulations on managing to lose half your excess weight :bear-dancing: :bear-dancing: :bear-dancing: That is an amazing accomplishment :clap: :clap: :clap: I don't think any of us are keen on going to see a GP at the best of times, unfortunately FM means that we may have to make more frequent visits :facepalm: :facepalm: If you have a decent GP who is prepared to help you, it can help make the appts more bearable.

Altho fibro isn't regarded as a progressive condition by medical peoples, a lot of us on here have found that things have changed/worsened over time. However that doesn't mean it happens to everyone who is affected. For some it can stay at the same level, or ease back/go dormant for periods of time. For others, finding the right blance of meds, treatments etc means that they can carry on doing things.

If you have a look around the boards, you'll find lots of info and advice on all sorts of FM related matters, we also try to support each other when needed, as well as joinging in the celebrations when someone has some nice news :bear-dancing: :bear-dancing: :bear-dancing:

if there's anythng you want to know about, all you need to do is ask and we'll try to help you with it :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing:
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Re: Newly diagnosed

Postby Gemsaic » Thu Apr 05, 2012 8:51 pm

Nice to meet you FP - Thank you for the welcome :-D I am struggling between total denial and being almost relieved. I certainly don't suffer as much as some of you do and I still work full time ( although sometimes its all I can do to go in)

I will certainly have a good look around and try to get to grips with it. I took my first amitriptaline last night and fell asleep during the apprentice! :shock: unheard of! :shock: I hope I don't get too many side effects, I usually opt for natural remedies. I take glucosamine for my joints, thinking about trying rosehip as I carry fluid in my joints, particularly my hands.....anyone got any other suggestions which might help?

I enjoy crafting especially mosaics but my stiff hands make it difficult sometimes. I am 45 next month with a wonderful supportive hubby a well adjusted teenager and three moggies.

I look forward to getting to know you :-)
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Re: Newly diagnosed

Postby shazq » Thu Apr 05, 2012 10:24 pm

:welcome: to the forum Gem :wave:
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Fibromyalgia Awareness Day May 12TH.
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Re: Newly diagnosed

Postby loubie » Thu Apr 05, 2012 11:48 pm

hi gem :wave:

good to have you with us :-D
loubie xx

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Re: Newly diagnosed

Postby FluppyPuffy » Fri Apr 06, 2012 1:47 pm

If you take things as they come Gem, day~by~day and bit~by~bit, you'll find your way thru and get to the point where you find you can live with FM rather than battling against it or trying to ignore/deny it. Just approach things in a way that is right for you, and you will get there in your own time :hugs: :hugs: :hugs: And knowing there is somewhere to come for advice, to get some of those frustrations out, and even share in some silliness can all help make things that little bit easier.

There is a craft part of the forum where members have posted photos and details of the kind of things they like creating, so your enjoyment of making mosaics and other things put you in good company :clap: :clap: :clap: :clap:

There are a few peoples who use natural remedies in the management of their FM, and just as with conventional treatments, some have found they can help them.

It makes a difference when your hubby/partner is supportive, I don't know what I'd be like sometimes without my OH :oops: :oops: :oops: I have a teenager as well, most of the time he is pretty well adjusted, now and then tho he throws in some angst and Kevin~ness just so we don't forget what he can be like :shock: :shock: :shock: :yikes: :yikes: :yikes:
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Re: Newly diagnosed

Postby denys » Fri Apr 06, 2012 6:39 pm

Hi Gem and :welcome: to the forum :wave:
Denys

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Re: Newly diagnosed

Postby rosehip » Fri Apr 06, 2012 11:09 pm

hi sweetie , i am newly diagnosed and i have mucle pain all over my body . my doc diagnosed me aafter all bloods came back normal . no pressure poit checked xxxx
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Re: Newly diagnosed

Postby animalhouse » Sat Apr 07, 2012 11:32 pm

hi,

i seemed to have alot of swelling around my ankles, feet and hands and noticed last couple of weeks when i tried atkins (sorry fell off wagon when started eating easter eggs yesterday.)

apparently when i researched it on net it said that eating carbs helps store fluid so when you are on no carbs the first thing you lose/do is get rid of water retention.

don;t have anymore info but worth looking up. this is not a long term option but there are other things you can look into too.

:-) :-)
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Re: Newly diagnosed

Postby Gemsaic » Sun Apr 08, 2012 4:37 pm

Thanks all, it is comforting to have a place to come for support.

Eaten far too much today already, still, I'm hoping I won't like chocolate much after today! X ray of my knee is booked for 16 April and I'm hobbling around like an old woman! Dreading going back to work on tuesday :-?

Happy easter everyone, hope you are having fun!
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