Hello Everyone :-)

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Hello Everyone :-)

Postby RoxanneB » Tue Apr 10, 2012 5:54 pm

Hello Everyone :),
I am new to this site and was just wondering if anyone could give me some advice on Fibromyalgia? Since October my Husband has been suffering with severe pain in his fingers,knees,back,chest he says the pain in chest is the worst he feels sometimes like he's having an heart attack and is so painful it hurts to breath when its bad.

sometimes the tips of his fingers tingle and other times there numb. he also suffers with bad headaches/migraines and the pain constantly wakes him up through out the night and wakes up in the morning stiff he has no energy and the pain in constant. however some days better than others but the pain is always there.

he also now is suffering with depression because of the pain. After nagging him he went to see his doctor in november who told him it could be possibly Raynaud's disease or Rheumatoid Arthritis and prescribed him with Diclofenac Sodium and Co Codamol and referred him to an Musculoskeletal Specialist who took bloods off him and sent him for a nerve test on his fingers and arms which came back as normal. however the bloods came back and his b12/folate was low.

The Musculoskeletal Specialist told us it could possibly be Rheumatoid Arthritis so he referred him to see a Rheumatologist who also took more blood however the results came back normal and she said she was positive it wasn't Rheumatoid Arthritis and she prescribed him 25mg of amitriptyline which does help him sleep through the night. However she wanted to do more blood tests and some xrays.

2 days after the xray he gets a letter through the post asking him to go for a whole body radiation bone scan which Rhematologist never mentioned it and they was no explanation however he has a appointment in 2 weeks time for the results.I feel as if where going round in circles and not getting told anything i've been reading some of the stories on here and its took years to be diagnosed. Does anybody think his symptoms could be Fibromyalgia? If anyone can help or give advice it would be really appreciated. Thank you so much for reading. R xxxx
Last edited by FluppyPuffy on Tue Apr 10, 2012 8:16 pm, edited 1 time in total.
Reason: Split into paragraphs for easier reading
RoxanneB
UKFM Member
 
Posts: 33
Joined: Tue Apr 10, 2012 4:38 pm

Re: Hello Everyone :-)

Postby rosehip » Tue Apr 10, 2012 6:01 pm

hi there yes it sounds like fibro but other things need to be illiminated first. hope everthing goes well and you get a quick diagnosis. xxxxx
rosehip
UKFM Member
 
Posts: 139
Joined: Tue Mar 20, 2012 4:27 pm

Re: Hello Everyone :-)

Postby masonsbarms » Tue Apr 10, 2012 6:05 pm

hi im quite new to this but had lots of blood tests,xrays,scans and nerve tests
i to was put on anis before being told any results
they seem to do lots of tests to rule out other things
before saying it is fm
but amis are used in fm
be strong you will get the answer
hope this is some help x
masonsbarms
UKFM Regular
 
Posts: 1119
Joined: Wed Dec 28, 2011 8:14 am
Location: preston

Re: Hello Everyone :-)

Postby denys » Tue Apr 10, 2012 6:16 pm

I'm sorry but none of us are qualified to say whether or not your husband may be suffering from FM as the diagnosis is a process of elimination. excluding a lot of other conditions that have a crossover of symptoms.

His symptoms do mimic some of those that FM sufferers may have but you really need to wait until everything else has been excluded and :fingerscrossed: its something that can be fixed rather than FM :fingerscrossed: :fingerscrossed:
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Hello Everyone :-)

Postby RoxanneB » Tue Apr 10, 2012 6:21 pm

Ah thank you so much for your replies i really do appreciate it!! :-) Yes i think thats what they are doing but not telling us anything, but thanks again for your replies they are really helpful, just feel like where going round in circles with them. Thanks R xxx
RoxanneB
UKFM Member
 
Posts: 33
Joined: Tue Apr 10, 2012 4:38 pm

Re: Hello Everyone :-)

Postby denys » Tue Apr 10, 2012 6:24 pm

It often does feel like that, they probably dont know yet either so no-one communicates properly and you and your husband will feel completely in the dark :roll: :roll: :roll: :roll: Hope you get your answers soon :-D :-D :-D :-D :-D
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Hello Everyone :-)

Postby tonydin » Tue Apr 10, 2012 9:00 pm

as you say it sounds like fm but it would appere that they may have seen something on the x ray and requsted the scan to get a better idea what they were seeing , you will get some answers after the scan im sure
hope it all gos well for him
regards
tony
tonydin
UKFM Member
 
Posts: 866
Joined: Thu Sep 09, 2010 11:40 pm

Re: Hello Everyone :-)

Postby shazq » Tue Apr 10, 2012 9:15 pm

:welcome: Hope your hubby gets some answers soon. :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
User avatar
shazq
UKFM Veteran
 
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.

Re: Hello Everyone :-)

Postby RoxanneB » Fri Apr 20, 2012 1:35 am

Hello everyone, Thank you for your replies :-) My husband got diagnosed today by the rheumatologist with Fibromyalgia... Thanks again everyone for your help everyone. R x
RoxanneB
UKFM Member
 
Posts: 33
Joined: Tue Apr 10, 2012 4:38 pm

Re: Hello Everyone :-)

Postby FluppyPuffy » Fri Apr 20, 2012 12:44 pm

Glad your hubby has got some answers for his symptoms Roxanne :wave: :wave: :wave: Sorry it's FM tho :( :(

With all the info and stuff on here, there may be some things he could find helpful :clap: :clap: :clap:

Just ask about anything you both want to know about as there will probably be all sorts of things whirling around in your heads :shock: :shock:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Hello Everyone :-)

Postby RoxanneB » Fri Apr 20, 2012 8:52 pm

FluppyPuffy wrote:Glad your hubby has got some answers for his symptoms Roxanne :wave: :wave: :wave: Sorry it's FM tho :( :(

With all the info and stuff on here, there may be some things he could find helpful :clap: :clap: :clap:

Just ask about anything you both want to know about as there will probably be all sorts of things whirling around in your heads :shock: :shock:


Thank you so much for your reply am sure my husband will be joining the forum soon! I think its just hit him hard the fact you just have to live with pain surely there's something they can do :cry: Thanks again for your reply...R x
RoxanneB
UKFM Member
 
Posts: 33
Joined: Tue Apr 10, 2012 4:38 pm


Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 1 guest