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The UKFibromyalgia Forums • View topic - NEW and recently diagnosed.



NEW and recently diagnosed.

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

NEW and recently diagnosed.

Postby seabreeze » Thu Apr 26, 2012 12:05 am

Hi everyone
I'm new here too, I was diagnosed last year with Fibromyalgia and CFS, (which came as something new, as I had not heard about the condition at all). My GP, and then a Consultant explained it to me, thought I was going crazy, pain everywhere and complete exhaustion. Once spent 4 weeks in bed, so ill, not knowing what was wrong with me.Thought it was Glandular Fever, until I was told it was CFS and Fibro.

I've found this great website recently, ,so useful and interesting! Well done to the people who set it up and manage it, it's a godsend!
This condition can take you onto a lonely road, even with friends/family support, unless you know someone else who has it too, you have to try and manage and juggle it and your life each day and it's hard.
One question? has anyone had problem with back of eye with this condition? Pain in eye etc, I have seen a Consultant and awaiting test results. I can put everything down to Fibro, and it's hard to know if it is anything else, anyone else know what I mean? :roll:
Bye for now.
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Re: NEW and recently diagnosed.

Postby shazq » Thu Apr 26, 2012 4:02 pm

:welcome: to the forum seabreeze :wave:

(i split your post to make this your own as its was your 1st one)

There are a few topics up about people complaining about their eyes so have a read around, you might find them interesting.

I get lots of migraines behind my eyes. :( i do get blurry eyes as well. :goodluck1: with your results.
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Re: NEW and recently diagnosed.

Postby FluppyPuffy » Thu Apr 26, 2012 6:58 pm

:wave: :wave: seabreeze and :welcome: to the forum :bear-dancing: :bear-dancing:

You'll find lots of info and advice on here, so have a look round and see if there is something you may find useful :penguin: :penguin:

For your eye problem, altho FM can affect the muscles in and around the eye area, you might be better having it checked by your GP or an optician, just to be sure there isn't anything else causing the problem.

Anything you want to know about, just ask and we'll tried to help you with it :bear-dancing: :bear-dancing: :bear-dancing:


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Re: NEW and recently diagnosed.

Postby denys » Thu Apr 26, 2012 7:50 pm

Hi Seabreeze and :welcome: to the forum :wave:
Denys

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Re: NEW and recently diagnosed.

Postby seabreeze » Thu Apr 26, 2012 11:43 pm

Thanks for the advice, so nice to have people to talk to, I will let you know what it is later, thanks again :wave:
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Re: NEW and recently diagnosed.

Postby seabreeze » Thu Jun 07, 2012 12:26 am

Hi everyone
Update on pain in eye, was seen by a Consultant who saw some white thing behind my eye, had a CT scan, then results the following day, was seen again by two other doctors who again looked at back of eye and also did a ultrasound, said it was nothing serious or untoward, sent me home with advice, to take pain killers (already on them with Fibro) and if it gets worse, or effects my vision have to go back, don't know what it is, any one had this before? :-?
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NEW and recently diagnosed.

Postby caterpillar » Thu Jun 07, 2012 9:20 am

Hi seabreeze. About 5 years ago before I was diagnosed with FM, I went for a routine eye test and was told there was something on my optic nerve. That eye had always been a bit achy etc so I was quite concerned.
Anyway I got referred to an eye specialist who told me I actually have drusen in my eye, which at my age is apparently completely harmless. It's a calcium deposit, he described it as 'having a freckle in your eye'
Maybe yours is the same??
I do know that in older people drusen can cause Age Macular Disease but I am trying not to worry about this as I think I've got a few years left in me before that happens!
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Re: NEW and recently diagnosed.

Postby seabreeze » Thu Jul 19, 2012 3:03 pm

Thanks Caterpillar
Still not sure what it is, had CT Scan and ultrasound on they eye, they said nothing serious going on
although they could see white specks at teh back of the eye, I am to go back if it gets worse.
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Re: NEW and recently diagnosed.

Postby JRMT » Fri Jul 20, 2012 9:24 pm

Hi seabreeze,
I get pain behind eyes a lot which leads on to a headache, or maybe its the headache that leads to the pain behind the eyes, sometimes its hard to tell where it starts, but I do get a stabbing pain behind my right eye, can be quite scary sometimes but as I've had tension headaches every day for 14 years now the doc just puts it down to this. I've had 2 scans in the past that came back all clear so I've learned just to put up with it. Makes me wonder if its actually FM that's been there for 14 years without me knowing :(
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Re: NEW and recently diagnosed.

Postby seabreeze » Mon Aug 20, 2012 11:41 pm

Thanks for the replies, it's good to know people are reading and helping x :-|
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