New here :-)

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New here :-)

Postby Lisa38 » Sat May 05, 2012 8:50 am

Hi everybody,

Was after a little advice if that's ok. I have suffered with hypothyroidism for about 8 years now and for the last three months or so I have had the most awful pain in my neck and left arm that just doesnt go away. For weeks I also had problems with my feet, very cold, and pain in the joint of my big toe, felt like nerve damage which seems to have eased off a little lately. I also suffer lower bank pain, although I've always put that down to having a baby. Im limited in the pain killers I can take as I breastfeed but they dont seem to do much anyway.

I was looking on the internet and saw that there is a link between thyroid problems and fibromyalgia. Do my symptoms sound like it could be this and how does the doctor make the diagnosis? I just feel like Im getting nowhere and that he thinks it's in my mind. Lost count of the amount of blood tests Ive had recently. It's no fun feeling like this with two children to look after.

Any advice would be very much appreciated.

Thank you in advance :-)
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Re: New here :-)

Postby FluppyPuffy » Sat May 05, 2012 10:13 am

:wave: :wave: Lisa and :welcome: to the forum.

I'm sure you'll appreciate that we can't say if you have FM or not, you need a qualified medical professional to give you a diagnosis. Some of the symptoms you've mentioned could be related to FM, and they could also be related to other conditions which share a lot of the same symptoms :facepalm: :facepalm:

Being dx'd with FM isn't a straight forward process unfortunately :facepalm: :facepalm: It tends to be arrived at when all other possibilities have been investigated and eliminated, which can be a very long winded journey.

Have you asked your GP about any referrals to someone who could help with getting to the bottom of your symptoms??? If not, then it might be worth doing. People tend to be referred to rheumatologists for problems like FM, altho there may be a different specialist that your GP thinks may be able to help. If he's dismissive/unhelpful re: a referral, then it might be worth considering seeing a different GP at your surgery and see what they say about the idea.

To help with finding out what is making you feel as you are, keeping a diary of symptoms can be useful as it might help with spotting any potential triggers, patterns etc. You can then take the diary with you for reference when you go for any appts.

Anything you want to know about, just ask and we'll try to help you with it. We understand how living with chronic pain can affect you and drag you down, so have a look around the forum as there is an awful lot of info and advice on here that you may find useful. Don't worry about not having a dx, members have joined before they have a name for their symptoms and have found the support and suggestions on here has been helpful :wave: :wave: :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: New here :-)

Postby *Lisa* » Sat May 05, 2012 10:28 am

Hi & :welcome:

I personaly do not have tyroid but i do know that it can be a fibro associated condition. I also know that sypmtoms are very simular.

With fibro our main syptoms are... Chronic severe stiffness especially mornings, widespread pain and fatigue. Unfreshed and trouble sleeping, Muscle spasm/twitches/knots. The pain can be .. burning/aching/muscle pain/nerve pain.

Then theres the trigger points and tender areas that press on the nerves making the pain radiate through out the body. Thats just a few of the symptoms.

If you still fell you may have fibro and all blood tests for your tyroid and other areas have come back ok then you can ask to be refered to a physio who can assess you. Either that or asked to be seen by a rhuematologist. They are the ones who diagnose fibro.

GP's in some cases have diagnosed fibro but if your GP is not taking you seriously then you can ask for further investigations and hopefully they will refer you on to either.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: New here :-)

Postby Lisa38 » Sat May 05, 2012 10:53 am

Thanks very much for your replies, that's really helpful and I appreciate it.

I suffer with muscle spasms/jitters but generally only when Im in bed trying to sleep, I suffer with anxiety so I put it down to that. I've been tested for rheumatoid arthritis as my mum had it and so does my brother and that was clear. My thyroid levels have been affected since having my son so had my meds increased about a month ago. Never suffered like this before though having had thyroid problems for years. Hopefully they will get to the bottom of it.

Thank you again :-D
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Re: New here :-)

Postby SianyH0911 » Sat May 05, 2012 8:42 pm

Hi Lisa :-)

It took 4 years to diognose me with FM and it was totally frustrating being told its not this and its not that and I hated not knowing. I've had every test going, sometimes over and over again. I've had MRI scans, lumbar puncture, blood tests, you name it, I've had it done. I was under a neurologist for 4 years and he is a non believer, he didn't want to know. It was only when we (my husband and I) decided to get a second opinion that they said what it was.

I suffer from muscle spasms/twitches (my husband calls them my Michael Jacksons :lol: )

Just be patient and stay strong.
Sian
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Re: New here :-)

Postby Lisa38 » Sun May 06, 2012 2:12 pm

Thanks very much Sian. Lol at the Michael Jacksons.

It is frustrating when the pain is so real and it feels like nothing is being done about it but I'm sure we will get there in the end. It's the neck pain more than anything that I cant stand, it goes right up into my head so I can never just sit and feel comfortable. Doesnt help that my little fella is a cling on and constantly likes to be in my arms or climbing all over me lol.

Really appreciate the replies xx
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Re: New here :-)

Postby shazq » Sun May 06, 2012 6:02 pm

:welcome: Lisa :wave:
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Re: New here :-)

Postby denys » Sun May 06, 2012 8:36 pm

Hi Lisa :welcome: to the forum :wave:
Denys

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