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The UKFibromyalgia Forums • View topic - Outlook???



Outlook???

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Outlook???

Postby pugbear » Wed Jun 06, 2012 7:47 am

Hi everyone, i am new to this site and have spent hours going through various posts and have found it very very helpful; however the information contained here with reference to FMS paints a very bleak future :shock:
I am awaiting a positive FMS diagnosis (i am at the stage where all of the other conditions need to be tested for) At the moment i still hold down a fulltime, very demanding job as a college lecturer in a department which specialises in young people with very challenging behaviour and educational needs.....I am in constant pain in my wrists, neck, back and most of the left side of my body, i do not sleep due to restless legs, violent calf and thigh cramps and sudden full body twitches (which wake both me and my partner) therefore i am also exhausted and suffering from brain fog!!!! ( i have spent the 4 day Jubilee weekend either asleep or trying to hide my pain and fatigue while having family over for dinner!!)
I love my job and am now worrying that due to FMS i may have to consider my future as a lecturer!!!

My question is; IS there anyone out there with FMS that has managed to find coping strageties that has allowed them to continue in full time employment?
I would like to say Thank you for all of the advice that i have read on this site, i can see me referring back to this site a great deal in the future....Claire
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Re: Outlook???

Postby masonsbarms » Wed Jun 06, 2012 4:21 pm

hi pugbear, sorry to hear that you are having a bad time,

i know it looks bleak but it can be done it all depends on how fm affect you.

i still work full time but i must admit on bad days i do have help at hand from the great team i have.

when you do get your diagnosis there is medication and other forms of help ie physio ect,

you need to work out a plan and have plenty of rest i know this is hard to do when you work full time but you havr to.

i think you should stop hiding how you feel from people and let them see how it affects you then they can help you when you need it.

yes i know you may not want to worry people or be to proud and independent i have also done this.

you have to have help or you will just burn out and make yourself worse

i have days when i push myself to hard and then i pay for it but i am slowly learning to ask and recive help.

i hope this is of some help and gives you a little hope for your future

and that you can find the balance to keep you in your job.

take care xx
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Re: Outlook???

Postby shazq » Wed Jun 06, 2012 7:33 pm

:welcome: to the forum pugbear :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Outlook???

Postby pugbear » Wed Jun 06, 2012 10:33 pm

Hi masonsbarms
thank you so much for your reply, it has made me a bit more optimistic today :-D
I am stuck in the catch 22 situation at the moment, on the one hand i really need to get a diagnosis to explain the way i have been feeling for the last 4+ years but on the other hand the only diagnosis that is left is FMS....(i don't care if i get told that i am going to grow 10 additional heads as long as it had a recognised medical term!!!! as opposed to being constantly told "but your blood tests came back as normal")
I know that i will have to stop hiding how i am feeling and will have to start trusting people, but i am by nature, a private "leave me alone and i will deal with it" type person and it is going to take me time, i know that my family and close friends will be relieved to finally know what has been going on and will help in whatever way they can; however i feel that work will be a different matter!!!

It has been good to hear from someone, who at this times is still managing to hold down a full-time job and i shall try to adopt some if not all of your coping strategies, again many thanks for taking the time to respond and for giving me great advice...Claire
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Re: Outlook???

Postby pugbear » Wed Jun 06, 2012 10:36 pm

Hi shazq
many thanks for the welcome :-P
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Re: Outlook???

Postby SchroedingersCat » Thu Jun 07, 2012 7:24 am

Hi Pugbear, I was diagnosed in January, but it simply confirmed my suspicions. I work full time in an office, have a partner, several pets, an allotment, and a spare time job running a hobby company. I rarely use pain killers, and still have pretty good life. The FM pain issues have been worst for about 2 years, ongoing for about 5 or more. I was very fit and active before, and have no other serious health issues. How do I cope? Bloody mindedness and exercise. Keeping moving is the key.
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Re: Outlook???

Postby pugbear » Thu Jun 07, 2012 7:47 am

Hi SchroedingersCat
Many thanks for your reply, I think i really needed a "life goes on" point of view!!
Unfortunatly, like most chronic medical conditions you tend to hear the worst case scenarios, and i found that i was getting myself stressed over the "what would happen" as opposed to the "what might/could happen"
I hope that i manage to keep positive, which, now will be alot easier thanks to the replies i have received from this post :-D
This is an amazing site/forum, i am so glad that i joined it.
Many thanks again for the inspiration
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Re: Outlook???

Postby masonsbarms » Thu Jun 07, 2012 2:56 pm

hi pugbear. dont worry to much about having doubts as we all have them

you will have good and bad days and you will get frustrated but it is only natural

you realy need to let people help but it will take time to adapt.

i hope you get your diagnosis soon and that you can then make your plans.

take care xx
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Re: Outlook???

Postby Em c » Fri Jun 08, 2012 7:18 pm

Hi,

I'm a primary school teacher and, like you, I began to doubt whether I was being realistic in thinking I could carry on with this full time. But I support my family and we need the money so I'm very positive I'm going to try everything and give it a really good go before I give up!

I'm currently off work after 2 failed phased returns but I had a really good meeting with Occupational Health yesterday and the doctor I saw had previously been a rheumatologist. She said there was no reason I couldn't go back fulltime and I just had to phase back in more slowly to give myself time to adapt.

I'm on lots of meds now and I feel MUCH better than I did 6 months ago. Plus she assured me that my employer would have to try and support me as much as possible because I'll be covered by the Disability Discrimination Act.

So I'm going back to work Mon, beginning with one lesson a day, and I'm going to do everything I can to stay in a job I love with an income we need.

Not sure if that helps as I haven't actually achieved it yet! But, like you, I'm not going to just give in to the fibro without a fight!

:-D

Em x x x
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Re: Outlook???

Postby shazq » Fri Jun 08, 2012 9:00 pm

:goodluck1: for Monday Em. :hugs:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Outlook???

Postby Andrew_Z » Fri Jun 08, 2012 11:29 pm

Hi pugbear.
Back in the eighties I used to be a college lecturer retraining people to do computer graphic design, but had to retire due to my bipolar disorder. I didn't have fibro back then, but leaving aside the BP I would find teaching impossible now, so I'll tell you my viewpoint.

I would find it increasingly difficult either sitting or standing for long periods, and also the constant moving around the room to attend to each student. I also couldn't manage stairs all day. And if stress really is a contributing factor to fibro then I'd find challenging students might well increase my symptoms. And then there's the work I often took home, that adds to the stress, not to mention how much it would increase my problems with getting enough sleep. I increasingly forget things that are important, and find concentration a problem, so there'd be a good chance I might get irritable with a student or fellow staff member when it's not their fault.

If I were you I might find it easier in the future being a part time tutor, or better still tutoring from home. See how it goes for a bit, and whether or not you get a fibro diagnosis. For teaching, as you know, is both physcially and emotionally demanding, and I'm affraid that at the very least with all the comuting and sleep problems I'd soon be absolutely exhausted! :sleep:
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Re: Outlook???

Postby masonsbarms » Sat Jun 09, 2012 4:56 pm

hi em hope all gose ok xx
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Re: Outlook???

Postby Em c » Sat Jun 09, 2012 7:51 pm

Thanks Shazq and Masonbaums! :-D

Em x x x
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Re: Outlook???

Postby sjc » Sun Jun 10, 2012 9:11 am

Hi there. To be honest, fibro or any medical condition, is a personal thing - you've got some that can still function quite well, then some don't. Some of the people who struggle with fibro tend to have really severe fibro, or they got other complex medical problems alongside fibro, or they've haven't been treated or diagnosed properly for years, so that's why some folks struggle to function. Most folks that I know or read can still live life quite good, there's only a minority that sadly do struggle and can't work. The only thing I can suggest to you is to perhaps speak to a Gp and ask for a referral to a community occupational therapist. An community OT can assess you anywhere, whether in work or at home. OT's can provide you advice on how to overcome any difficulties you may face and sometimes they can offer people equipment or adaptions. Take care.
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Re: Outlook???

Postby pugbear » Sun Jun 10, 2012 9:39 pm

Hi All
Thank you so much for all of your replies...AND GOOD LUCK Em :-D
i have not been on the forum due to the fact that i have spent all weekend marking work :( so i totally get what you are saying Andrew... I have been very stressed and therefore my FMS has been really bad and have had to resort to walking with a crutch!! (i haven't formally been diagnosed, but consultant should confirm next Monday when the final lot of test results come back "all clear" AGAIN!!!)
The next 2 weeks will be interesting as this is the final push to get our students through their qualifications, so stressed lecturers, stressed moody students and Internal and external verifiers and assessors!!! YAy I really really need to get through the next 2 weeks!!!

My students have started to notice my "vague" moments, but they have actually been quiet concerned, i have blamed them on a side effects of medication, i find these moments actually very hard to deal with, i find them very frustrating!!!!! :crazy:
Thanks again everyone for your support, kind words and encouragement..
Em, please let us know how you get on Monday :-)
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