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The UKFibromyalgia Forums • View topic - I'm new to this site and to Fms



I'm new to this site and to Fms

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I'm new to this site and to Fms

Postby Loubylouxxx » Tue Jul 03, 2012 8:43 am

Hello, I'm knew to this site and recently been diagnosed with FMs.

My story probably started about 8 years ago when I started getting a bad back, lower and near my neck, it was awful trying to get comfterble and to cope with it. And then the wrestless legs started, it used to feel like I had no circulation in my legs and they need a good rub to get them going again, if that makes sense. At the time I put it down to burning the candles at both ends, as I was only 25 and enjoyed a good social life with friends. So I just coped with it and used to keep myself dosed up with ibrobuphen. Over the years I saw doctors about my back and used to get told its wear and tear, I went for X-rays had blood tests the lot but everything came back negative. One doctor even asked me I I was depressed as that could b the cause of it, I was like of course I'm depressed wouldn't you be if you had to cope everyday with chronic back ache?

I was sent for two mri scans one fir my lower back and one for my neck but they also came back negative, I started feeling like it was all in my head as no one was listening to me. I then went on to have my little girl, who is now 3 years old and who is my life. But the past year or so, other ugly symptoms have started to crop up. I get up in the mornings and my body is so stiff I have to give my self at least 10 minutes to feebly get out of bed. Then my hands and feet started burning and feeling numb, to the point they feel swollen but there not, my feet sometimes feel like I have walked for miles but haven't.

I returned to the docs to be sent to have tests done for carpal tunnel syndrome, and low and be hold it came back negative. So yet again I returned to the docs and saw a different one, this time I armed myself with info about FMs and handed it to him and told him this is what I think I have got, he read all my history over the years and he uttered the words I'd been longing to hear, I believe you. I could have cried, I know it sounds silly but I'm so pleased I finally have a name to what is wrong with me, at least now I can start doing the right things to try and help mself have easier days. I work, I run a house, I have a husband and a 3 year old, so I can't possibly give up, I will hobble to the ends of the earth if it means I can take care of my family. I will do anything that will help me get through the day.

My husband has been great and so supportive, although he dosent quite get my pain, I think he forgets sometimes as he can't see it, so assumes I'm ok, but I couldnt have got through this without him, and also how do you tell a 3 year old that mummy's not quite right today.

Thank you for reading my story, I have missed out a great deal of detail as 8 years of pain is a long time so I think this would have been 100 pages long if I had gone through everything.

I'd love to hear your story's and how you are dealing with it on a day to day bases, as it may help me also to try knew things.

Thank you again xxxxx
Loubylouxxx
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Re: I'm new to this site and to Fms

Postby TATT » Tue Jul 03, 2012 10:05 am

Hi Loubylou,

:wave: to the forum. There are loads of subjects that you can look through on the board. This is the friendliest forum I have found and always someone to talk to. I am just browsing today as in a lot of pain.

Just wanted to say hello and look forward to speaking later.
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Re: I'm new to this site and to Fms

Postby FluppyPuffy » Tue Jul 03, 2012 10:37 am

:welcome: to the forum Loubylouxxx :bear-dancing: :bear-dancing: :bear-dancing:

As TATT has already said, we ave lots of info and advice on lots and lots of subjects, so if there is something you're wanting to know about, there's a good chance someone will have experienced it and may have some suggestions for you. If we can't help tho, there is always [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] and :wine: :wine: :wine:

Your story of being bounced between Drs, specialists, clinics etc is something most of us have had at some point :too-upset: :scream-1: :pull-hair:

It's good you have a supportive hubby, it makes such a difference knowing there is someone there to pick up your pieces when you drop them on the floor :shock: :shock: :shock: It is difficult for a nonFMer to understand what the pain is like as it's highly unlikely they have experienced something that they can compare it with. If you want to try and paint him a more complete picture, you may find this linky useful viewtopic.php?f=2&t=4732&start=255

WRT to your 3 year old, there are things that you can still do together, it's just that you may not be able to do the more physical activities. My son was 3 and a bit when I started showing symptoms, so all he really knows is me being as I am. Despite that tho, I've still managed to do things with him, from playing with toy cars thru to reading books, watching something silly together. Mainly things where we could be sat down. What is important with you and your 3 year old isn't how long you spend doing something, it's how good a time was had while you were doing something, a few minutes doing something really special with mum will be something your small person hangs on to rather than half an hour of doing something boring without mum.

If it helps, my son is now 16, and it doesn't look as if having me and my aches and pains as a parent has affected him, he's done well all way thru school, just sat his GCSEs and is going to take A levels at the start of the next school year.

Think I've waffled on enough at you now, just ask if there's something we want to know about and we'll try to help you with it :mrgreen: :mrgreen: :mrgreen:


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Re: I'm new to this site and to Fms

Postby loubie » Tue Jul 03, 2012 2:05 pm

welcome to the forum :wave:
loubie xx

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UKFibromyalgia.
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Re: I'm new to this site and to Fms

Postby shazq » Tue Jul 03, 2012 5:38 pm

:welcome: to the forum loubylou :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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