Hello Everyone

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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Hello Everyone

Postby Zaralaska » Fri Aug 03, 2012 10:28 pm

:-D I just wanted to say hello to everyone and tell you a little about myself :wave:

I was diagnosed with CFS in 1996 and like many others on here I had no choice but to leave a very good job :( In 2008 I was diagnosed with FM, though I believe with both conditions I had them for many years before I was diagnosed. I have received Incapacity Benefit since 1997. About 2 weeks ago I received the dreaded brown envelope containing the ESA form. The thought of completing it filled me with dread :cry: Where do I go for help and advice specifically for my conditions :?: I trawled the internet until I came across a website and forum that was full of information regarding all aspects of CFS/FM :-D But, most importantly for me were the positive attitudes, friendliness and helpfulness shown by the members of the forum which shone out though my computer screen....of course, the website I came across was this one. :welldone: You have given me the confidence I needed to fill out this :swear1: form and I am now half way through filling it out. If I am unsure about anything I come straight onto here and after a bit of searching I always find the help I need. I would like to say 'Thank you' to everyone and give you all a great big :grouphug: Hopefully, one day I'll be ale to help someone else :fingerscrossed:

Caron who has 6 of these :cat1:
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Re: Hello Everyone

Postby TATT » Fri Aug 03, 2012 10:34 pm

Welcome Zara, :welcome:

Xxx
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Re: Hello Everyone

Postby denys » Sat Aug 04, 2012 3:06 am

Hi Caron, :welcome: to the forum :wave: so glad we can be of help to you and :fingerscrossed: for your form we are an animal loving community on here I have one dog and 2 cats now (lost one earlier in the year) :wave:
Denys

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Re: Hello Everyone

Postby FluppyPuffy » Sat Aug 04, 2012 10:24 am

:welcome: to the forum Caron :bear-dancing: :bear-dancing:

It's lovely to hear you've already found the info and stuff we have on here so wonderfully helpful :clap: :clap:

Like you, I now have the matching pair, FM came first over 12 years ago, altho I wasn't dx'd until 4 years after it forced me to be part of the gang :facepalm: :facepalm: :facepalm: The CFS/ME option has only officially arrived this year, altho like it's FM partner, it has been lurking around for much longer :cup1: :cup1: :cup1:

We each do our best to keep a positive and friendly air to the forum, altho sometimes those black clouds do come rolling in and catch us off guard. We manage to find our way thru them tho, then go back to our usual :mrgreen: :mrgreen: :lol: :lol: :crazy: :crazy: states, depending on what the day needs :bear-dancing: :bear-dancing: :bear-dancing:

Lots of us are owned by various animals, I'm not a :cat2: :cat1: lady tho, I leave that to my next door neighbour as she loves them :blowkiss: :blowkiss: I'm owned by the least~like~a~springie springie girlie you can find, and 3 chookabos :chicken-dance: :chicken-dance: :chicken-dance:

Just ask if there's anything you want to know about, it doesn't usually take long for someone to reply :bear-dancing: :bear-dancing: :bear-dancing:
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Re: Hello Everyone

Postby shazq » Sat Aug 04, 2012 3:53 pm

:welcome: to the forum Caron :wave:

Glad you have found the forum helpful :bear-dancing: :bear-dancing:

I have 3 :cat1: :clap: :clap:
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Fibromyalgia Awareness Day May 12TH.
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Re: Hello Everyone

Postby penfriend » Sat Aug 04, 2012 8:06 pm

Welcome to Zara and all the newbies. I can hardly believe that I read somewhere here that there are 9.000 members already. Just shows how many of us are suffering with Fibro, and much else besides.

I will not say how long I have been ill, as it would not be an encouragement to others, but a long time.

Before I forget, someone mentioned about taking a beta-blocker. My advice would be no way! Its a killer! I saw a private specialist back in 1980 and he put me on a beta-blocker, and I was left on it for 7 years, getting worse and worse, until I finally collapsed and did so in the doctor's surgery, and the locum said "STOP IT IMMEDIATELY - I've seen this happen before." So I did, and ended up confined to bed for THREE years, and from them on needed a wheelchair!

My advice is, do not take drugs, but try and find some alternative herbal products. Its also best to try topical creams, such as Freeze-gel and Biofreeze, if you can tolerate the Menthol.

Its good to have a website like this, to try and help one another, and to sympathise.

Love Penfriend
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Re: Hello Everyone

Postby shazq » Sun Aug 05, 2012 5:52 pm

penfriend wrote:Welcome to Zara and all the newbies. I can hardly believe that I read somewhere here that there are 9.000 members already. Just shows how many of us are suffering with Fibro, and much else besides.

I will not say how long I have been ill, as it would not be an encouragement to others, but a long time.

Before I forget, someone mentioned about taking a beta-blocker. My advice would be no way! Its a killer! I saw a private specialist back in 1980 and he put me on a beta-blocker, and I was left on it for 7 years, getting worse and worse, until I finally collapsed and did so in the doctor's surgery, and the locum said "STOP IT IMMEDIATELY - I've seen this happen before." So I did, and ended up confined to bed for THREE years, and from them on needed a wheelchair!

My advice is, do not take drugs, but try and find some alternative herbal products. Its also best to try topical creams, such as Freeze-gel and Biofreeze, if you can tolerate the Menthol.

Its good to have a website like this, to try and help one another, and to sympathise.

Love Penfriend


Hi Penfriend
just like to say that everybody reacts differently to medications, sorry to hear that beta-blockers did not agree with you but it does not mean that they will have the same reaction as you had.
There are hundreds of other people on these meds so its wrong of you to advice people not to take them as they are a killer :yikes:

I have been on Beta-blockers a couple of times and have been ok on them.
Sorry you ended up in a wheelchair :hugs:
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Re: Hello Everyone

Postby FluppyPuffy » Sun Aug 05, 2012 8:17 pm

penfriend wrote:Before I forget, someone mentioned about taking a beta-blocker. My advice would be no way! Its a killer! I saw a private specialist back in 1980 and he put me on a beta-blocker, and I was left on it for 7 years, getting worse and worse, until I finally collapsed and did so in the doctor's surgery, and the locum said "STOP IT IMMEDIATELY - I've seen this happen before." So I did, and ended up confined to bed for THREE years, and from them on needed a wheelchair!

My advice is, do not take drugs, but try and find some alternative herbal products. Its also best to try topical creams, such as Freeze-gel and Biofreeze, if you can tolerate the Menthol.

Sorry to hear how things have turned out for you penfriend, but as Shaz has said, we all react very differently to things, and the only way someone will know if a med/treatment could help them is to try it.

I've been on beta~blockers at different times and have always found them OK. In fact, were I not on beta~blockers at the moment, coupled with nefopam, I would be in agony virtually daily due to migraines. Altho far from perfect, with this particular combo I have found that I can now have about half a week migraine~free.

Were I to follow your suggestion and use herbal products, I would probably end up in hospital as I have such extreme reactions to anything herbally/supplementy.

And from when you were initially given beta~blockers there may well have been changes and improvements to them, manufacturing processes etc that help minimise such effects as you suffered.
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