I'm new :)

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I'm new :)

Postby water_sun_sea » Mon Aug 06, 2012 6:17 pm

Hello all ..Not been diagnosed as yet ..Brain fog lead me 2 your forum after searching on google , i have been having a lot a lower back pain for the last 6 yrs .. constantly in pain every day ..my left hip hurts too ..pain in my finger joints and some swelling ..feeling very tired ..wake up 2/3 times in the night ,in the morning my back is stiff (frozen) and when i try to move its very painful ,feels like i have done 10 rounds with Mike Tyson instead of sleeping ..headaches every morning and feeling quite depressed and brain fog is driving me crazy .Memory loss , i can't remember what i said 2 mins ago ,never mind what i did last night i am scared this is dementia .I have been reading lots of stuff on the internet ..i also suffer with IBS .not sure if these are the symptoms of Fibro ..i am 45 yrs old and suffer with chest pain .nice to meet you all .Trish
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Re: I'm new :)

Postby joanna-faith » Mon Aug 06, 2012 7:07 pm

Hi Trish,
I am also new on here i was told i have fm about 18 months ago, it is a hard thing to understand i struggle every day, look forward to chatting with you.
Jo
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Re: I'm new :)

Postby water_sun_sea » Mon Aug 06, 2012 7:24 pm

joanna-faith wrote:Hi Trish,
I am also new on here i was told i have fm about 18 months ago, it is a hard thing to understand i struggle every day, look forward to chatting with you.
Jo


Hi Jo ,yes it is very hard to understand and very confusing :( not sure if i am in the right place ..for me its early days i will be going to the doctor again on Thursday to ask to see a rheumatologist , i am just sick of being in pain every day :( and i don't understand why my medication is not working ..hope to chat to you again :-D x
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Re: I'm new :)

Postby joanna-faith » Mon Aug 06, 2012 7:39 pm

I am in pain everyday and get very low sometimes, i am back and fourth to docs all time still trying to sort out medication is so annoying my doctor said to me he not sure how to medicate me i still trying after 18 months. i have been to butlins last fri untill today it was great my kids loved it but i found it very hard i did have to use a mobilitly scooter and so much i couldnt do even picking up a bowling ball was hard for me, its so frustrating :-x
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Re: I'm new :)

Postby water_sun_sea » Mon Aug 06, 2012 7:44 pm

:( its no fun at all especially if you are on holiday . hope you had a nice time away even though you were in pain .i am sure your doctor can send you to a pain clinic they help to sort out your meds for you .
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Re: I'm new :)

Postby FluppyPuffy » Mon Aug 06, 2012 8:21 pm

:welcome: to the forum Trisha :bear-dancing: :bear-dancing: :bear-dancing:

Sorry to hear how things are for you at the moment, you're doing the right thing with seeing your GP and asking about a referral to a rheumy. If your GP thinks that may have FM, the referral may not be necessary tho as more GPs are dxing FM themselves and starting patients off on treatments.

With you say your meds aren't working for you, there could be a number of reasons for it. You may not be on a suitable dosage for you yet, so a change may be helpful. It could be that it isn't the right med for you, but a change to a similar sort of med may help. Some of the meds used to manage conditions like FM can take a while to fully get into the system and make their presence felt, so if you've only been on something a short while, that may be part of the reason. This linky may be of help to you http://www.nhs.uk/Conditions/Fibromyalg ... tment.aspx it explains about some of the meds used, if you have a look and see what your GP thinks may be suitable for you to try.

There is lots of info and advice on here, covering all sorts of things. Have a look and a read around, you could come across something helpful :penguin: :penguin: :penguin: anything else you want to know, just ask and we'll try to help you with it :wave: :wave: :wave:
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Re: I'm new :)

Postby water_sun_sea » Mon Aug 06, 2012 9:08 pm

Hello Fluppypuffy

Thanks for the warm welcome :-D and the link ..very good read

yes i must admit i have been on a new med just a couple weeks... ibuprofen Retard 800mg each tab slow release and Tramadol 100mg up to 4 times a day but i have been on Tramadol for a number of years .. i will give it time ..just hoping that my doctor on Thursday don't think i am making it all up an its in my head :( he is not very understanding so i am not going to hold my breath ..have been going to him for my back pain for over 5 years now ..i ask him for something stronger and he says i am on the strongest there is :( he has never done any tests just always gave me Tramadol :(
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Re: I'm new :)

Postby FluppyPuffy » Mon Aug 06, 2012 10:36 pm

Tramadol is a med regularly used for conditions like FM, and can make a difference to some people. I'm on it, and with the rest of the ingredients in my current cocktail I'm bobbling on at the moment :penguin: :penguin: :penguin: :penguin:

If your GP isn't much help, are there others at your surgery that you could see?? Maybe ask if anyone has experience of dealing with chronic pain conditions.
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Re: I'm new :)

Postby denys » Mon Aug 06, 2012 10:40 pm

Hi Trish and :welcome: to the forum :wave:
Denys

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Re: I'm new :)

Postby Iceskatemum » Tue Aug 07, 2012 9:44 am

HI WSS, :welcome: :welcome: :wave: :wave: to the forum.
I too am new to the forum and new to FM as I was only diagnosed a few months ago . Still coming to terms with the changes it has brought but glad I now have a diagnosis as I thought I was going mad :crazy: :crazy: .

I too have chronic pain in my back following a bad fall a number of years ago . Prior to being diagnosed with FM I was only receiving medication for the back pain. As the oral meds weren't touching the back pain plus giving me wierd side effects (very bad dreams being the most scary) my GP put me on a transdermal patch. I put it on once a week and it them does its magic over 7 days.

He also then sent me to a pain clinic and the doc there gave me some steroid injections into the painful back joints , this then allowed me to reduce the level of the patch medications and anything else I was taking for the occasional break through pain . The reduction in the meds then led to my getting diagnosed with FM as I had been attributing the extreme fatigue, tiredness ,mussy head etc to all the side effects of the oral meds I was taking. A new GP however joined the dots and has DX FM, later confirmed by a consultant .

As you have so recently started some new meds wait and see if they do you some good but keep the idea of a patch in reserve for your chronic pain . As FP and others have said go talk to a Rheumy about the FM 'cause if your GP isn't up to speed on FM they may not be up to speed on currents meds.

As you know Chronic pain is so different from the pain of an occasional headache and its treatment has its own specialism so a visit to a pain clinic may also be good as they are able to treat both conditions, just cause you have FM doesn't mean the Chronic Back Pain will go away. :( :(


Hope you get some relief very soon . I have found the forum and the other pages on the other pages FM web site full of ideas and knowledge from those who unfortunatly have been down this road before us.

:goodluck2:
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Re: I'm new :)

Postby water_sun_sea » Tue Aug 07, 2012 3:17 pm

FluppyPuffy wrote:Tramadol is a med regularly used for conditions like FM, and can make a difference to some people. I'm on it, and with the rest of the ingredients in my current cocktail I'm bobbling on at the moment :penguin: :penguin: :penguin: :penguin:

If your GP isn't much help, are there others at your surgery that you could see?? Maybe ask if anyone has experience of dealing with chronic pain conditions.


Hi Fluppypuffy yes i have other doctors in my surgery and another surgery just down the road from there ,so if i don't get any joy with my doctor i will be changing him .
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Re: I'm new :)

Postby water_sun_sea » Tue Aug 07, 2012 3:50 pm

Hello Iceskatemum :-D
And thanks for your help ..I have had chronic back pain for 6 yrs now everyday :( as i have not been tested or diagnosed with fibro i am not sure if i am in the right place ..but i have most of the symptoms as fybro ..i have had brain fog / memory loss for much longer than 6 yrs ..how do i get an appointment with the pain clinic ? does the doc send me or will the Rheumy send me there ..so sorry to hear about your chronic back pain ((gentle hugs )) .
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Re: I'm new :)

Postby water_sun_sea » Tue Aug 07, 2012 3:52 pm

denys wrote:Hi Trish and :welcome: to the forum :wave:



Hi Deny and thanks for the warm welcome :) :wave:
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Re: I'm new :)

Postby shazq » Tue Aug 07, 2012 5:00 pm

:welcome: to the forum Trisha :wave:
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Re: I'm new :)

Postby Iceskatemum » Tue Aug 07, 2012 6:45 pm

water_sun_sea wrote:Hello Iceskatemum :-D

And thanks for your help ..I have had chronic back pain for 6 yrs now everyday :( as i have not been tested or diagnosed with fibro i am not sure if i am in the right place ..but i have most of the symptoms as fybro ..i have had brain fog / memory loss for much longer than 6 yrs ..how do i get an appointment with the pain clinic ? does the doc send me or will the Rheumy send me there ..so sorry to hear about your chronic back pain ((gentle hugs )) .



thanks for the hugs , with me it was all down to the GP, in our area there are big waiting list for both the Rheumy and pain clinics but I was lucky and in the end didn't have to wait for too long thanks to a thing called the waiting list initiative. Not sure of the surrounding politics but basically if you are on a long NHS list they bring you forward by contracting out your care to a private clinic.

In the first instance I would discuss all potential options with your GP and as others have commented if the first one isn't helpful ask to see someone else from the practice.
Mind you there is nothing to stop you asking the Rheumy to also send you to a pain clinic once you have an appointment with them, as I've found sometime you might get seen sooner from an internal hospital referral .

:goodluck2: :hugs:
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