Hi, I'm back again, now officially dx :-)

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Hi, I'm back again, now officially dx :-)

Postby Beowulf1976 » Sat Oct 20, 2012 7:41 pm

Hi all,

I'm a 36 year old Mum of two, I've been on this forum for quite some time now, but not been on here for a long time, so I thought I would re-introduce myself. :-)

My Daughter, Bronnie was 13 in August and my Son, Euan was 10 in July. :-)

We live with my Fiance Simon in a small village outside Cannock.

We have lots of pets.

I have been very poorly since Christmas 2006, in July 2010 I was diagnosed with ME and earlier this year I was diagnosed with Fibromyalgia too.

I am severely disabled and mostly chair/bed-fast, I only get out of them to go to the toilet. I am also mainly housebound and only leave the house when Simon takes me out in my wheelchair to medical appointments.

I do not believe in self pity and I spend my "downers" proverbially kicking myself up the butt reminding myself that there are ALWAYS people far worse off than me. :-)

I keep myself busy by "socialising" online on forums, Facebook and Google+. However, on really good days I try to be crafty and design and create greetings cards and jewellery. I only make them for friends and family on special occasions though, I simply do not have the health or energy to do more with it. :-)

I think that's enough for now. :-)





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Re: Hi, I'm back again, now officially dx :-)

Postby diane1 » Sat Oct 20, 2012 10:58 pm

Hi Beowolf and :welcome: back

Its great that you came back as the more the merrier. :-D Like you I didnt come on here for a while until I lost my job and then found myself at home alone apart from my lovely dog of a day . I've now made some good friends on here and I know that if I have a problem I know I can turn to my friends on here for support and advice.

I love your upbeat positive attitude against fibro, I to have the same attitude as if you let it fibro can take over your life. Its no good looking back at what you used to do as you probably wont be there ever again and will just pul you down, I like to look at what I can do now that I enjoy and embrace it. I also like to give myself a kick up the :girl_moon: when im feeling really down and like you always remember that ther IS someone somewhere who is worse off than you. I always think of my friend who died suddenly off cancer at 44 with 3 chidren. She was in pain like me but she knew she was also going to die and wouldnt see her children grow up, I on the other hand had the pain etc but knew it wasnt a life threatening condition . Who had the better deal !?

Glad to have you back.

Check out the joke of the day and maisie story of a pregnant dog for a few laughs and jokes please were drying up a bit.

Di
Does an elephant with fibro fog ever forget ?
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Re: Hi, I'm back again, now officially dx :-)

Postby FluppyPuffy » Sun Oct 21, 2012 10:51 am

:welcome: back Beowulf :wave: :wave: It's always nice to hear from peeps who haven't been on for a while :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing:
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Re: Hi, I'm back again, now officially dx :-)

Postby denys » Sun Oct 21, 2012 1:07 pm

Hi Beowulf and :welcome: back :wave:
Denys

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Re: Hi, I'm back again, now officially dx :-)

Postby Beowulf1976 » Mon Jan 21, 2013 12:33 pm

Hi all,

Instead of making a new post, I thought I would just post in this one. :)

I am back yet again, with a few questions to ask, and problems to solve. I thought I would become a bit more regular instead of just coming in and posting what I want, because I feel this would be rude and unfair on you guys if I just came along and posted my queries/problems and didn't bother with input elsewhere.

I still live with my Fiancé and children and pets, but Simon (my Fiancé) has downsized a lot on his pets due to the amount of time that he requires to look after me these days, so he doesn't have the time that his pets deserve.

I am really struggling along at the moment, but I am slowly being sorted and hopefully things will fall into place eventually.

However, I still have my fighting attitude and I plan to carry on fighting and stay positive throughout this period. :)

I look forward to interacting with you all again. :)

Love and hugs,


Carol x
"That is not my Cow!"....."Where is my Cow?!"

I am me, plain and simple in more than one sense of the words! ;)
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Re: Hi, I'm back again, now officially dx :-)

Postby bekindtoyou » Tue Feb 05, 2013 8:18 pm

Hi hope your going on well. Keep fighting... I notice you are from the Midlands who was your consultant ? Im looking to be referred to a rheumo in the midlands and notice you have both a diagnosis of CFS and Fibro, I have CFS and am just being referred about poss fibro as I have a problem with my site, did you have a good consultation?

Many thanks :-)

Kitt
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Re: Hi, I'm back again, now officially dx :-)

Postby Beowulf1976 » Tue Feb 05, 2013 8:50 pm

Hi there,

It wasn't actually rheumy guy that diagnosed Fibromyalgia, it was my doctor.

When I was referred to rheumatology I saw a chap beginning with M, possibly Mulherne? at Cannock Hospital. He said I had too many symptoms for fibro! Stupid man! He obviously wasn't very good with fibro back then! (2008/9)

I've not had much luck with dx from consultants, they all seem reluctant to admit thats what it is!



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"That is not my Cow!"....."Where is my Cow?!"

I am me, plain and simple in more than one sense of the words! ;)
Beowulf1976
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Location: Cannock, Staffs

Re: Hi, I'm back again, now officially dx :-)

Postby bekindtoyou » Wed Feb 06, 2013 4:59 pm

Oh i see, so the GP can diagnose it too, my Gp suggests there is no difference in fibro and cfs (M. E) and was reluctant to refer me to a rheumo as I already have a CFS diagnosis from years ago. As my sight is so bad I have pointed out there is little talk about sight loss with CFS but there seems a lot with fibromyalgia. so they conceded.
My ophthalmic tests are all clear too.

I am hoping there is some understanding from the rheumo. :fingerscrossed:

Thanks anyway and all of the best :-)
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Re: Hi, I'm back again, now officially dx :-)

Postby Beowulf1976 » Fri Dec 13, 2013 6:31 pm

kitt wrote:Oh i see, so the GP can diagnose it too, my Gp suggests there is no difference in fibro and cfs (M. E) and was reluctant to refer me to a rheumo as I already have a CFS diagnosis from years ago. As my sight is so bad I have pointed out there is little talk about sight loss with CFS but there seems a lot with fibromyalgia. so they conceded.
My ophthalmic tests are all clear too.

I am hoping there is some understanding from the rheumo. :fingerscrossed:

Thanks anyway and all of the best :-)


Anyone who suggests that ME and Fibro are the same wants shooting in the head lol

I was on a forum, for "cfs/me" that used to say that fibromyalgia was just the collective term used for the pain associated with ME, you can imagine how angrily I argued that it was not true!

Incidentally I am one of those who refuses to call it "CFS" because it is NOT just about chronic fatigue.

And, I have recently been diagnosed with premature presbyopia, something that I believe has been caused by, or is a symptom of fibromyalgia.



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"That is not my Cow!"....."Where is my Cow?!"

I am me, plain and simple in more than one sense of the words! ;)
Beowulf1976
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Location: Cannock, Staffs

Re: Hi, I'm back again, now officially dx :-)

Postby FluppyPuffy » Fri Dec 13, 2013 8:15 pm

Just been reading a little about premature presbyopia, and there are some illnesses and conditions that are thought to be risk factors, as well as certain meds. Being farsighted or having diabetes, multiple sclerosis or cardiovascular diseases, can increase the risk of premature presbyopia. Prescription and nonprescription drugs that can decrease the focusing ability of your eye include antidepressants, antihistamines and diuretics.

I have both FM and CFS/ME and I know from how I feel when one is flaring compared to when the other flares that they are not one and the same thing. The differences may only be subtle at times, but they are still there. And it very definitely isn't just about chronic fatigue, there are differences in the pain I experience, depending on which one has the upperhand at the time, and since CFS/ME made it's presence felt, I tend to experience more throat soreness and that awful, heavy feeling that grabs you when flu is bubbling away.
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