New to all this

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New to all this

Postby sterlingarcher » Wed Nov 28, 2012 12:32 pm

Hi everyone,

I'm new to the forum and new to FM. I've been going to countless doctors and specialists for years with no help. I've been to dozens of GPs, neurology, cardiology, gastroenterology, nephrology, urology, physios and even chiropractors and got nowhere. I thought I was the world's most unlucky guy who was suffering from countless medical conditions. It wasn't until I finally stumbled upon a competent GP who was the first to suggest that I didn't have many conditions and was suffering from a syndrome. One quick referral and a trip to a rheumatologist last month confirmed I had FM (and scoliosis, as it happened. Good job missing that, other doctor.). I've been shaken by the level of incompetence and lack of care I've experienced from so many doctors and specialists that I've lost count. I'd been in and out of the ER so many times and no one seemed to have any answers or interest in my problems.

On one hand, I'm glad to have a diagnoses. This thing finally has a name and I can finally begin to educate myself and understand what's happening. Knowledge is power, as they say. On the other hand, I'm pretty devastated to be told that I'm likely to be like this for life. I know there's various medications that can take the edge off some symptoms, but I don't seem to tolerate medications very well and suffer terrible side effects from a lot of them. I'm not looking forward to that road.

I'm glad I've found a place with like-minded souls who understand. If there's one thing I've noticed through my years of suffering, it's that if you don't look outwardly sick, people think you're faking. As soon as they catch you smiling or seemingly "having a good time", they think they've rumbled your scam. It's good that people here understand what I'm going through.

I hope I can contribute here and learn from the wisdom of others.
sterlingarcher
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Re: New to all this

Postby FluppyPuffy » Wed Nov 28, 2012 1:39 pm

:welcome: to the forum sterlingarcher :wave: :wave:

The trials and tribblations you've gone thru to get a name for your various problems is sadly one that happens far too often :( :( :( GPs are becoming more aware of FM, but it is taking so long due to the vast numbers of dinosaurs still roaming the corridors the the NHS :swear1: :facepalm:

And even when you find out what to call your condition, it's not straightforward :-? :-? There is so much to find out out, take in and get used to that it takes time to find your way there. And the journey there can be a very bumpy one at times :( :( :( Now you've found us tho, we'll try to help you along the way :clap: :clap: :clap:

Altho it is with us for the long run, it is still possible to have a life with FM. Some peeps have found a mix of meds and treatments that controls their FM well, and can lead a fairly active life. Others have found that theirs has gone into a dormant~like state, so they have been able to carry on pretty much as normal at times.

Intolerances/sensitivities to things like meds are quite common in FMers, and what may help one of us may not do so for another :facepalm: :facepalm: :facepalm: And unfortunately, the only way you'll know if something helps is to try it :facepalm: :facepalm:

There's lots of info and advice on here, so have a bit of a read as you find your way around the boards. There tends to be someone close~by a fair amount of the time who will to share their thoughts and experiences about things you find yourself wondering about and wanting to know :wave: :wave: :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: New to all this

Postby shazq » Wed Nov 28, 2012 6:33 pm

:welcome: to the forum sterlingarcher :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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