Hi im new and can you please help me with info :)

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Hi im new and can you please help me with info :)

Postby bekindtoyou » Wed Jan 16, 2013 6:17 pm

Hi to everyone and does anyone have the same as me?????

I have had really dodgy eye sight for a year now, my central vision fades when I try to focus, reading writing etc, like when I am doing this so its all in bite size pieces. I cant sustain focusing for longer than a few minutes before it fades so my life is a little restricted as you can imagine. I had lots of severe migraine symptoms, (a lot which seem to overlap with symptoms on this site) I've had an MRI Scan which revealed nothing. So I have been treated for Migraine and have been told I have an unusual form, however due to lots of other symptoms pain twitching tremors spasms the neurologist has asked a rheumatologist to confirm if I have fibromyalgia also.

That is what brought me to you guys to learn more and I have really noted the visual disturbances people have which makes me wonder if my sight is more related to this.

My ophthalmology has revealed nothing.I also find that focusing makes my legs ache and spasm and makes me soooo tired at times.

I am really alone with this eye problem and have linked up to the visually impaired center who will train me on using software that does not need constant vision.
Does anyone else have this prob? does anyone have any ideas?

On a positive note I am much better from an energy point of view and can walk further now and enjoy being in company. Its good to read your posts and I wish you all well :-D
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Re: Hi im new and can you please help me with info :)

Postby shazq » Wed Jan 16, 2013 6:55 pm

Hi Kit :welcome: to the forum

A lot of us do complain about our eyes especially since having fibro but because there is lack of research there is no proof that fibro is 100% the cause of it as fibro does not show up in any tests but if you look at the amount of people who suffer with their eyes there has to be some sort of link.

I suffer migraines & went through many medications but could not get them under control until my gp sent me to see a neuro, i have to take meds every day now but still get the odd ones.

I find my eyes get very tired and lose focus then go blurry, i cant read for very long periods anymore. I get dizzy spells & have lots of headaches. Since having fibro i have had to have new stronger reading glasses every yr.

Hope you get some answers soon. :goodluck1:
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Re: Hi im new and can you please help me with info :)

Postby bekindtoyou » Wed Jan 16, 2013 8:07 pm

Thanks I think I am really on the right track now having read more of the site, I am amazed that my symptoms have not been noted sooner as poss fibro, cheers anyway and keep warm :-)
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Re: Hi im new and can you please help me with info :)

Postby maxtomads » Wed Jan 16, 2013 9:39 pm

My optician told me that eye muscles are affected by fibro the same way as other muscles - quickly fatigued, leading to problems focussing after short times.
Hope this helps

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Re: Hi im new and can you please help me with info :)

Postby loubie » Wed Jan 16, 2013 11:12 pm

hi kit
welcome to the forum :-D

as shaz said a lot of us suffer with eye problems
me included and migraine is driving me nuts at the minuet :roll:
i have to put my 8-) on if we are out at night in the car
and even in the house to watch the tv or on here sometimes :crazy:

try and have a good read round the forum, lots of info on here.
welcome again, good to have you with us :wave:
loubie xx

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Re: Hi im new and can you please help me with info :)

Postby FluppyPuffy » Wed Jan 16, 2013 11:45 pm

:welcome: kitt :wave: :wave: Nice to have you with us, just wish it was under nicer circumstances.

I'm another that suffers with focussing, tired eyes and vision going hazy if I look or concentrate on something for more than a few minutes at a time. I'm also a fully paid~up member of the headache and migraine club as well :facepalm: :facepalm: The migraines bring the delights of flashing lights/auras with them as well as the pain, nausea and :puke: :puke: :puke: :puke:

WRT symptoms not being picked up before as possibly FM, the condition is a collections of symptoms and associated conditions, many of which are shared with a number of other illnesses/problems. Plus not everyone displays all the symptoms from the start, and FM is also good at mimicking other conditions, so depending on how your possible symptoms have revealed themselves, the connection between things may not have been that clear until other things started affecting you.

With all the info and advice on here, hopefully it help you with finding more out about FM and ultimately getting some answers about what is happening health~wise :fingerscrossed: :fingerscrossed: :fingerscrossed:
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Re: Hi im new and can you please help me with info :)

Postby Iceskatemum » Thu Jan 17, 2013 1:03 am

Hi there ,soory to hear about your eyes . I 'm short sighted and my vision is made worse by the fibro . I have used vari focals for years but after getting new ones last year I just couldn't seem to come to terms with them as I couldn't get focussed , had blurry vision etc. then had very dry eyes & ulcerated cornea which resulted in an emergency trip to the EYE A&E after a visit to the Optician

Like Max has already said , I was told by the eye consultant that all of my symptoms were caused by either the meds or the Fibro itself. Seems all the band of muscle that goes around our eyes and in the lens can be effected by the Fibro and get tired very easily or not work quite as fast. I used to enjoy reading but now find it quite frustrating , the only good thing is that I was bought a kindle and at least with that you can increase the text size if needed.

If you haven't already been checked out by an opticion or eye consultant I would recommend you do that first and just mention what you are thinking it might be . You never know someone might pick up on it.

good luck
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Re: Hi im new and can you please help me with info :)

Postby Whiplashsal » Thu Jan 17, 2013 2:33 am

I get a lot of doable vision due to eye fatigue! I have been under the care of a specialist at hospital as it was causing headaches, nausea and further tiredness! They told me that the eyes were fatigued an the outer muscles were working ever so slowly better than the inner muscles which was drawing my eyes apart! They were considering using botox injections to weaken the stronger ones to eliminate the pull causing the double vision! Eek! Its all on hold atm to see if some eye exercises help strengthen the inners enough to not have the botox as it can cause me to go crosseyed if not precise enough, and i have enough problems without that!!!! Hope the software is of great benefit to you! Take care
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Re: Hi im new and can you please help me with info :)

Postby denys » Thu Jan 17, 2013 2:03 pm

Hi Kitt and :welcome: to the forum :wave: I suffer and have in fact got an appointment tomorrow for another eye test as I am struggling with my vision it does seem to be a fibro complication and is understandable as the eye has a number of muscles
Denys

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Re: Hi im new and can you please help me with info :)

Postby bekindtoyou » Thu Jan 17, 2013 3:51 pm

Oh my word that is amazing how many people are experiencing similar I am learning all the way. I have said a few times to the neuro ( who is a headache neuro) that my muscles are tugging in my eyes and the head pain ie migraine seems a separate thing.

Thanks soooo much I feel a sense of relief that i am not alone in all this.... I am returning to the opthamologist soon to get field test results so will press him for more info and am awaiting the rheumotologist appoint. I have better questions to ask now.

Has anyone had sore skin like pain in the cellulite of the legs, mine has been to sore to touch or wear jeans sometimes?

Im taking amytriptiline at the mo and i think its helping :-D

I have just found an app for my phone that texts and emails for me so it cuts down the amount of looking its brill :-D

Cheers thanks looooads for replying
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Re: Hi im new and can you please help me with info :)

Postby bekindtoyou » Thu Jan 17, 2013 3:52 pm

as u can see im still getting the hang of using this wanted to make the font bigger and put it in bold lol
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Re: Hi im new and can you please help me with info :)

Postby FluppyPuffy » Thu Jan 17, 2013 4:32 pm

I saw the size and bold markers kitt, so I've gone in and edited it to increase the font size :-D :-D :-D
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