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Hi

Postby Angieuk » Sun Jan 27, 2013 9:41 am

I have had pain for over a year now and a lot of stiffness. It feels like I have done a really intense workout and every movement I make hurts. The pain isn't really the sort I would take pain meds for its more an achy tiring pain. I also get shooting pains in various parts of my body. I have had lots of blood tests including tests for inflammation and others which are more in depth and take weeks to come back. All are normal. I have not had tender point tests but feel like my body hurts to press in loads of places but I am not sure if they are the fibro points.

My GP says its fibro but doesn't want to send me to a specialist and doesn't want me to go to fibro support groups. She thinks because I have a positive attitude and don't want any meds that its best to continue as I am. This is fine but I'm not sure i even have fibro as I don't know anyone else with it.

I took prescribed Valium for 36 years and came off them 6 years ago. I was so ill for years and had to use a disabled walker for a year. It was a horrendous experience but I survived it. I can't believe what I am going through now can be linked to the withdrawal apart from the trauma that I suffered may have caused fibro.

I suffer from atypical Menieres, vulvodynia, migraines monthly, IBS, GERD and other bits and pieces. I take 10mg propranolol at night but take no other medication.

I would just like to have an opinion as to whether this sounds like fibro and if its not, what on earth it could be.
Last edited by FluppyPuffy on Sun Jan 27, 2013 5:36 pm, edited 1 time in total.
Reason: Made paragraphs clearer for easier reading.
Angieuk
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Re: Hi

Postby denys » Sun Jan 27, 2013 3:36 pm

If your GP is confident it is fibro then maybe you need to talk to her again and say you arent convinced, a referral to a rhuematologist may help you to accept what she is saying. Well done if you can manage without meds but why no support groups they are there to support not turn a positive attitude into a negative one :?: :?: :?: :?: :?:

We try to stay as positive as we can on here, learning to cope with different problems that life throws and to come out the other side with a smile :-D :-D :-D So :welcome: to our forum :wave: we will try to help as much as we can
Denys

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Re: Hi

Postby FluppyPuffy » Sun Jan 27, 2013 6:00 pm

:welcome: to our little FibroFamily Angie :wave: :wave: :wave:

It's not unusual for a GP to dx a patient with FM, which may be why she hasn't sent you to see a specialist, but if you're unsure about the dx you've been given, explain this to her and do as Denys has suggested about seeing a rheumatologist to see if it will help with accepting things.

I'm a bit confused about the not wanting you to go to any support groups thing :-? :-? :-? They are there to do exactly what they are called.....support members thru the rubbish that tags along with a condition like FM, help, advise and inform members about various areas, aspects, treatments etc that are being used/researched. Now you've found us tho, we'll do what we can to help, advise, and support you thru things. We try to bring positiveness and a bit of :crazy: :crazy: :crazy: :crazy: to the place as sometimes a bit of :lol: :lol: :lol: :lol: can make a difference to how things seem :mrgreen: :mrgreen: :mrgreen:

I wouldn't like to say whether what you're experiencing is FM or something else, esp with you not being certain about the dx you've been given. Whilst the things you have described could be FM related, they could also relate to several other potential conditions as they and FM share a lot of symptoms, and it is usually when all these other possibilities have been investigated and excluded that an FM dx is arrived at.

Anything else that springs to mind that you're wondering about, just ask about it and we'll try to help you with it :wave: :wave: :wave:
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Re: Hi

Postby Angieuk » Sun Jan 27, 2013 9:05 pm

Hi there thank you so much for the replies its nice to have feedback from people who know about fibro.
I think my doc advised me against support groups because she said she wants me to just be positive and concentrate on doing as many normal things as I can.
That's fine but I need to ask questions to people who know and have the condition.
I run a support group for people wishing to come off benzodiazepines so I know how good support groups are. I also worked for a mental health charity for twenty years and ran groups for people with anxiety.
Information gives people choice.
As for whether I have fibro or not - well my doc has run loads of blood tests and said because they are all normal that it has to be fibro. She hasn't mentioned me going to see a specialist. I think she knows I won't take meds so maybe doesn't see the point. I'm not really sure. She just said if it was anything other than fibro something would have shown up in the blood tests.
Thanks Angie
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Re: Hi

Postby shazq » Tue Jan 29, 2013 7:48 pm

:welcome: to the forum Angie :wave:
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