Diagnosed with M.E in 2007 & now told I have Fibro aswell

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Diagnosed with M.E in 2007 & now told I have Fibro aswell

Postby dippyhippy » Sun Feb 24, 2013 8:23 pm

First of all Hi everyone Im Sue I am new. :-D

Here goes. I am a very unwell person :cry: I was born with knock knees and flat feet when born and had numerous problems with walking and posture, When 12 I was bullied and had my chair pulled away from me when I sat down and when I landed on the floor I cracked my cocyx, this led to a bone infection, also from 12 - 18 I had on off tonsilitis, which got so bad they had to be removed, when I was 18 I was involved in a car accident, which I never really got over mentally or physically, then at 22 I had a mental and physical breakdown, then at 26 I was bitten by a horefly, I was on antibiotics for 3 months and then bed bound and in a lot of pain and was not able to do anything for myself, recovery was slow but I never fully recovered or got back to how I use to be physically or mentally,then at 28 I was diagnosed with scolliosis, C shaped curve in my spine and S shape curve in my neck, but the Chiropractor said I was not just suffering with scolliosis, it seemed to him I had M.E, so I pushed to see a specialist, eventually in 2007 at 31 I was diagnosed with M.E by a specialist at the Southend University Hospital, I have know found a Doctor that is very understanding and believes M.E, but in 2012 he told me my pain I have is due to Fibromyalgia and hes treating me with Velafaxine and Pregablin which is helping much more than recent medications I have tried, I quizzed him do I suffer with M.E and Fibromylagia, its more aless the same thing as long as how I am treating you works, for you, thats the main thing and what hes doing for me i.e accupunture and meds is working very well.

I have been told by a friend you can have both conditions, is this true can I have fibromylagia aswell as M.E? :?: :-?

I hope this hasnt been to long winded :sleep: and hope someone can shed some light, as some say no some say yes and some say its the same, I am now totally confused found this site found this forum and hope I get a reply. :-D
dippyhippy
UKFM Newbie
 
Posts: 1
Joined: Sun Feb 24, 2013 7:24 pm

Re: Diagnosed with M.E in 2007 & now told I have Fibro aswel

Postby FluppyPuffy » Sun Feb 24, 2013 9:16 pm

:wave: :wave: and :welcome: to the forum Sue :cow-wave: :cow-wave:

I've moved you into here with this being your intro post, and I think you'll definitely get a reply or 3 :mrgreen: :mrgreen: :mrgreen:

I have both FM and CFS/ME, for me the FM dx came first in 2004 and the CFS/ME one came along last year. From the way I have been treated, to me they are 2 separate, associated conditions, which as well as sharing a number of symptoms also have differences between them.

I seem to have some differences when one of them flares up compared to the other one. When the CFS/ME is the prominent one, as well as the obvious thing of the fatigue being so overwhelming, there is an additional heaviness added to the pain I have and the coldy~fluey symptoms I have are much more apparent. The fogginess also gets turned up as well.

When FM is the prominent condition, the pain and stiffness shoot up the scale but without the extra heaviness, my sleep is even more disrupted, whereas with the CFS/ME being in charge, I do tend to sleep more as well as the sleep I get being much much heavier. Altho the fog is always there, I seem to have more migraines when FM takes the lead.

I've only become aware of these subtle differences because I am currently having some sessions with the CFS Service in my area, and they also approach it as if it is a separate condition to FM.

How you see them may depend on how they affect you, the approach your GP etc takes/uses as there is just as much info to support each idea/approach. The only way we'll definitely know what the answer is, is when research either proves or disproves one of them.

Hope my wafflings have made something approaching sense to you, a sleepless night never really helps with the making sense side of things :oops: :oops: :oops: :oops:

Now you've joined us, have a look and a read as you find your way around the boards. With the info and advice on here, you may find some useful bits that help you :bear-dancing: :bear-dancing: :bear-dancing:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Diagnosed with M.E in 2007 & now told I have Fibro aswel

Postby shazq » Mon Feb 25, 2013 5:38 pm

:welcome: to the forum Sue. :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
User avatar
shazq
UKFM Veteran
 
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.

Diagnosed with M.E in 2007 & now told I have Fibro aswell

Postby helen virgo » Tue Feb 26, 2013 1:40 pm

Welcome to the forum Sue, hope you find it interesting. I too have Fibro and ME/CFS, for me the main differences come when I have a flareup, for instance a Fibro flare up means more pain and stiffness etc, but an ME flare up is absolutely crippling fatigue and feeling so heavy and cannot muster the energy to do anything. The best non medicated treatment is learning to pace but its hard to do. Hugs x
Helen x

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia
helen virgo
UKFM Member
 
Posts: 305
Joined: Mon Jan 21, 2008 12:31 am


Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 3 guests