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The UKFibromyalgia Forums • View topic - New to Forum and feeling very down sorry



New to Forum and feeling very down sorry

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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New to Forum and feeling very down sorry

Postby Freespirit » Sat Mar 02, 2013 4:49 pm

Hi all. I just wrot out my post but it was so negative I deleted it :( after yrs of pain my Doctore told me she feels I have Fibromyalgia . She sent me home with printed info and booked blood tests. I have no idea what happens next. I just want this pain and tiredness to go . See its still negative . Be leave it or not I. Actuly Normaly a happy positive mum and volunteer :crazy:
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Re: New to Forum and feeling very down sorry

Postby happybean » Sat Mar 02, 2013 5:47 pm

Hi Freespirit
:welcome: to the forum. I'm sorry to hear you are feeling so down. The fibromyalgia itself can make you feel like that all on its own. Every day is different and you might just find you feel a little better tomorrow
At least you are getting somewhere near to a diagnosis, and when you know what you're dealing with, you can treat it better and get lots of help and advice from forums like these :-)
Usually, when bloods come back negative, you will probably be referred to a rheumatologist or neurologist, who will advise which meds and things might be helpful for you for fibro. (if they test positive for something like thyroid problems, then they will probably treat you for that first) There are also some ME/CFS/FM programmes you can go on, depending where you live.
You could also see if there is a support group in your area too.
You aren't alone, Freespirit and never say sorry for venting. We've all been there! :hugs:
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Re: New to Forum and feeling very down sorry

Postby Freespirit » Sat Mar 02, 2013 8:35 pm

Hi thank you for reply. Sadly this is my 4th or 5th set of blood tests in the past 18mth. I do have an under active Thyroid . The tests are more to see if my pills are working . My doctor seems positive it is fibromyalgia as pains and illness where ongoing before :( . The Tests for points on back and such are scaring me. Do they still do this
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Re: New to Forum and feeling very down sorry

Postby shazq » Sat Mar 02, 2013 9:12 pm

:welcome: to the forum freespirit.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: New to Forum and feeling very down sorry

Postby FluppyPuffy » Sat Mar 02, 2013 9:41 pm

:welcome: to the forum Freespirit :cow-wave: :cow-wave:

Sorry to hear how you're feeling at the moment, as Happybean has said, a condition like FM can and does drag us down at times :( :( :( Hopefully tho, now you've found us, and as you find out more about how you are affected, you'll find ways to make things a little more comfortable and manageable.

It sounds like you could have a decent GP, which is always a positive. As for what could happen next, that depends on the results of your blood tests. If your results come back within normal/expected range then there are a couple of things that could happen. Your GP may decide to refer you to a rheumatologist or other suitable specialist/consultant for diagnosis/confirmation of diagnosis. Alternatively, your GP may feel able to give you a dx themselves as there seems to be a growing number of GPs doing this.

The Tender Point test isn't always carried out, it all depends on the doc that you see as to whether they feel it is necessary to do so. Try not to worry about that particular point at the moment as it will only make you feel even worse as the slightest bit of stress, worry, fear that we experience makes FM jump all over it and us :facepalm: :facepalm: :facepalm:

Have a look and a read as you find your way around, there is a lot of info and advice across the boards as well as support, and you may come across some suggestions to try and make things a little more bearable for you.

Anything you want to know about, all you need to do is ask and we'll try to help you with it :cow-wave: :cow-wave: :cow-wave:


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Re: New to Forum and feeling very down sorry

Postby Freespirit » Sun Mar 03, 2013 8:14 pm

My Doc was very good. She is one of the Top in the practice. I normally see another one but she is on maternity . Might have been a good thing for me.
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