[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 112: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4780: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4782: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4783: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4784: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
The UKFibromyalgia Forums • View topic - Introduce yourself ((xx))



Introduce yourself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Introduce yourself ((xx))

Postby Mozza » Tue Apr 17, 2012 10:25 pm

Hi holly, one of my giveaways to fibro was being unable to stand the pain of new tattoos, and after getting them for ten years i was quite alarmed. My skin started swelling, not the normal but making the area look deformed and lasted for a good few weeks. Even cheating with emlar didn't work :-( since being diagnosed i have only had a small flower done on my hand. I have a good majority of my body done and another "strange" occurrence was areas that had been inked would raise up and become really itchy and sore. I don't think it will stop me but it has delayed work that i want finished. It seems never ending re symptoms and strange bodily happenings but i can still smile :-)) xxm
Mozza
UKFM Member
 
Posts: 219
Joined: Tue Jan 24, 2012 8:51 am
Location: Kilmarnock

Re: Introduce yourself ((xx))

Postby bluetascha » Wed Apr 18, 2012 8:44 pm

Good Evening!

And I have been wondering why one of my tattoos has raised and become sore and itchy! Its the one on my shoulder. The one on my ankle has been fine so far. I didnt even think that had anything to do with my fibro???!! I thought it was some allergic reaction although I have had the tattoo over 15 years now. My skin has generally been quite itchy, but again I haven't put that down to the fibro ....????

Haven't really introduced myself properly yet, so guess I should. I was diagnosed with fibro in March this year after 18 months of not knowing what was going on. At same time have been diagnosed with arthritis in my toe joints and fallen arches. I have suffered with IBS since 2005 and have had Raynauds' as long as I can remember. I have two children and a german shepherd. Have been off work since Jan this year and will be expected to go back after my next appointment with Occ Health on 22nd May! Very scary prospect as I am still in the 'trial and error' phase of medication. My insomnia seems to be getting worse, as do my days of total exhaustion! Kids and dog keep me going though, just about. Single parent, so there is nobody else to run the house!

Worse thing about this illness ?..... not knowing what pain you will wake with or whether you will be able to get anything done that day. Second worse thing? .... nobody seems to understand it if they havent experienced it first hand and the doctors seem to be just as confused in their understanding.

I'm glad for support like this site. After reading through all the posts and comments, you don't feel so alone!

Anyone else from Dorset out there???

Tasha xxxxx
bluetascha
UKFM Newbie
 
Posts: 2
Joined: Wed Mar 21, 2012 9:54 am

Re: Introduce yourself ((xx))

Postby denys » Wed Apr 18, 2012 10:02 pm

Hi Newbies and :welcome: to the forum :wave:
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Introduce yourself ((xx))

Postby FluppyPuffy » Thu Apr 19, 2012 3:32 pm

WOW!!! So many new recruits, nice to have you with us, just wish it was under better circumstances :welcome: :welcome: :welcome:

There is a lot of info and advice on here, so have a look round and see if there is anything you might find useful or helpful. We try to offer support for each other during those darker days that FM likes us to have, and love to hear when someone has some good news so we can join in with the :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing:

If there's anything you'd like to know, all you need to do is ask, as we're all pretty friendly on here, esp when we're fed [chocolate] [chocolate] [chocolate] [chocolate] [chocolate] And will try to help you with things :bear-dancing: :bear-dancing: :bear-dancing:


If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Introduce yourself ((xx))

Postby kate2962 » Thu Apr 19, 2012 6:31 pm

Hi My name is Catherine and I am 49 I was diagnosed yesterday and up until then I had never heard of Fibromyalgia but after reading all the info the rhumatologist gave me I can see I have been suffering with this for years as I have so many of the problems associated with Fibromyalgia and a lot of them the GP has briushed off as 'normal' over the years I now know differently.

I am married and have 3 adult sons and a dog.

I am so pleased to have found this forum as I hope to make lots of friends who know I am not going mad and also to find out more about this syndrome

thanks to anyone reading this

xx
kate2962
UKFM Newbie
 
Posts: 8
Joined: Wed Apr 18, 2012 10:09 pm

Re: Introduce yourself ((xx))

Postby pauline » Thu Apr 19, 2012 6:47 pm

Hi Catherine :lol: Welcome. You will find oodles of helpfull info here, just look through the topics at your leisure, unload your thoughts or ask any questions you feel you need to ask. There is always someone who can help, and if not we will do our best to point you in the right direction. :arrow: Pauline
pauline
UKFM Member
 
Posts: 351
Joined: Tue Aug 09, 2005 6:58 am
Location: lancashire

Re: Introduce yourself ((xx))

Postby FluppyPuffy » Thu Apr 19, 2012 6:49 pm

:wave: :wave: Catherine and :welcome: to the forum :bear-dancing: :bear-dancing: :bear-dancing:

While you may not be going :crazy: :crazy: :crazy: :crazy: :crazy: at the moment, after you've been on here for a while you will be completely :crazy: :crazy: :crazy: as it helps you get thru the day :bear-dancing: :bear-dancing: :bear-dancing:

There's a lot of info and advice on here, so have a look round and you may find some answers to questions that are whirling round your head. What you've discovered about suffering with various bits of it over time is something that has happened to a lot of us, and only when you find out about FM do these things start to make sense.

Just ask about anything you're wondering about, or want to know, we're nice and friendly and we'll try to help you with an answer :bear-dancing: :bear-dancing: :bear-dancing:

What sort of doglet are you owned by??


If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Introduce yourself ((xx))

Postby diane1 » Thu Apr 19, 2012 9:34 pm

Hi Catherine :wave:

Welcome to the mad house :crazy: :shooting: :crazy: !

Its a great place to vent your anger, get advice and meet friends who know exactly what your going through. You might not sign on all the time but its always here like a best friend.

If your newly diagnosed theres loads for you to find out but check out the post " one for non believers" its a great posting that explains to others just what its like daily living with fibro .

Good Luck and take care.

Di :-) :bear-dancing: :penguin: :welcome: :goodluck2:
Does an elephant with fibro fog ever forget ?
User avatar
diane1
UKFM Member
 
Posts: 508
Joined: Mon Jan 18, 2010 11:31 am
Location: wirral

Re: Introduce yourself ((xx))

Postby TracyH » Thu Apr 19, 2012 10:15 pm

HI

me again, after reading quiet a few posts on here it seems some people are worse than others. I did read in a pamphlet that Fibro is a condition that does not deteriorate....really??? is this true??? it seems since I was diagnosed in Aug 09 I have got worse or seem to have many more symptoms of Fibro and more pain.

Help please!!!
TracyH
UKFM Member
 
Posts: 29
Joined: Mon Apr 16, 2012 11:57 am

Re: Introduce yourself ((xx))

Postby diane1 » Fri Apr 20, 2012 10:59 am

Hi

Fibro does deteriorate if you have had it for 5 years or more. I recently had a medical report completed by two different fibro specialists for 2 different things and they stated in the reports that my medical records showed i'd had symptoms for 14 years but was only actually diagnosed 7 years ago. Over that period I have developed more symptoms including increased pain, fibro fog, IBS amongst other things. I had an accident 2 years ago in a petrol station and my condition got so much worse i ended up loosing my job . The specialist said that that the trauma of the accident had brought on my fibro deterioration by another 5 years.

My specialist told me that they still dont fully understand fibro or why we get it but it seems some people get some symptoms then they clear up so the general rule of thumb is if you've had the symptoms for 4-5 years you've got it for life. Another thing is that it appears that alot of people with fibeo have close family members with it and also arthritis. One theory is its something your born with like arthritis and its an accident or traumatic event that brings on the symptoms. Until then you live with it with no symptoms. We can only hope that one day they will know for sure.

I know it seems all doom and gloom but at the end of the day although its hard to adjust to and the pain at times is unbearable its not life threatening, so we will see our children grow up etc. I had a best friend who died of cancer a few years ago leaving three small children and I know she'd have traded her cancer for fibro at the drop of a hat. So I always think of her at my lowest points.

On a positive front there are lots of people out there to support and help you ( us here at the mad house for one) it takes some getting used to but you will eventually get there. I still manage to get away it just takes longer to arrange as I cant walk far so nee a wheel chair in the airport etc. That was one thing I found hard having to accept that I needed to use wheelchairs and a walking stick when i'm only in my 40's but at least it means you can still do things.

When I see my Dr I say its the guineapig here again as i've tried all of the drugs out there. I managed to work with the condition for 12 years so couldnt take any that made me drowsy etc, but as the pain etc increased the ones I was on didnt help but having now left work being drowsy doesnt matter as much. So now i'm back to retrying all the old tablets to find one that will help without to many side effects.

Good Luck yourself and remember were here for you and dont push yourself .

:goodluck2:
Does an elephant with fibro fog ever forget ?
User avatar
diane1
UKFM Member
 
Posts: 508
Joined: Mon Jan 18, 2010 11:31 am
Location: wirral

Re: Introduce yourself ((xx))

Postby lillykelly » Fri Apr 20, 2012 12:51 pm

Hi All,
I have never done anything like this before and don't really no what to put , So here gone's.
I'm 33 and have had Fibro for what feels like forever. I have 2 lovely children and a fab husband. I am currently going through an an appeal which is not going great.
I am finding it very hard to cope with the everyday pain and depression, let alone the pressure of the appeal.

:crazy:
lillykelly
UKFM Newbie
 
Posts: 2
Joined: Mon Jan 23, 2012 2:55 pm

Re: Introduce yourself ((xx))

Postby Plain Jane » Fri Apr 20, 2012 1:30 pm

Hello everybody, my name is Janice but to my friends I'm known as Jan. I'm married to Mike, have 3 grown children with kids of their own - love 'em all to bits - and just the one dog, Roxy. I was diagnosed with Rheumatoid in the early 80's, which went into remission after about 12 years and remains so. However, I now have osteoarthitis in my spine, hand, hips and feet. About 3 years ago I was told I have FM too! I have also suffered from a GP who doesn't believe in FM, when a rheumatologist diagnosed it I told my GP that I'd looked it up online to find out more about it. He wrote this on my medical records "Has been surfing the internet...thinks she has fibromyalgia"; when I tackled him about it he told me FM was just a label!!! I only wish it was, fortunately he's retired and I now have a much more sympathetic GP.

I do work more or less full time but I'm lucky to work from home so there's no daily commute and no struggling with trains, tubes and buses as I did for a number of years before I was diagnosed.

I like to knit and do so most evenings while watching TV unless I'm too tired. I also like to make greeting cards for friends and family.

I joined Weight Watchers in January this year - no it's not a New Year Resolution - and it has worked well for me. I've lost just over a stone even without being able to do lots of exercise and having fallen off the diet wagon for a couple of weeks I'm now back on track so I'm aiming to lose another 2 stone by September. I've also taken up a challenge to do 30 more minutes of exercise a day. As I'd given up on exercise in recent years I'm starting slowly with stretching.

Good to be part of this forum, looking forward to joining in.
Plain Jane
UKFM Member
 
Posts: 13
Joined: Fri Apr 20, 2012 9:15 am

Re: Introduce yourself ((xx))

Postby FluppyPuffy » Fri Apr 20, 2012 1:43 pm



If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Introduce yourself ((xx))

Postby FluppyPuffy » Fri Apr 20, 2012 1:52 pm

:wave: :wave: lillykelly and :welcome: to the forum :bear-dancing: :bear-dancing: :bear-dancing:

There is a lot of info and advice on here, incl lots about appeals etc as there are a number of members at various stages of the system :facepalm: :facepalm: What benefit decision are you appealing against???

The pain and depression that comes as part of the package are draining, we all understand how this condition makes you feel :grouphug: :grouphug: :grouphug:

Anything you want to know about, just ask and we'll try to help you with it :bear-dancing: :bear-dancing: :bear-dancing:


If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Introduce yourself ((xx))

Postby FluppyPuffy » Fri Apr 20, 2012 2:15 pm

:wave: :wave: Jan and :welcome: to the forum :bear-dancing: :bear-dancing:

:woot: :woot: Congratulations on managing to lose weight, it's something that a lot of us find so difficult to do :bear-dancing: :bear-dancing: :bear-dancing:

Your experience with the dinosaur of a GP is sadly not an unusual one :( :( There are still too many of them, altho there are ones slowly coming in that are helpful, understanding an do accept that FM is very real for us :penguin: :penguin: :penguin:

There is a lot of info and advice on here, so have a look round and see what might be useful to you. There's support for each other, :bear-dancing: :bear-dancing: :bear-dancing: when there is good news and a good amount of :crazy: :crazy: :crazy: :crazy: :crazy: to help get us thru each day :tongueout: :tongueout:

Anything you want to know about, just ask and we'll see how we can help :bear-dancing: :bear-dancing: :bear-dancing:


If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

PreviousNext

Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 3 guests

cron