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The UKFibromyalgia Forums • View topic - Introduce yourself ((xx))



Introduce yourself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Introduce yourself ((xx))

Postby motowngirl » Fri Apr 20, 2012 10:52 pm

Hello everyone,
My name is Sue I am 55yrs young and live in north Nottinghamshire. I have been married to my wonderful husband for 35years.

We have 2 children a son and a daughter. Our son got married to a lovely young lady August 2011 and they live in London
Our daughter got married September 2011, in Scottsdale, Arizona USA which is where she and her wonderful husband live.
WE have 2 westies Oscar and Isla and they are a joy!!
They seem to understand when I am unable to take them out, usually when I feel as though I am walking through cement!!
I was a Locum Pharmacy Technician, but was unable to continue due to ill health I have severe fibro and M.E., osteoarthiritus, IBS etc etc.......... :roll:
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Re: Introduce yourself ((xx))

Postby Mozgirl » Fri Apr 20, 2012 10:53 pm

Hi

I'm in Scotland, I'm 41 in a few weeks and have eventually found out that the pain I've been experiencing for a few years is fibro. I'm long divorced, single, loadsa friends and work in public sector.

I'm feeling really kinda down about this dx, because I spend so much time exercising, and it's starting to affect my ability to keep up my routine. Been to neuro, and other professionals for various symptoms but fibro seems to cover so many of them and the bigger picture is appearing I think.

I don't drink, don't smoke, strict veggie (vegan when i can!) but i have a good and varied diet. Tried to lead a healthy life but seems that previous bout of shingles has been possibly trigger for this. looking for some insight and hopefully hints for help too.

Hope this has been an ok intro! Not quite sure what else to say :/

Cheers.
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Re: Introduce yourself ((xx))

Postby kate2962 » Fri Apr 20, 2012 11:07 pm

Thanks everyone for your welcome I was given a leaflet by my consultant which makes sense of a lot of things that have been going on with me for the last 20 years or so - I am so relieved now that I dont feel as if i am going mad especially after going to the docs over the years for various things and being fobbed off.

I am owned by a cavalier king charles spaniel called Meg and I have a wonderful hubby who does all the walks with her as I cant - but she still favours me :lol: :lol: :lol: :lol:
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Re: Introduce yourself ((xx))

Postby Mozgirl » Fri Apr 20, 2012 11:28 pm

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Re: Introduce yourself ((xx))

Postby denys » Sat Apr 21, 2012 3:23 pm

Hi to all the newbies that have joined recently and :welcome: to the forum :wave: hope we can offer you support, advice and a shoulder to cry on when needed :-D :-D :-D :-D :-D :-D
Denys

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Re: Introduce yourself ((xx))

Postby Swifty » Sat Apr 21, 2012 6:31 pm

Hi everyone - a bit about me ...I'm 45, live in the NW of England, live with my partner of some 17 years now, son, cat, and dog. I work in education and love what I do. I came across this forum this morning after googling some of the symptoms I've been experiencing yesterday evening....

I'm not sure if fibromyalgia is what I'm experiencing, and am still familiarising myself with the terminology and links with ME, thyroid etc etc ..this whole area seems like a minefield! - so whilst having a feeling of 'coming home' at the same time I feel scared about what I know is going to be a long road ahead of me, and am hoping your own experiences might help me to shed some light on this.
If I may I'd like to share my symptoms with you - it looks like some of you have been on this road for a long while already, so you're thoughts, comments would be much appreciated at this difficult time.

Not sure where to start - so I'm just going to go for it... my body hurts particularly in my arms, shoulders, legs, and back - this 'hurt' is so difficult to explain...my legs and arms feel tender and swollen, I feel sore to the touch from the skin to the bone, the pain is like no other ...touch hurts, yet gentle massage helps a bit, when I try to turn over in bed in the middle if the night it feels like my body is pinned to the bed, and trying to move/turn over hurts and really takes mammoth effort. I'm exhausted/tired/lethargic most of the time ...getting up in a morning for work takes a lot of effort, I need to sit on the sofa 'waking up' for an hour before I get in the shower.

Going up and down stairs is difficult - my legs and knees feel like butter and hurt, my muscles feel like jelly. My whole body feels like it's swollen. I also sometimes get lower back pain ...on a recent holiday we went out into the countryside for a walk, a steep (ish) incline reduced me to tears, it may well have been a mountain. I have major weight gain issues, and often crave carbs - mainly chocolate, can gain a lot of weight over a short period of time.

I find it hard to make the bed because my arms hurt when I lift the sheets/quilt cover. I have a dizziness, again so difficult to explain, because it's not dizziness ...it happens when I move my head, as if it takes a while for my head/ear to catch up with itself! (this symptom comes and go's) I have sensitivity to loud noise, when I visit my Dad I have no choice but to turn the volume down the the tv ...I am experiencing a brain fog - I can't get things done at the moment and am fumbling at work and over my admin type tasks at home.

With regards to thyroid, my diagnosis has always been over active, but if I showed you a photo you'd say no way - you look like you have an underactive thyroid. I don't have much faith in thyroid testing, and the consultants I've seen tell me swelling/weight gain/difficult getting up/going up and down stairs is not linked. (I only take a tiny dose of carbimazole)

I think I've covered everything - there is so much - this morning my partner said lets book an appointment at the doctors ...how can I explain all this? The whole thing is just so overwhelming, and the brain fog makes, and pain make it even more difficult to assert myself and be heard.

...if you've had the patience, and time to read through all this I would be really interested and grateful to hear your thoughts ..does it sound like fibromyalgia to you?

thank you so much, I'll stick around and try to get to know a bit more about you all.
xxx
Last edited by FluppyPuffy on Sat Apr 21, 2012 7:30 pm, edited 1 time in total.
Reason: Made paragraphs clearer/split into paragraphs
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Re: Introduce yourself ((xx))

Postby FluppyPuffy » Sat Apr 21, 2012 7:52 pm

:wave: :wave: Swifty and :welcome: to the forum :bear-dancing: :bear-dancing: :bear-dancing:

I'm sorry to read how you're feeling and what you're going thru at the moment, it's something I think most of us can understand :grouphug: :grouphug:

You'll appreciate that we can't say yay or nay as whether you have FM, for that you need a suitable medical professional. All we can really do is comment on the symptoms you have described in relation to those of our own.

Your partner's suggestion of making the appt with your GP is the best place for you to start finding out the reason for your symptoms. For describing how things are to your GP, you could print up your post from here and give it to your GP to read. Hopefully from there it will start things off on the path to finding out why you feel as you do.

A lot of what you have described could be due to FM. Unfortunately, it could also be due to several other conditions as well :facepalm: :facepalm: The only way to find out is for your GP to run any tests, scans etc that they feel are necessary. From there, depending on results, they may either feel able to give you a dx themselves, or may feel it appropriate to refer you on to a specialist. A dx for FM only tends to be given after all other possibilities have definitely been ruled out.

Sorry I can't be much more help in saying if what you're experiencing is FM :( :( While you're trying to find the answer for your symptoms, if you have a look around the site, you may find some helpful suggestions for managing things. There is also a lot of other advice and info on here that you may also find useful.

Anything else you want to know about, all you have to do is ask and we'll see if we can help you with it :bear-dancing: :bear-dancing: :bear-dancing:


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Re: Introduce yourself ((xx))

Postby shazq » Sun Apr 22, 2012 1:43 pm

:welcome: to all newbies i have missed :wave:
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Re: Introduce yourself ((xx))

Postby Swifty » Sun Apr 22, 2012 3:59 pm

...thankyou for your hello's :-D

Fluppypuffy ...many thanks for your reply, it's a good idea to take what I've written here to my GP, the next challenge is getting an appointment - it's quite scary feeling like this and not knowing why or what's happening :-? In the mean time I'm going to have a mooch around here and read some of the past postings :cat2: :-)
thanks again
Swifty xxx
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Re: Introduce yourself ((xx))

Postby diane1 » Sun Apr 22, 2012 6:56 pm

Hi Swifty :-D

I hope you've found some of the posts on the site useful I know I have in the past. I also live in the NW and am 47 with 3 children and 2 step children a wonderful husband and a dog called Maisie. I was diagnosed about 7 years ago after having symptoms and thinking I was a hypercondriac for years. When I recently got to see my GP records there was a recording 10 years ago that I had fibro symptoms and to keep an eye on this. I wasnt told at the time but it was reasuring when I found out that it had been thought of.

Like the others say the first thing is to get an appointment at the GP's and take your husband with you, he sounds very supporting. When you are then trying to explain things and get fibro fog your husband can take over. Taking your post from here will also be useful as you wrote it trying to explain to us here your symptoms. Also keep a diary from now until you get to your GP's as this will show how you are affected daily. Most of us do this as it helps with Dr's appointments and when you might need it benefit claims.

Once you get the right meds it will help you carry on in your daily life. I manage dto work from 2002 when it started to 2010 when it became to bad to hold down a job, but everyone is different and responds to meds differently so the main thing is to keep positive.

Good luck with the GP. and let us know how things go. :goodluck2:

Diane :goodluck1:
Does an elephant with fibro fog ever forget ?
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Re: Introduce yourself ((xx))

Postby denys » Sun Apr 22, 2012 7:03 pm

Hi Swifty and :welcome: to the forum :wave: hope you get some answers soon
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Re: Introduce yourself ((xx))

Postby LittleBirdRia » Tue Apr 24, 2012 10:40 pm

Hello everyone!

My name's Victoria, I'm 22 and I was diagnosed with M.E. at 15 and FM at the beginning of this year, after a ten year struggle of hemi-plegic migraines, post-viral fatigue and chronic pain.

I work in a hospital pharmacy (best place to be for obvious reasons; apart from anything else, I'm surrounded by plenty of professionals in the know). For this I am so thankful. Not least because a depressed and unemployed Victoria is an awful, moaning, moping, soppy thing. Work is hard for me, particularly the physical aspects (there is no way I can shunt trolleys of IV fluids about) and I swear I'm turning into a Dalek as flights of stairs now terrify me. But at this current moment in time, work gives me a purpose and a reason to fight the seemingly endless battle. (Although, I must admit waking up in the hospital library today because I dribbling was not a good look. Not to mention it took another five minutes to work out where I actually was.)

I consider myself to be incredibly lucky, despite my struggles, because I am surrounded by very understanding and supportive family (my Mum also has M.E./ FM), and although other members find it difficult to grasp the nature of the beast, they do their best to help us deal with matters as they arise.

I also have a wonderful, loving boyfriend who is encouraging, but never pushy and always willing to take the time to learn about triggers and helping me through bad days.

I am afraid that I shall have to leave this post earlier than anticipated thanks to prickly eyes, but I very much look forward to "meeting" you all and swapping ideas of battle tactics!

Victoria
*********
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Re: Introduce yourself ((xx))

Postby FluppyPuffy » Tue Apr 24, 2012 10:54 pm

:wave: :wave: Victoria and :welcome: to the forum :bear-dancing: :bear-dancing: :bear-dancing:

There is lots of info and advice on here, as well as some :crazy: :crazy: :crazy: to get you thru an FM~filled day :mrgreen: :mrgreen: There's also plenty of support for those days when :crazy: :crazy: [chocolate] [chocolate] and :wine: :wine: aren't quite enough :teddy-bear: :teddy-bear:

Anything you want to know about, just ask and we'll see how we can help you with it :bear-dancing: :bear-dancing: :bear-dancing:


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Re: Introduce yourself ((xx))

Postby denys » Tue Apr 24, 2012 11:32 pm

Hi Victoria and :welcome: to the forum I'm sure the dribbly look isnt your best :lol: :lol: :lol: :lol: look forward to having you around :wave:
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Re: Introduce yourself ((xx))

Postby pmc » Wed Apr 25, 2012 9:10 am

HI all,
my name is Pam and I am 44. I was diagnosed with Fibro in 2001, I also have CFS, IBS, Depression and Osteoarthritis plus the usual things that accompany Fibro. I am in Staffordshire but originate from Nottinghamshire. I no longer work as I find the exhaustion too much to deal with so my days are spent ' pottering ' around the house doing bits and in the garden doing even less. I don't see any one except my Husband and daughter, our son is 90 miles away, I hane no friends, and we have no family close by, saying that none of them contact us either.
I enjoy reading and holidays in the sun as I find that eases certain parts of my condition. :-)
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