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The UKFibromyalgia Forums • View topic - Introduce yourself ((xx))



Introduce yourself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Introduce yourself ((xx))

Postby kate2962 » Thu Apr 19, 2012 6:31 pm

Hi My name is Catherine and I am 49 I was diagnosed yesterday and up until then I had never heard of Fibromyalgia but after reading all the info the rhumatologist gave me I can see I have been suffering with this for years as I have so many of the problems associated with Fibromyalgia and a lot of them the GP has briushed off as 'normal' over the years I now know differently.

I am married and have 3 adult sons and a dog.

I am so pleased to have found this forum as I hope to make lots of friends who know I am not going mad and also to find out more about this syndrome

thanks to anyone reading this

xx
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Re: Introduce yourself ((xx))

Postby pauline » Thu Apr 19, 2012 6:47 pm

Hi Catherine :lol: Welcome. You will find oodles of helpfull info here, just look through the topics at your leisure, unload your thoughts or ask any questions you feel you need to ask. There is always someone who can help, and if not we will do our best to point you in the right direction. :arrow: Pauline
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Re: Introduce yourself ((xx))

Postby FluppyPuffy » Thu Apr 19, 2012 6:49 pm

:wave: :wave: Catherine and :welcome: to the forum :bear-dancing: :bear-dancing: :bear-dancing:

While you may not be going :crazy: :crazy: :crazy: :crazy: :crazy: at the moment, after you've been on here for a while you will be completely :crazy: :crazy: :crazy: as it helps you get thru the day :bear-dancing: :bear-dancing: :bear-dancing:

There's a lot of info and advice on here, so have a look round and you may find some answers to questions that are whirling round your head. What you've discovered about suffering with various bits of it over time is something that has happened to a lot of us, and only when you find out about FM do these things start to make sense.

Just ask about anything you're wondering about, or want to know, we're nice and friendly and we'll try to help you with an answer :bear-dancing: :bear-dancing: :bear-dancing:

What sort of doglet are you owned by??


If your dog doesn't like someone, then you probably shouldn't either
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Re: Introduce yourself ((xx))

Postby diane1 » Thu Apr 19, 2012 9:34 pm

Hi Catherine :wave:

Welcome to the mad house :crazy: :shooting: :crazy: !

Its a great place to vent your anger, get advice and meet friends who know exactly what your going through. You might not sign on all the time but its always here like a best friend.

If your newly diagnosed theres loads for you to find out but check out the post " one for non believers" its a great posting that explains to others just what its like daily living with fibro .

Good Luck and take care.

Di :-) :bear-dancing: :penguin: :welcome: :goodluck2:
Does an elephant with fibro fog ever forget ?
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Re: Introduce yourself ((xx))

Postby TracyH » Thu Apr 19, 2012 10:15 pm

HI

me again, after reading quiet a few posts on here it seems some people are worse than others. I did read in a pamphlet that Fibro is a condition that does not deteriorate....really??? is this true??? it seems since I was diagnosed in Aug 09 I have got worse or seem to have many more symptoms of Fibro and more pain.

Help please!!!
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Re: Introduce yourself ((xx))

Postby diane1 » Fri Apr 20, 2012 10:59 am

Hi

Fibro does deteriorate if you have had it for 5 years or more. I recently had a medical report completed by two different fibro specialists for 2 different things and they stated in the reports that my medical records showed i'd had symptoms for 14 years but was only actually diagnosed 7 years ago. Over that period I have developed more symptoms including increased pain, fibro fog, IBS amongst other things. I had an accident 2 years ago in a petrol station and my condition got so much worse i ended up loosing my job . The specialist said that that the trauma of the accident had brought on my fibro deterioration by another 5 years.

My specialist told me that they still dont fully understand fibro or why we get it but it seems some people get some symptoms then they clear up so the general rule of thumb is if you've had the symptoms for 4-5 years you've got it for life. Another thing is that it appears that alot of people with fibeo have close family members with it and also arthritis. One theory is its something your born with like arthritis and its an accident or traumatic event that brings on the symptoms. Until then you live with it with no symptoms. We can only hope that one day they will know for sure.

I know it seems all doom and gloom but at the end of the day although its hard to adjust to and the pain at times is unbearable its not life threatening, so we will see our children grow up etc. I had a best friend who died of cancer a few years ago leaving three small children and I know she'd have traded her cancer for fibro at the drop of a hat. So I always think of her at my lowest points.

On a positive front there are lots of people out there to support and help you ( us here at the mad house for one) it takes some getting used to but you will eventually get there. I still manage to get away it just takes longer to arrange as I cant walk far so nee a wheel chair in the airport etc. That was one thing I found hard having to accept that I needed to use wheelchairs and a walking stick when i'm only in my 40's but at least it means you can still do things.

When I see my Dr I say its the guineapig here again as i've tried all of the drugs out there. I managed to work with the condition for 12 years so couldnt take any that made me drowsy etc, but as the pain etc increased the ones I was on didnt help but having now left work being drowsy doesnt matter as much. So now i'm back to retrying all the old tablets to find one that will help without to many side effects.

Good Luck yourself and remember were here for you and dont push yourself .

:goodluck2:
Does an elephant with fibro fog ever forget ?
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Re: Introduce yourself ((xx))

Postby lillykelly » Fri Apr 20, 2012 12:51 pm

Hi All,
I have never done anything like this before and don't really no what to put , So here gone's.
I'm 33 and have had Fibro for what feels like forever. I have 2 lovely children and a fab husband. I am currently going through an an appeal which is not going great.
I am finding it very hard to cope with the everyday pain and depression, let alone the pressure of the appeal.

:crazy:
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Re: Introduce yourself ((xx))

Postby Plain Jane » Fri Apr 20, 2012 1:30 pm

Hello everybody, my name is Janice but to my friends I'm known as Jan. I'm married to Mike, have 3 grown children with kids of their own - love 'em all to bits - and just the one dog, Roxy. I was diagnosed with Rheumatoid in the early 80's, which went into remission after about 12 years and remains so. However, I now have osteoarthitis in my spine, hand, hips and feet. About 3 years ago I was told I have FM too! I have also suffered from a GP who doesn't believe in FM, when a rheumatologist diagnosed it I told my GP that I'd looked it up online to find out more about it. He wrote this on my medical records "Has been surfing the internet...thinks she has fibromyalgia"; when I tackled him about it he told me FM was just a label!!! I only wish it was, fortunately he's retired and I now have a much more sympathetic GP.

I do work more or less full time but I'm lucky to work from home so there's no daily commute and no struggling with trains, tubes and buses as I did for a number of years before I was diagnosed.

I like to knit and do so most evenings while watching TV unless I'm too tired. I also like to make greeting cards for friends and family.

I joined Weight Watchers in January this year - no it's not a New Year Resolution - and it has worked well for me. I've lost just over a stone even without being able to do lots of exercise and having fallen off the diet wagon for a couple of weeks I'm now back on track so I'm aiming to lose another 2 stone by September. I've also taken up a challenge to do 30 more minutes of exercise a day. As I'd given up on exercise in recent years I'm starting slowly with stretching.

Good to be part of this forum, looking forward to joining in.
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Re: Introduce yourself ((xx))

Postby FluppyPuffy » Fri Apr 20, 2012 1:43 pm



If your dog doesn't like someone, then you probably shouldn't either
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Re: Introduce yourself ((xx))

Postby FluppyPuffy » Fri Apr 20, 2012 1:52 pm

:wave: :wave: lillykelly and :welcome: to the forum :bear-dancing: :bear-dancing: :bear-dancing:

There is a lot of info and advice on here, incl lots about appeals etc as there are a number of members at various stages of the system :facepalm: :facepalm: What benefit decision are you appealing against???

The pain and depression that comes as part of the package are draining, we all understand how this condition makes you feel :grouphug: :grouphug: :grouphug:

Anything you want to know about, just ask and we'll try to help you with it :bear-dancing: :bear-dancing: :bear-dancing:


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Re: Introduce yourself ((xx))

Postby FluppyPuffy » Fri Apr 20, 2012 2:15 pm

:wave: :wave: Jan and :welcome: to the forum :bear-dancing: :bear-dancing:

:woot: :woot: Congratulations on managing to lose weight, it's something that a lot of us find so difficult to do :bear-dancing: :bear-dancing: :bear-dancing:

Your experience with the dinosaur of a GP is sadly not an unusual one :( :( There are still too many of them, altho there are ones slowly coming in that are helpful, understanding an do accept that FM is very real for us :penguin: :penguin: :penguin:

There is a lot of info and advice on here, so have a look round and see what might be useful to you. There's support for each other, :bear-dancing: :bear-dancing: :bear-dancing: when there is good news and a good amount of :crazy: :crazy: :crazy: :crazy: :crazy: to help get us thru each day :tongueout: :tongueout:

Anything you want to know about, just ask and we'll see how we can help :bear-dancing: :bear-dancing: :bear-dancing:


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Re: Introduce yourself ((xx))

Postby motowngirl » Fri Apr 20, 2012 10:52 pm

Hello everyone,
My name is Sue I am 55yrs young and live in north Nottinghamshire. I have been married to my wonderful husband for 35years.

We have 2 children a son and a daughter. Our son got married to a lovely young lady August 2011 and they live in London
Our daughter got married September 2011, in Scottsdale, Arizona USA which is where she and her wonderful husband live.
WE have 2 westies Oscar and Isla and they are a joy!!
They seem to understand when I am unable to take them out, usually when I feel as though I am walking through cement!!
I was a Locum Pharmacy Technician, but was unable to continue due to ill health I have severe fibro and M.E., osteoarthiritus, IBS etc etc.......... :roll:
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Re: Introduce yourself ((xx))

Postby Mozgirl » Fri Apr 20, 2012 10:53 pm

Hi

I'm in Scotland, I'm 41 in a few weeks and have eventually found out that the pain I've been experiencing for a few years is fibro. I'm long divorced, single, loadsa friends and work in public sector.

I'm feeling really kinda down about this dx, because I spend so much time exercising, and it's starting to affect my ability to keep up my routine. Been to neuro, and other professionals for various symptoms but fibro seems to cover so many of them and the bigger picture is appearing I think.

I don't drink, don't smoke, strict veggie (vegan when i can!) but i have a good and varied diet. Tried to lead a healthy life but seems that previous bout of shingles has been possibly trigger for this. looking for some insight and hopefully hints for help too.

Hope this has been an ok intro! Not quite sure what else to say :/

Cheers.
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Re: Introduce yourself ((xx))

Postby kate2962 » Fri Apr 20, 2012 11:07 pm

Thanks everyone for your welcome I was given a leaflet by my consultant which makes sense of a lot of things that have been going on with me for the last 20 years or so - I am so relieved now that I dont feel as if i am going mad especially after going to the docs over the years for various things and being fobbed off.

I am owned by a cavalier king charles spaniel called Meg and I have a wonderful hubby who does all the walks with her as I cant - but she still favours me :lol: :lol: :lol: :lol:
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Re: Introduce yourself ((xx))

Postby Mozgirl » Fri Apr 20, 2012 11:28 pm

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