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The UKFibromyalgia Forums • View topic - Introduce yourself ((xx))



Introduce yourself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Re: Introduce yourself ((xx))

Postby *Lisa* » Mon Sep 05, 2016 9:45 am

As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Introduce yourself ((xx))

Postby tazzajay 1 » Sun Oct 09, 2016 11:01 am

:welcome: :-D
"Judge not unless you judge yourself"
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Re: Introduce yourself ((xx))

Postby LindyM66 » Wed Oct 12, 2016 8:04 am

Hi Richard

Welcome on board :-) I hope you find the forum useful. It's just good to be able to relate to others who " get it".

Much Love
Lindy x
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Re: Introduce yourself ((xx))

Postby paullavery » Tue Oct 18, 2016 8:44 am

Hi My Name is Paul,
I am 49 years old and was diagnosed with FM in 2000.
I have never managed to communicate with anyone else suffering from FM so hoping that hearing others experiences may help me in relation to the condition.
I have over the years collected a number of resources that I would like to share with others if they help. I use self hypnosis to relax and use recordings by Glenn Harrold and these help me tremendously.

Paul
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Re: Introduce yourself ((xx))

Postby tazzajay 1 » Tue Oct 18, 2016 8:48 am

:welcome: :-D
"Judge not unless you judge yourself"
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Re: Introduce yourself ((xx))

Postby Maggie53 » Sat Oct 29, 2016 2:39 pm

Hi, thanks for admitting me to group.

I am a 63 year old female and was diagnosed with fibromyalgia 2006/07, I also have IBS, labyrinthitis, suffer from mild anxiety and also the Drs think I might have CFS.

At first I managed quite well but found I was finding things harder to do and finally had to give up work in 2007 as I was also helping out my elderly mother and it was too much for me. Anyway things went along ok until late 2011 when my mother passed away and two weeks after her funeral my husband was diagnosed with terminal cancer. This turned everything upside down as I now became his career. After an horrendous 10 months my husband suddenly passed away, I was devastated, ending life as I'd known it.

After much thought I decided to move near to my daughter (hate driving and it took all my courage to drive on motorways), so came six months of the misery that is house selling/buying. After four buyers pulling out finally sold with no house to go to so moved from one relative to another, then holiday cottage and finally got my house. Been here two years now and everything has caught up with me, my health has gone down hill. The one bright side is my daughter has now got two babies (20 mths & 4 mths) but I find it difficult helping her. Right that's my moaning out of way, couple of questions 1) does anyone find they feel very sick and shaky every morning.
2) they get exhausted to the point they feel they will pass out.

Thanks for listening x
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Re: Introduce yourself ((xx))

Postby *Lisa* » Sun Oct 30, 2016 3:21 pm

:welcome: Maggie,

Sorry to hear of your loss :hugs:

I can get exhausted to the point of feeling like im going to pass out. I find this is when i have been under alot of stress or pushed myself over the limits.

The only time i feel sick and shaky in mornings is when my anxiety is up and im on a flare.

Sounds like you have had so much going on you need to try and relax although i know its easy said then done.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: New Diagnosis and Bewildered

Postby Ursula » Thu Nov 17, 2016 6:53 pm

Hi All,
I was given a diagnosis Probable Fibromyalgia and prescribed Trazodone and Gabapentin on 25th October '16. What does this diagnosis mean? Do I or don't I? I had been signed off work for 8 weeks with Shingles and referred to a specialist who subsequently informed me that I did not have Shingles but I had a form of Fibromyalgia. Is there more than one?
It makes sense, all the symptoms fit and it was actually a relief to no that I wasn't loosing my mind or dying. I'm still in a state of shock and possible denial. My whole worlds been turned up side down. I work full time in an extremely emotionally and mentally challenging Senior role supporting others in crisis. I have already had a Back to work Interview and a Sickness Review meeting and to be honest I have no idea what happened.
I don't know what to do next?
Any advice, support and guidance that can be offered I would be very grateful for.

Thanks Urs
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Re: Introduce yourself ((xx))

Postby *Lisa* » Thu Nov 17, 2016 8:07 pm

As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Introduce yourself ((xx))

Postby Nightfire » Sat Nov 19, 2016 7:33 pm

Hi everyone, just thought I'd introduce myself. I am a 55 year old male, married with 3 grown up children and 2 grandchildren. I have been diagnosed with osteoarthritis by 2 different rheumatologists but my symptoms are much more in keeping with fibromyalgia which they say I don't have?!? I am not supposed to take brufen as I am on warfarin and codeine/paracetamol don't seem to touch the pain!
Be good to get to know you!
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Re: Introduce yourself ((xx))

Postby *Lisa* » Sun Nov 20, 2016 11:46 am

:welcome: Nightfire

As well as Fibro i also have Osteoarthritis of the spine & knees. The Osteoarthritis was confirmed by MRI & X-Rays.

Symptoms very much overlap one another and i have given up working out whats what and treat symptoms as a whole :crazy:

Stiffness is my main issue which causes severe spasms and strains. Together there a nighmare in trying to keep the joints and muscles from seizing and locking up.

I have trigger point therapy to try and help the stiffness.

I know that Hydrotherapy can help also.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: Introduce yourself ((xx))

Postby Billy_Cove » Tue Dec 27, 2016 11:15 am

Hi,

My name is Billy, I am 39 years old and I live in Leigh on Sea.

I have had rheumatoid Arthritis since 2011 and Fibromyalgia since 2013, I am so grateful that I have now found this website.

My job is pretty hands on and I don't like to moan, but as all of you are aware the pain behind my eyes is immense, so being able to read your story's and share mine, is really going to help understand that I am not alone in this.

I am currently taking Methotrexate but have been in and out of hospital all year as it doesn't seem to get along with my Liver... are any of you on the same medication?

I am really interested in hearing everyone's story, and what you do to cope with the days that the pain just gets too much.

I look forward to chatting with you all.

Billy :-)
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Re: Introduce yourself ((xx))

Postby LindyM66 » Thu Dec 29, 2016 12:05 am

Hiya Billy

I was diagnosed with Fibromyalgia in April of this year, after years of to'ing and fro'ing to my GP.
Long story short - in February, my whole body seized up and I experienced severe pain all over. Absolutely horrendous!
Anyhoo, I am on Gabapentin 300mgs x 3 a day, and 100mgs of tramadol x 4 a day. Doesn't keep me completely pain free, but manageable - mostly!
I can't share any experience of the meds you're on, as I don't have RA, but in reading about it, it is a possible side effect. I hope the Drs can sort this out for you Billy. I can imagine how difficult it must be, to cope with both.
I find that heat really helps my pain. I have heated seats, electric heat pads, and the little wheat bags that you heat in the microwave. I have widespread pain, so I use them for the worst parts. Maybe someone will invent a heated body suit ;-)

Take Care
Much Love
Lindy x
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Re: Introduce yourself ((xx))

Postby Claire'scomfycorner » Mon Jan 02, 2017 4:40 pm

Hi Billy

Welcome to our fibro family :welcome:

Hugs
Claire
x
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Re: Introduce yourself ((xx))

Postby Jamie1964 » Wed Jan 04, 2017 10:10 am

[size=150]Hi all,
My name is Jamie, I'm 53 yrs old. from N.Ireland.
I have recently, after two years of testing, xrays etc etc, been diagnosed with Fibromyalgia.
was at first a relief to know I hadn't been going mad,that something Was actually "wrong" with me.
How short that relief time was. I've read through some of your posts and generally I suffer the same as most.
I'm learning That I cant take the better days to Do EVERYTHING I wanted to do on "bad days ." as then I would be
laid up for the next few in worse condition than ever.
I have 5 grown up daughters 30yrs - 21yrs. and 5 grandchildren. I brought my girls up alone,and was the backbone of our unit , not so much now.
My girls have all moved on, family, careers, and studies of their own.My Biggest issue right now is the depression connected with FM. My painrelief
is hit and miss, on 30/500 cocodomol 4 times daily. Naproxen 500mg 2 twice daily, tramodol 200mg twice daily ,pregablin 75mgs twice daily and now
palexia 100mg twice daily. I am also on anti depressants, .Some days all that helps numb the pain. But just as many days, it does not! Is this normal?
what gets me down equally as the pain does, is, as many of you have pointed out.Nobody (except other suffers) understand how restricting and just How painful
this condition is.Even those who love you most. 2 years ago, I would have walked 5 mile 3 times a week. Could run and play with the grandchildren,I looked after most of them whilst their mothers worked, cant do that now :( :(
painted and decorated my own place, and my garden ........ was my pride and joy. :cry: I can do none of this now, Yet I feel even my daughters think I am exaggerating my symptoms. The more I try to explain the pain, restrictions, depression, even the memory loss, which has now become an issue, the more I feel They really don't understand. My own mother is 78 and is living life to the full, she does understand, as she has elderly friends with FM. Its sad, when a 78 yr old woman and 83 yr old man
are helping Me out. Sorry, I am Very down and sick of constantly being in pain (AS YOU ALL ARE) I suppose I'm looking for people who know exactly what its like to live with this, and maybe get alittle advice as to how to LIVE WITH FIBROMYALGIA. thank you for reading Jamie :needhug:
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