This is all new to me :0(

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This is all new to me :0(

Postby Di davo » Tue Apr 09, 2013 9:29 pm

Hi all, I was diagnosed with chronic mirgraines a year ago by a neurologist, I never believed this to be true, I have daily headaches that are bad, but it was everything else that was happening to me that didn't make sense, forget fullness, knocking things over instead of picking things up, saying the wrong word but knowing it as I said it, tiredness and aches and pains. The hardest part of it all was all the tests came back normal, I started worring that my husband and boys would stop believing that I really don't feel well. My doctor has been really good, he now agrees that it's not chronic migraines, he thinks I have fibro and has referred me to another neurologist for diagnoses, I have found your post and information on here really good, at last I think I may have found me!, thinks got rather bad last week after a long day out with my boys, I just could find energy for days after, at work I wasn't even able to count the change back to customers, the doctor has given me tramadol to take for pains as co-codamal has no effect anymore, but this makes me feel really horrible, I take other tablets each night which is believed to help the symtons but the doc wants to wait for the neurologist to say what will be best . I have so many questions?! The main one is will I learn to cope with all this if it get diagnosed? I found the post by shazp about fms and thought it was amazing everything written to the tee!
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Re: This is all new to me :0(

Postby denys » Tue Apr 09, 2013 11:09 pm

Hi Di davo, I have moved your post into here with it being your first one, so :welcome: to the forum :cow-wave: :cow-wave: :cow-wave: :cow-wave: :cow-wave: its normally a rhuematologist who diagnoses FM but maybe a neurologist who specialises can also I dont know :-? :-? :-? :-? :-?

anyway as you have said, you found Shaz's post to be helpful in identifying and empathising with symptoms, so hopefully if you do get a diagnosis of FM then you will be able to find help and support on here which might answer some of your questions. If you have any specific worries/questions then just ask and we will do our best to answer them if we can
Denys

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Re: This is all new to me :0(

Postby shazq » Wed Apr 10, 2013 8:15 pm

:welcome: to the forum Di :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: This is all new to me :0(

Postby FluppyPuffy » Wed Apr 10, 2013 9:02 pm

:cow-wave: :cow-wave: :cow-wave: and :welcome: to our little escape from it all Di :bear-dancing: :bear-dancing: :bear-dancing: Sorry to hear it's looking like FM is the Gremlin behind what you have been experiencing.

Glad you've already found some of the things on here useful, some of the things Shaz has put with are brilliant for getting things over about what FM can be like to live with :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing:

There is lots of info and advice on here, so whilst your waiting for your next appt with your neuro~bod, have a look and a read around, you may come across some suggestions that could help make things a little easier for you.

Just ask if there's anything you're wondering about and we'll try to help you with it :cow-wave: :cow-wave: :cow-wave:
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Re: This is all new to me :0(

Postby Di davo » Thu Apr 18, 2013 9:00 pm

Thank you all for your kind hello's and welcomes, I haven't been back on here for a while as I've been really bad, think I tried doing to much with my boys whilst they were on school hol's, plus side is the doc is trying to push forward my appointment as it's not till July, hope it works hate been stuck on limbo, nothing is helping, co-codamol has no effect now, and I can't take tromadol due to the way it makes me feel, just spent two days deep cleaning my inlaws house so they can rent it out, now on sick from work :0( need to learn my limits!, just want an answer so I know what I am dealing with, doc said today the more he listens the more he knows it fybromaliaga , I know you've all been here, sorry for sounding so glum!!
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Re: This is all new to me :0(

Postby Bethany » Sun Apr 21, 2013 4:36 pm

Hi Di davo im Beth I've had chronic fibromyalgia for over 5 years. I also like you went through a neurologist to tell me I've got fibromyalgia I've had 2 MRI scans all nerve tests lumber puncture because the physical signs I show were signs of MS but thank god I've just got very bad fibromyalgia it's is a horrible illness it takes along time for you to except you've got it. I also have chronic migraines nearly everyday which effects my balance and my eyes. But I've just had my second MRI scan results back and it's shown my mastoids in my ears are infected and blocked so its making me loose my hearing but found out I have got vertigo that is why I have bad migraines and off balance. But my specialist told me this is all to do with fibromyalgia cause if all the nerves in my head. I hope you get your migraines under control because having them as well as all the other chronic pains it unbearable. Believe me it will get easier you have to train your brain to deal with the pain it's hard though. Thanks Beth
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