What are the warning signs of Fibromyalgia?

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What are the warning signs of Fibromyalgia?

Postby geekman » Sat Apr 27, 2013 3:48 pm

Hi all,

I thought this would be the best place to ask this question. I've done some research online but it all seems a bit vague.

I've suffered with health issues that doctors can not explain for over 10 years. I'm 28. They keep putting it down to anxiety. I do have a history of anxiety and depression but I don't feel these issues are anxiety. I know my own body, and I know the anxiety symptoms - I've had them long enough - but some of problems are different.

I have some questions and I'll give my reasons for asking them. Fibromyalgia may be what I'm experiencing or it may not but before I approach my doctor I'd like to see if there's a possibility. I understand nobody here is a medical expert.

What is the pain all over referring to?

I have random pains constantly. The pain generally doesn't last long but the pain can be experienced anywhere in my body. For example I just had a pain in my shoulder. The pain is localised and it feels like a knot in my muscle. I have these pains in my arms too. Sometimes at night I'll have random pains in my legs. This type of muscle knot can be felt in my chest also, and around my armpit. Sometimes if I feel the area I will feel a lump that hurts. I've read this as something to do with lymph nodes.

The chest pain is the worst, and pain in abdomen. I've had these for years. I worried they were heart related but clearly not because I'd have known about it by now if it was.

Is pain with Fibromyalgia constant, or short lived or either?

What is the fatigue part?

I experience this daily. This is awful. There can be times when I'm reading early in the day and I just feel so tiered that I have to sleep or I end up constantly yawning all day. At times I feel weak, sort of like the feeling you get when you've not eaten or your body needs sugar. But, when I try to sleep I usually can't. It's like an all over tiredness. Different from bed time tiered.

Brain Fog. Is my issue brain fog?

I get this with the fatigue mainly. Talking to people becomes difficult, my sentences and wording when talking are not coherent. I tend to find I can't think things through properly. I am a programmer, and when this happens I struggle to solve problems that I should be able to solve normally.

My memory is poor. I burnt the food the other day because I forgot to take it out of the oven. It's usually short term memory though. Long term memory is fine.

Sleep difficulties

Yep. Not being able to sleep till 4am. Or sleeping and waking up in complete terror. I actually have a sleep study booked for this. I have some sleep apnea type symptoms although I don't have sleep apnea.

Muscle knots, cramping, weakness

As discussed in the fatigue and pain part above. I don't get too many cramping issues. Sometimes I'll get it in my hand but it's manageable.

Digestive disorders

I have this too. Sometimes I don't go to the toilet for a number 2 for days. It's been over a week before. I get nasty stomach pains at times in lower abdomen. I have GERD and acid too (doctors think this may be related to my sleep disorder). I get bloating too. At night I can feel very hungry (the stomach feeling) even though I'm not.

Headaches/migraines

Yep, couple of times a week at least. They can be deliberating. The only thing I can do is lie down when this happens.

Balance problems

Again I can relate to this. There are times when I feel vertigo. Just a few days ago I was making a cup of tea and felt off balance. This lasted all night. There are sometimes times when I will wake up in the morning and be off balance all day. I have to keep my head straight. If I tilt my head forward or back I get the vertigo feeling.

Itchy/burning skin

This in the arms and legs. Itching hands, cold feeling feet even though my feet feel normal to touch. Don't really get the burning although there have been instances in the past where I remember feeling like patches of skin felt sunburnt.

There are also things like twitching that I get. Twitching eyelids, twitching fingers (had a bad case yesterday of the finger twitching). I can have random parts on my body that twitch, and they are visible. Like pulsing skin. Anywhere there is muscle it can twitch.

I also read the feeling of swelling, even though there is no swelling. I get this in hands and feet all the time!

There's just far to much here that relates to Fibromyalgia. I've been researching this for some months. I could go on with other symptoms but there's far to many to list.

Whilst they are not all deliberating, they are annoying. The fatigue and tiredness can be an issue. As can the pains in the stomach. Coupled with the anxiety and depressed it's difficult.

I know it might not be, but I wanted to get some feedback from others who had issues before they were diagnosed.

Thanks.
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Re: What are the warning signs of Fibromyalgia?

Postby Kyomii » Sat Apr 27, 2013 4:22 pm

The pain is either or .... and everything else definitely fits the bill. However, what specialists have you seen so far? What blood tests have been done? A lack of vitamin B12 can cause all those symptoms and more. They need to rule out other things before diagnosing, because something like a lack of B12 is easily fixed with regular injections.
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Re: What are the warning signs of Fibromyalgia?

Postby geekman » Sat Apr 27, 2013 4:36 pm

Kyomii wrote:The pain is either or .... and everything else definitely fits the bill. However, what specialists have you seen so far? What blood tests have been done? A lack of vitamin B12 can cause all those symptoms and more. They need to rule out other things before diagnosing, because something like a lack of B12 is easily fixed with regular injections.


I had bloodwork done some time ago when I had an ECK and EKG. Everything was fine. I've never had any tests for what I have because when I discuss issues with doctors they put it under anxiety. I don't see how to be honest but I know something isn't right.

The fatigue has just kicked in now. I get this daily and won't be able to stop yawning till it disappears (if/when).

Just looking at B12 online now. Never considered that.
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Re: What are the warning signs of Fibromyalgia?

Postby FluppyPuffy » Sat Apr 27, 2013 4:53 pm

:cow-wave: :cow-wave: and :welcome: to the forum. I've moved you into here with this being your intro post as it's a more suitable part of the forum.

The various symptoms and things you have mentioned may be related to FM, but they could also be related to several other conditions that share similar symptoms with FM, incl Lupus, RA, MS. And the thing that you've discovered about FM being vague is pretty much the best way to describe things, along with unpredictable :facepalm: :facepalm: :facepalm: :facepalm:

WRT pain, the sort of description used when FM is being considered is that it must be present in all 4 quadrants of the body for 3~6 months. So altho each quarter of the body needs to be affected, this doesn't have to a continuous pain in all of the area, it can be something that occurs at different times in random places. However, we are all very different when it comes to this, with some people having occasional pain pop up in all/any areas all the way thru to having constant pain from head to toe for every hour of every day, with all possible permutations in between :facepalm: :facepalm: :facepalm:

I think the best thing you can do to try and start getting some answers about what is behind your symptoms is to go back and see your GP. Take with you info about all your symptoms and problems, like you have posted on here, as well as details about times, situations/circumstances etc that can cause them. Also add in how long they can last and anything else that you think will be of help in creating that overall picture of what each day can be like for you. If you're leaning towards FM as a possibility, also take some info with you about the condition. This linky is a reliable source that no doctor can dispute http://www.nhs.uk/conditions/fibromyalg ... ction.aspx Go thru this info along with your list of symptoms and put together why it is you feel FM may be the reason for how you feel, then take all this with you to see your GP.

When you see your GP, give them a copy of what you have compiled and explain that you've been looking into things and have come up with this that seems to match with how you feel and you're wondering if it could be behind your symptoms and problems. Hopefully from there, your GP with have a look at things, then start putting things into motion to start you off onto the road to getting a name for what is wrong with you. It will take a while to sort, but hopefully it will mean you will start getting some answers at last :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2: :goodluck2:
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Re: What are the warning signs of Fibromyalgia?

Postby SaraFibro » Sat Apr 27, 2013 4:56 pm

You should definitely get more bloods done to rule out other disorders, rheumatiod arthritis and check vitamin D and B levels, magnesium levels, white blood count, rheumatoid markers etc. Thyroid and blood pressure too. Most of the pain issues can be ruled out and if there is no explaination through bloods. My pain originally started as acute neck pain, this spread over some months and now I get pain all over. Sometimes it feels like my body is bruised all over and the slightest touch will make me jump. The fatigue for me came gradually, at first I noticed I just always felt tired, then I had a week where I couldn't get out of bed...those times have increased and now if I'm in a flare it feels as if someone has filled my legs with lead and pulled the plug out and drained all the energy from me....the muscle fatigue is worse and some days even brushing my teeth is draining and my arm and hand muscles will stiffen from something as simple as writing a short shopping list. Every day is different, pains pop up from nowhere. Even though Fibro has a lot of symptoms, its really important to make sure any symptoms aren't related to something else....many people with Fibro end up with co-existing illnesses and your doctor should be taking your symptoms extremely seriously. Good luck! :)
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Re: What are the warning signs of Fibromyalgia?

Postby shazq » Sat Apr 27, 2013 5:20 pm

:welcome: to the forum

Hope you get some answers soon.

My symptoms started of with slight aches and feeling run down but progressed quite quickly to all over pain and fatigue over a 6 month period before a Rheumy dx me.

Have a good look around the forum and write all your symptoms down to show your gp and just keep going back until you get some answers. It can take some time because they have to rule other things out. :goodluck1:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: What are the warning signs of Fibromyalgia?

Postby whoami » Sun Apr 28, 2013 1:40 am

One of the obvious tests needed to confirm fibro is you must have a minimum of 11 out of 18 trigger points to confirm fibro. Everyone who has fibro share this symptom. Other symptoms we can all have some and not others.

You do need to be checked to see if it is nothing else you are dealing with....good luck!
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Re: What are the warning signs of Fibromyalgia?

Postby LouLou » Mon Apr 29, 2013 2:54 pm

Hi geek man Welcome to the forum

You've come to the right place if you want answers. I've been a menber on here for about a year and a half now and I have found out so much information from others, I've even taught my GP a thing or two lol.

I do agree with what the others have said about being tested for other things aswell. That's why getting an FM diagnosis can take a long time as most Doctors just want to rule out all other possibilities and make sure they don't miss anything.

Before I got mine I was tested for anything and everything, blood tests, carpal tunnel tests, arthritis blood tests/thyroid blood tests, x rays, whole body MRI's the works lol.

In regards to what you put about your stomach, I also have IBS which I had before FM and I too have times where I can't go to the loo for a few days and then can't stop going, plus the bloating and pain you feel etc. You need to get this checked out with your GP as these symptoms could also mean something else.

Your post title asks "what are the warning signs of FM?" well I never realised this until I had my diagnosis that a few of the symptoms were present even before I properly noticed them. About 6 months before I saw my GP I remember feeling tired all the time no matter how much sleep I got. I was still going to the gym but found I couldn't manage the normal workout I'd been doing before and had to really cut back. I also found that I ached much more all the time and from there on I remember the symptoms just built and built until I gave in and saw my GP which started the ball rolling for my tests.
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