New to everything!

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New to everything!

Postby Geek-Girl » Sat May 11, 2013 7:16 pm

Hi! I am very new to the idea of forums, found this site and hoped I would find people that might be able to give me some advice and support.

I was diagnosed on Thursday.....and the last 2 days have been a rollercoaster. The shock has reduced me to tears, i am very scared and i don't really know what I am supposed to do now, if anything! My consultant was an army doctor, who very bluntly gave me a leaflet, told me I have fibro, that I needed to get more exercise and maybe my GP could give me some medication....oh and he said that the Wikipedia page is good! I had heard of Fibromyalgia as there is a lady I used to meet every morning on the school run 2 years ago that has it....she walks with a stick and very occasionally I have seen her in a wheelchair (obviously a very bad day). She used to run marathons before she developed fibro.

I have been in agony the past 2 days....i suspect the stress and worry haven't helped, along with my poor sleep! I have been getting progressively worse over the past 3 years, and the last year has been horrid.....i was beginning to think i was going mad and that I was imagining it (as were members of my family) , especially as I have a history of mental problems!

Thankfully, my husband and 2 children have been fantastic, and the friends I have told have also been lovely! I would be grateful for advice on what to do next......i have alot of trouble walking, and have bad wrist and elbow pain, and my hands don't seem to work properly....please help!
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Re: New to everything!

Postby lolo73 » Sat May 11, 2013 7:52 pm

Welcome.

I think your GP needs to send you to a specialist who will sort out your medication. Maybe looking for a local support group too. It is not inevitable that you will end up deteriorating, once you get onto a good regime you might find things improve x
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Re: New to everything!

Postby Purpledot » Sat May 11, 2013 10:31 pm

Welcome to the forum.

I know exactly what you mean.........I was diagnosed by a Rheumatologist and dismissed with a little leaflet and told to ask my GP for some medication to help me sleep if I felt it necessary!

Luckily, my GP claims to know a lot about Fibro and have an interest in it, so has so far been quite supportive.

I think your first step is to establish a good relationship with your GP and explain to him/her how you are feeling.

Good luck xx
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Re: New to everything!

Postby Geek-Girl » Sun May 12, 2013 9:44 am

Thank you for the advice! Not sure how supportive my GP is going to be......the consultant seemed surprised that she hadn't mentioned fibromyalgia and had misdiagnosed tendonitis! I' m on quite alot of medication because of my depression, so will have to find out what I am able to take. I have found lots of useful information on the forum, so I can start putting a few things in place for support at home now.
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Re: New to everything!

Postby shazq » Sun May 12, 2013 6:45 pm

:welcome: to the forum :cow-wave:

Your consultant should write to your gp to say your have fibro (you should get a copy). Once you have the dx of fibro your gp takes over the care and they give all the meds so having a fibro friendly gp makes a big difference. You still get some gp`s who dont believe :twisted: in fibro :nono: but swap if you have to.

Most gp`s will start you off on Amitriptyline which in a lower dose helps with pain and sleep and in higher doses helps with depression. They should give you some pain killers as well.

Here is a link you could print out of some meds used to treat fibro-
http://www.nhs.uk/Conditions/Fibromyalg ... tment.aspx
You could go through them with your gp, finding the right type of meds to suit you makes a big difference as well, you might have to try a few before you find the right one/combo.

We have lots of support on here, any questions just ask. :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
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Re: New to everything!

Postby denys » Sun May 12, 2013 10:09 pm

Hi and :welcome: to the forum :cow-wave: :cow-wave: :cow-wave: :cow-wave: :cow-wave:
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Re: New to everything!

Postby FluppyPuffy » Sun May 12, 2013 10:43 pm

:cow-wave: :cow-wave: and :welcome: to our little sanctuary :bear-dancing: :bear-dancing:

You'll find lots of info and advice on here that might help answer some of the questions that are probably whizzing round your head with you being so recently dx'd.

The way you've been feeling is fairly typical of what happens when you've been dx'd, it's as if the realisation of what it all is and what has happened rears up and grabs you all at once. As you find out more about what affects you and what can make a difference to you, things will hopefully become a little easier for you.

As Shaz has said, your consultant should contact your GP about your dx. You should then be able to discuss what treatment options might be suitable which should also take the meds your are currently taking into consideration.

With you being new to forums, have a bit of a look and find your way around the place, and anything you want to know about, just ask and we'll try to help you with it :cow-wave: :cow-wave: :cow-wave:
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