Saying Hello - Will it or won't it be?

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Saying Hello - Will it or won't it be?

Postby Billy319 » Fri Jun 14, 2013 4:38 pm

Hello to all, first post after a fair bit of hanging around. Perhaps scaring myself needlessly but the more I read here (having tried to avoid reading too much elsewhere!) the more I'm feeling I need to take how I feel seriously and push for some answers. I would be gutted if finally diagnosed with Fibro, not least because I have a driving job which I enjoy and my main hobby is motorcycling, but I will need to start somewhere.

I am male, 42 years old and until around 1998 I was in perfect health; at that time I developed lower back issues (pelvic related inflammation). It progressed to having a lot of tingling, numbness and sharp burning pains in my arms/hands with tightness between my shoulders. After around 3 years of regular Osteopath visits it all calmed down and I sometimes wonder what of it may have been stress-related with an ongoing divorce and a job I hated. Anyway, sometime in 2004 I was hurrying up some stairs with a heavy bag in one hand and the pelvic pain came back in a shot and has remained to some extent since, although under control with Osteopathy and not been having the burning pains in arms and hands.

Roll on to around 2009 and I started to get much more general aches and pains with burning sensations coming and going variously on feet, hands, lower neck and parts of torso. They were/are always very localised but leave a tender spot for an hour or two. I found myself sweating quite a bit at night and my wife getting irritated by my constant scratching and moving around in bed (during which I don't wake).

From then it has all been a gentle spiral with urine urgency issues last July and again in February (put down to prostate infection but I have always felt nerve related), a slight feeling of nausea sometimes and an odd hypersensitivity to certain frequencies in my right ear, often with just a static-like ticking for no apparent reason; still waiting ENT appointment for that one but I think it is nerve related myself.

In April I noticed a faint tingle on my lower lip which would come and go, soon followed by a very metallic taste in my mouth for a week or so and a distinct sunburn-type 'peppery' feeling in my mouth, on my tongue and lips. The taste went but the sensations remain, coming and going over hours or even minutes! By May I had added various more things which come and go such as tender scalp and cheeks, a more pronounced nausea feeling and some nasty sharp flashes of pain on top of my head and just in front of each ear (only one place at a time and NOT a regular thing). Soon the tightness between my shoulders returned with the tingling, numbness and burning pains in my arms and hands; these symptoms ebb and flow as do all others. In the past week I have developed a strange buzzing sensation which comes and goes variously in my feet, legs, arms, hands and torso although not all at the same time - if I lie on my left it can be felt nearly all the time, a regular pulsing but not in tune with my heartbeat. Sometimes I get 'twitches' as though someone has just 'pinged' me with their finger, usually just once or twice then calm again. I also seem to get a sensation like an insect crawling on my left foot which no amount of scratching cures, it just goes away in minutes.

Wow, I just realised how long the post is so sorry but I hope you're still here! After blood tests in February and again this week which all came back good (except for low Calcium reading this time?), the GP has decided her work is done and referred me to the Neurologist (maybe it should have been Rheumy???). I need to be sorting this rabble into something more compact for the day but meanwhile I'm trying not to stress out as that might make things worse IF my issues were somehow 'just stress'.....

I'm trying to console myself that so far I sleep fairly well (although this week the 'twitches' troubled me for two nights and each time I almost slept I'd jolt awake - not good!) and wake up largely ok for the first half hour, odd as most seem to struggle to get going? I have no muscle strength or general fatigue issues and no co-ordination or vision problems, but then again they might be waiting for me at a later date! Many thanks if you've read so far, I know there are no certain answers here but I'd welcome some opinions.
Billy319
UKFM Newbie
 
Posts: 3
Joined: Wed Jun 12, 2013 8:21 am

Re: Saying Hello - Will it or won't it be?

Postby FluppyPuffy » Fri Jun 14, 2013 8:39 pm

:cow-wave: :cow-wave: and :welcome: to the forum Billy :cow-wave: :cow-wave:

Sorry to hear how things have been for you over the years. Unfortunately it is an all~too familiar story on here :( :( :(

The things you have described could be symptomatic of FM, as they are shared by quite a number of us in varying degrees and levels, they could also be due to a number of other problems as well, and it is only thru seeing the relevant specialists/consultants/healthcare professionals that you will hopefully get a definite answer/dx.

Parts of your story are similar to things others have experienced along the way to finding out answers to their questions so you're in good company. With you experiencing the tingling and numbness I can see why your GP has referred you to a neurologist, and altho it does tend to be a rheumatologist that deals with conditions like FM, the neurologist may still be worth seeing, even if it's just to put your mind at rest about nerve~related concerns you have. And you can always ask about a rheumy referral as well as seeing the neuro~bod so you've got various possibilities covered.

Whilst you're waiting for your appt, you could have a bit of a looky around the place. The boards are full of lots of info and advice, incl various things we have found helpful when dealing with various symptoms and problems. You may come across some suggestions to try out that could make things a little more comfortable for you :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Saying Hello - Will it or won't it be?

Postby denys » Fri Jun 14, 2013 9:09 pm

Hi Billy and :welcome: to the forum :cow-wave: :cow-wave: hope you get some answers soon
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Saying Hello - Will it or won't it be?

Postby Billy319 » Fri Jun 14, 2013 10:01 pm

Thanks for the replies.

I've been having a good poke round and must say am both scared and saddened about what people are having to live with. It will be a difficult time and I'll be needing friends for sure if it comes to that.

What I can't get my head round is how much I have gone down hill in the past 4 weeks or so - things keep on piling up and nothing goes away altogether whereas before now I've had aches and pains all over but they tended to follow on with one making way for the next :-?
Billy319
UKFM Newbie
 
Posts: 3
Joined: Wed Jun 12, 2013 8:21 am

Re: Saying Hello - Will it or won't it be?

Postby FluppyPuffy » Fri Jun 14, 2013 10:32 pm

Have you or are you under any additional stresses at the moment, or been doing a bit more than usual?? If so it could be what is making you feel like you are hand have been over the past few weeks as any increases in pressure or worries or over~exertion can make things start to flare up.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Saying Hello - Will it or won't it be?

Postby Billy319 » Sat Jun 15, 2013 7:48 am

Thankyou FluffyPuppy, you pose a good question and after a strange turn last night I'm starting to think this all may be stress/anxiety related. As I said, I've had plenty little niggles but I could usually explain them but this surge in symptoms not. I do work long hours and I work shifts which combined are taking a toll. I've worked since 16 and really before that helping out my dad back then but I've also worked hard and played hard (so the need to work so hard to pay for it!) and I'm thinking it's caught up.

I've been putting a plan together for a few months to reduce my work significantly but we have a baby due in 6 weeks (so more to worry about as we lost one late pregnancy 4 years ago and it's taken this long to get back there) and I was planning a month off in September with very much reduced working hours afterwards. A proverb in the Bible says that 'A man may work out his path but God will decide his steps', maybe I should respect that more?

Anyway, last night after signing off I went to bed and the twitching which has started this week got going at very points on my body, not regular, just every few minutes (I'd had a big one on my right thumb before signing off here). I then began to feel a gradual build of 'heat' like sunburn in my hands which worked up my arms to my shoulders and into my neck, I tried to relax and rolled to my left side and it subsided. A short time later I was almost asleep when I started getting the tremors, they built quite strong and I kept my eyes closed when my heartbeat seemed to rise significantly and I could see light patterns pulsing in time with my heartbeat. I tried not to panic, rolled onto my back and it all quickly subsided. I got out of bed and felt great, no dizziness, went to see my wife downstairs who said I looked fine and went back to bed.

I'm sitting here this morning typing with a constant twitch/tremble in my left thumb and just feek prickly and tense. I think it's time I presented myself to hospital instead of sitting here but I dread the place as the usual response at our hospital is 'we've no idea but take some Paracetamols and see your GP on Monday', they are utterly useless! It's tempting to big it up and dial 999 as I know they would take me elsewhere. OK, rant over I'm going to eat and decide what's next! Many thanks.
Billy319
UKFM Newbie
 
Posts: 3
Joined: Wed Jun 12, 2013 8:21 am

Re: Saying Hello - Will it or won't it be?

Postby penfriend » Sat Jun 15, 2013 9:15 am

Dear Billy, so sorry you are suffering much with various troubles, and how we can relate to all that, but the news that you and your wife are expecting a baby, after losing one, is great news and I trust that all will go well. I think the verse you have quoted from the Bible in Proverbs reads "The lot is cast in the lap, but the whole disposing thereof is of the Lord." KJV. In other words, everything is in God's sovereign hands, and if we are in Christ, our lot is already cast (predetermined) and only He knows what will happen in His choosing.
Therefore we readily accept that He knows what is best for us, even the bad things which seem to happen, are for our good and His glory.

sincerely, penfriend
penfriend
UKFM Member
 
Posts: 138
Joined: Mon Mar 26, 2012 7:56 pm

Re: Saying Hello - Will it or won't it be?

Postby shazq » Sat Jun 15, 2013 5:23 pm

:welcome: to the forum Billy :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
User avatar
shazq
UKFM Veteran
 
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.


Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 2 guests