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The UKFibromyalgia Forums • View topic - Finally seen Rheumatologist yesterday



Finally seen Rheumatologist yesterday

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Finally seen Rheumatologist yesterday

Postby Nicolaev80 » Wed Jun 19, 2013 1:55 pm

Hi everyone,

I have only posted on here once before (ages ago). Not sure if I even introduced myself properly!!

My name is Nicola and I have two children, boy 8 and girl 4. Married and work three days a week for the NHS.

Since my last post, I have been waiting to see a Rheumatologist whom I saw yesterday at my local hospital. She was nice enough. Asked me how I was feeling (I had already done a list :crazy: ,as memory fails me often!).

I had over half an hour with her, I did not feel in any way rushed and she gave be time to talk and tell her how I felt.

After examination and discussion, she handed me the Fibromylagia UK leaflet and said it is most likely FM and offered me CBT and Amytriptyline low dose (although, this I will have to get through my GP).

However, as FM is a process of elimination, I had 8 pots of blood taken to test for other auto immune conditions (I have already got under active thyroid for which I take 75mgms of Thyroxine).

As you all know there are good days and bad, but since March until about three weeks ago, I was rock bottom. I felt depressed and felt I needed a little help from the GP, but on three occasions they refused to give me anything for low mood, as they wanted the outcome of this appointment.

I can't say I was shocked after yesterday's consultation. My mother has had FM for about eight years now (much worse than me!) I was really hoping it wasn't FM as I can see what she goes through and it's horrid!

I haven't decided how I feel about it yet (too early) if that makes any sense! Suppose I'll wait for the blood test results, but will be shocked if it's anything other than FM.

My husband doesn't do "ill", but is very good and I have given him the leaflet to read and he has seen me research the condition for quite some time, so I don't think he was surprised either.

Thanks for reading. I hope I can share/moan to the people who understand the most...you guys!! :-D
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Re: Finally seen Rheumatologist yesterday

Postby FluppyPuffy » Wed Jun 19, 2013 2:41 pm

:cow-wave: :cow-wave: Nicola, not sure if I've said :welcome: already, so just in case I haven't, :welcome: to our little sanctuary :cow-wave: :cow-wave: :cow-wave:

It's not unusual to feel a bit flat or numb after you've been told it's looking like FM is the reason you've been feeling like you do, even if it's something that you're half expecting to hear. Until you actually hear the words, it can still be possible that something else could be at work that could be treated and improve, even cured. But when those words come out and make it all official, that realisation comes thundering in and completely knocks the stuffing out of you :facepalm: :facepalm: :facepalm: Give yourself some time to let things start to settle and make a little more sense, then start considering how you feel, what you are hoping for etc.

It's good to hear that your appt was pretty much a positive experience tho, there are still too many specialists, consultants etc that don't show an ounce of consideration in how they deal with patients. So you being listened to and not being made to feel rushed is a nice change :clap: :clap: :clap: :clap: :clap:

It does seem odd that, even tho you had told your GP about the drop in your mood, that you weren't some treatment options to try and help things :-? :-? :-? :-? I can understand why they would be reluctant to start treating you for something until you have a definite dx, but changes in moods can come about for all sorts of reasons, situations, and it being treated as early as possible means recovery can be quicker :-? :-? :-?

You're more than welcome to have a good old moan, vent and just generally let out some of that frustration that inevitably builds up, and share and join in with the other things that we have across the boards. As well as all the info and advice we have on here, we also try to have a bit of fun along the way as well :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing: :bear-dancing:


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Re: Finally seen Rheumatologist yesterday

Postby csangel » Wed Jun 19, 2013 2:55 pm

Hi Nicola :wave:

Glad you had a good experience with the Rheumatologist. Sorry to hear you've been in a bad way :( you have most likely been experiencing a 'flare' - I went through my worst one from July last year till January this year, and completely know what you mean about being rock bottom. If it helps I didn't get much out of my GP either - finally got diagnosed in January and got put on some different medication which has helped a bit. :crazy:

I've only recently started to come to terms with it - many people on here say it is a never ending process, a bit like grieving for the life you used to have. Can't remember the terms now but there are different stages you go through (fibro fog, sorry! :dunno: ) including denial, anger, etc.

Most of us have been on the run around to various departments before we get our diagnosis, so although it may not seem a shock, it does make a difference to finally be able to say what it is (as long as all your blood tests come back clear ;-) )

Pacing is a major skill we have to learn to be able to manage every day life and try and avoid flares. There's lots of good advice on this forum, and always someone willing to help with a question.

My hubby doesn't do 'ill' either, but has been my rock throughout my journey with fibro so far. I struggle to show him sympathy when he pulls a muscle or has a touch of man flu, but we make a good team, and I think our relationship has strengthened as a result of the hardship we've been through. We don't always make life easy for each other, but we stick together and work it out. I guess it's a bit like my relationship with fibro - it can be a pain in the :girl_moon: sometimes, but allows you time to stop and think and see things you otherwise would have been too busy to see... if you get my meaning...

Sorry I've waffled on a bit! Been having a hard time of things recently myself, but due to the support from people on here have really picked me up so wanted to pass a little on to someone else!

Want to finish saying - it always helps to let it out, and there is always someone here who is going through/ has been through the same thing. You're not alone, and we understand! ;-)
Health is not valued until sickness comes. ~Thomas Fuller
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Re: Finally seen Rheumatologist yesterday

Postby Tracie » Wed Jun 19, 2013 5:36 pm

seems a productive appointment.
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Re: Finally seen Rheumatologist yesterday

Postby shazq » Wed Jun 19, 2013 6:51 pm

:welcome: to the forum Nicola :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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Re: Finally seen Rheumatologist yesterday

Postby Nicolaev80 » Wed Jun 19, 2013 9:06 pm

Thank you all for your replies. It really does mean a lot when you know someone is taking notice and reading about how we feel etc.

I'm sure I will learn a lot from you all. Chat soon :-)
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