Newly diagnosed

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Newly diagnosed

Postby Sue1968 » Fri Jun 28, 2013 9:21 pm

Hi my name is Sue, I'm 45 soon, been on tonnes of pain meds without success of any relief, was sent to the pain clinic for tmjd by maxillo facial consultant saw the consultant(specialising in neuro pain) at the pain clinic on Wednesday and he told me that I had fibromyalgia, he then did the "touch test" and by the time he'd completed that I was screaming in pain, he then re confirmed that I had in fact got fibromyalgia so told me to purchase a book and he was putting me on a pain management programme, but not until October 2013. Can anyone help me with a confusing issue, I have been told FM is the same as CFS and ME, is this true?
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Re: Newly diagnosed

Postby whoami » Sat Jun 29, 2013 12:36 am

Fibromyalgia has many symptoms the same as CFS/ME and lots of people like to think of them as the same. They are not.

Some medication and treatment may be used for all illnesses but they are different and you can be diagnosed with both fibro and CFS/ME

Now to confuse you more....Depending on the Dr, the studies, etc. some believe that CFS and ME are one in the same.


I hope that now you are diagnosed with fibro you get the right treatment and medication. Confusing you again, it may take a while to find the medication that works for you.

Patience is needed with both treating and living with fibro. Welcome to the family.
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Re: Newly diagnosed

Postby FluppyPuffy » Sat Jun 29, 2013 1:31 pm

:welcome: to our little escape from it all Sue :cow-wave: :cow-wave: :cow-wave:

You'll find lots of info and advice across the boards, hopefully there will be some useful bits in amongst it all for you. Which book did your consultant suggest you purchase?? Just wondering as some are better than others, and rather than buying it and finding it isn't helpful to you, you could consider seeing if it is available thru your local library, or if they could get hold of a copy for you. That way you could have a read thru it and see what it's like before you decide to purchase your own copy. A number of books are also available thru the shop on the main UKFM site http://www.fibromyalgiashop.co.uk/books.html

WRT whether FM and CFS/ME are the same or different, that all depends on who you speak to I'm afraid, which doesn't really help things :facepalm: :facepalm: :facepalm: :facepalm: I have both cards in my collection, and after having a number of sessions relating to FM a few years ago, and also attending a number for CFS, I tend to veer towards them being different. I have noticed subtle differences in symptoms and things that I experience, depending on which one is the more dominant. When FM has the upper hand, my pain levels, stiffness, migraines/headaches and a few other things get turned up. When CFS gets near to thinking that it's in charge tho, altho the FM is still bubbling away under things, a really heavy feeling comes over me, along with an achyness that make all movements even more limited and slower. I also tend to feel much more fluey and stuffed up along with a sore throat.

Hope there's a little sense in my wafflings :fingerscrossed: :fingerscrossed: Anything you want to know about, just ask and we'll try to help you with it :cup1: :cup1: :cup1:
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Re: Newly diagnosed

Postby Sue1968 » Sat Jun 29, 2013 4:50 pm

Hi thank you for that information, I do think I possibly have a bit of both fms and me/CFS as I have a lot of symptoms of both. My consultant said to buy a book about coping with fms and thing that help and things that don't help people, I got it from amazon(£14.99) it's got a relaxation cd as well with it, I've just come home from a summer fair and I'm exhausted, I didn't do much at all but I'm in so much pain. To top it off I've got crps which has flared up in my knee. I'm goin o hav t ret or th re of th day now.

Once again thank you for your advice, I was under the impression t the illnesses were different though, was my OSS at work who said the were the same
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Re: Newly diagnosed

Postby denys » Sun Jun 30, 2013 11:07 pm

Hi Sue and :welcome: to the forum :cow-wave: :cow-wave: :cow-wave: :cow-wave: :cow-wave:
Denys

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Re: Newly diagnosed

Postby Sue1968 » Sun Jun 30, 2013 11:44 pm

Hi Denys

Thank you and I'm glad I've found the forum, I'm going to the GP tomorrow as I missed my appt on Friday morning due to 1/2 hour of sleep, at 6am I had been trying all night to sleep, I then fell asleep so I wasn't best pleased
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