Losing my mind. Long rant. Hi everyone btw :)

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Losing my mind. Long rant. Hi everyone btw :)

Postby geo » Tue Jul 16, 2013 6:45 pm

Hey everyone

Stumbled across this website the other day. Just thought I would introduce myself, and have a good old vent because god I need one (sorry ;p).

So my name is George, I'm 19, am (was) a very active person; loved to exercise, especially road biking (was hoping to start racing this summer). My problems all started after I did 2 weeks of heavy cycling in February, the weather brightened up and I had some holiday booked from work, so I went out a lot more than I usually would or have time to do. I did roughly 400 miles over the 2 weeks whilst pushing myself to go very fast at the same time. I clearly overdid it and my right leg suddenly started giving me excruciating pain after a ride (no idea what part of it I injured, it just hurt all over.)

It was so bad that I couldn't walk on it at all, reaching the garage at the most, I was very confined and had to take time off work. I saw a GP who referred me to a physio, who had no idea what I had done and gave me stretches for a groin strain (there is no way that was what it could have been because my bike is set up perfectly and you can't get one from cycling...).

So the weeks went by, during this time I still couldn't walk or go to work. I saw the physio every week and tried to explain that the useless stretches i was given weren't doing anything at all. They just nodded along and said "oh it will get better, just keep going, it's nothing serious". There was nothing to see on my leg at all, normally if you get a really bad strain there is some visual problems in the area.

During this time I found myself getting more and more frustrated and depressed, being inside all day every day really got to me. I decided to go back to work and push through the pain because I needed the money and I was so fed up of confinement (Also very socially confined due to moving away from all my friends recently). Work was hard because of the pain, but i managed it. Now this was the turning point: One evening after work my leg seemed to ease up, and I started getting pain in my other leg, then my back and neck, then tingling and pain in my arms and hands. The next morning I woke up and I could barely move. I couldn't move my neck hardly at all, as well as my back. I got numb fingers that i couldn't move much as well.

I was very worried and had NO IDEA what had happened over night because there was NO PHYSICAL EXPLANATION at all for all of this pain, I hadn't done anything. So I went to A&E, explained my story, got told there were no signs of any nerve damage or anything to be worried about and that I should just relax because I was holding myself so tense(because of the pain), and was sent out within 5 minutes (literally). I couldn't believe their response to this and got very annoyed. Over the next few weeks the pain became manageable so I could move about the house.

I've had so many episodes of pain in different areas of my body it is ridiculous. One day my back will be excruciating, and the next day it will be my neck/shoulders/arms/legs/bum/ankles/jaw/armpits/knees etc etc. The pain will just move about and there is not one place on my body I haven't felt it.

Since the start of April I have seen:

4 GPs
3 Trips to A&E (When it was really bad)
3 Different Physiotherapists
Hip and Knee Specialist
Osteopath
Chiropractor
Sports and Massage Therapist
Shiatsu person
Spinal Specialist
Practice Nurses for various tests

Diagnoses (bad guesses) I have had from these people:

Groin Strain, Calf Strain, Hamstring Strain
Slipped Disc
Piriformis Syndrome
Pelvic Misalignment
Spondylolisthesis

Tests I have had done:

Blood test - CLEAR
Urine test for bone cancer - CLEAR
Xray of Pelvis - CLEAR
Xray of Lumbar Spine - CLEAR
MRI of Lumbar Spine - CLEAR
Blood test for signs of Ankylosing Spondylitis - WAITING
Tens of examinations by healthcare professionals that just found that all my muscles are extremely tight everywhere and some swollen.

Nobody still knows what the problem is, whenever I see someone about it, I get the same response every time and am referred to someone else. It is just getting so ridiculous and my life at the moment is awful. I can walk into town but that's about it, I can't use the computer for long because my hands/wrists/arms/shoulders just scream at me, I can't go to work, can't socialise with friends, I know some people are going through a lot worse but some times it just gets to me so much I break down and just cry (man up I know). A year ago I was a even-keeled, positive, fun person but since this has happened I just have nothing to look forward to or enjoy and my mood is dire. I no longer get a good nights sleep, I wake up regularly and feel like I haven't had any sleep at all when I wake up.

I have no idea what to think or do to solve this problem, I am starting University in September and I have no idea how that is going to pann out if nothing changes. My family are very understanding but they find it very hard and also have no idea how to help me. I find it hard to explain to them when they ask how I am feeling - don't know where to start, so I don't bother saying anything much.

I had never heard of Fibromyalgia until the other day, and a lot of it kind of makes sense in regards to what has happened with me. I have mentioned it to the chiro who I happened to see today, but he said it definately wasn't that and shrugged it off.

I guess I just have to sit tight and keep going, maybe it will solve itself, time is a great healer after all I suppose :-|

....And....Breathe.

Wow that really was a long rant. If you've read this far, thanks for reading. I'm not looking for a diagnosis on here, but it helps to just write everything down and get it out of my mind a bit, also any advice or similar stories from people would be cool :D

Cheers for reading, George x
Last edited by geo on Wed Jul 17, 2013 11:12 am, edited 1 time in total.
geo
UKFM Member
 
Posts: 24
Joined: Mon Jul 15, 2013 4:32 pm

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby FluppyPuffy » Tue Jul 16, 2013 7:23 pm

:welcome: to the forum George :wave: :wave:

Sorry to hear what you've been dealing with over the past few months. It is incredibly frustrating when you know there is something affecting you, but are unable to find answers as to what it is :facepalm: :facepalm: :facepalm:

I hope you'll appreciate that we aren't able to say whether what you are experiencing is FM, whilst what you have described could be attributed to the condition, it could also be due to several other possibilities that share the same sort of symptoms.

If you feel that FM could be the cause of your problems tho, you need to go back and see a GP to start with and explain why you feel it could be what is affecting you. If you decide to try this, if you take some info with you from a reputable source such as our main site or from this linky http://www.nhs.uk/Conditions/Fibromyalg ... ction.aspx as well as details of your symptoms and problems, and why you feel they could match with FM, and see what the GP thinks. You should know pretty quickly if they are open to the idea of FM as a potential dx(some healthcare professionals are still dismissive of it being a genuine condition). If they are reluctant to consider it, then see another one, and keep going like that until you finally find a more helpful and understanding one.

If they feel that FM may be behind your problems, then it will hopefully start things going off in the right direction to you finally getting some answers and starting on some suitable treatment to try and get things more under control.

Have a look round the boards as well, with all the info and advice across them, you may come across some other symptoms and things you have that could also be connected to how you feel, as well as suggestions to try out that might make things a little more manageable for you.

Anything else that you want to know about, just ask and we'll try to help you with it :wave: :wave: :wave: :wave: :wave: :wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby *Lisa* » Tue Jul 16, 2013 7:23 pm

:welcome:

Out of all that list theres one more you can ask and thats a Rhumatologist.

They can also diagnose fibro if this was the case or rule it out.

I hope you get some answers soon.

:goodluck1:
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
*Lisa*
MODERATOR
 
Posts: 3903
Joined: Sun Sep 07, 2008 2:01 pm

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby denys » Tue Jul 16, 2013 11:10 pm

Hi George and :welcome: to the forum :cow-wave: :cow-wave: :cow-wave: :cow-wave:
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby geo » Tue Jul 16, 2013 11:23 pm

Hey guys, thanks the info and the welcome!! :mrgreen:

Does anyone know if fibro has been known to come on very quickly? Also worth noting since september i've been under a lot of personal stress and more anxiety than usual due to several reasons. My dad also had ME(CFS) for 10 years starting around this age.

Clutching at straws at the mo :P

Thankyouuuuu x
geo
UKFM Member
 
Posts: 24
Joined: Mon Jul 15, 2013 4:32 pm

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby FluppyPuffy » Tue Jul 16, 2013 11:48 pm

Some aspects can develop suddenly, but usually things do seem to happen over a period of time. For me, I collapsed suddenly a couple of times, which was the first sign that something was wrong, but things had been building over a period of time with increasing pressures, stresses etc, so it may be something else to take into consideration.

Same with the familial link to CFS with your dad. Altho it has yet to be proven definitively that there is some sort of genetic~type link, there is an increasing amount of anecdotal evidence to suggest it could be a strong possibility.

These things are all worth noting for when you find a helpful medical bod, as they can all help with creating that overall picture of what things are like for you, which can go towards helping get some answers.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby shazq » Mon Jul 22, 2013 4:13 pm

:welcome: to the forum geo :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
Fibromyalgia Awareness Day May 12TH.
User avatar
shazq
UKFM Veteran
 
Posts: 11449
Joined: Wed Feb 11, 2009 8:16 pm
Location: wrapped up under my duvet at home.

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby geo » Tue Jul 23, 2013 10:27 am

Thanks shazq :-D :-D :-D :-D
geo
UKFM Member
 
Posts: 24
Joined: Mon Jul 15, 2013 4:32 pm

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby toni » Tue Oct 08, 2013 3:30 pm

oh geegee get better soon xx
toni
UKFM Member
 
Posts: 27
Joined: Sun Sep 15, 2013 11:37 am

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby whoami » Wed Oct 09, 2013 5:23 am

Geo.....welcome! I am so sorry to hear that you are not only dealing with all the pain and stress but nobody being able to give you any answers.

You never have to apologize for getting something off your chest. Also, you never have to "man up", your words, and deny your feelings. You would be less of a person if you did not have feelings to show.

As far as fibro coming on quickly, i will give you short version of my situation. I had an accident at work. As K was running up the stairs I hit my head on an overhead sewer pipe, compressed everything and fell back down. The pain started to intensify instead of getting any better. Everything was seen to have healed. Every test came up negative except tests to prove certain symptoms. Anyway after many Dr's acknowledging thevsymptoms but not giving them a name a Dr I saw who has fibro diagnosed me. Then everyone agreed. Workers compensation agreed that the trauma of the accident triggered fibro. This same Dr explained some reasons for fibro starting rather quickly, sudden trauma to the body, stress emotional or physical.

So now to answer your questions....yes fibro can be brought on rather quickly.
.....yes your fibro could have been triggered by the physical wear and stress due
The training and long ride your body endured.

As suggested, bring fibro to the attention of your GP. Ask him/her for a referral to see a rheumatologist or an appointment to a pain clinic. The fDr who has fibro and diagnosed me runs a pain clinic.
Let us know how you get on with things.
Good luck and hang in there. Eventually you will get a diagnosis for something, possibly fibro.

Lorraine
[i][b]

Expect the worst in life you won't be disapointed and you'll be prepared!
whoami
UKFM Regular
 
Posts: 1537
Joined: Wed Jan 23, 2013 9:22 pm
Location: Ontario, Canada

Re: Losing my mind. Long rant. Hi everyone btw :)

Postby geo » Thu Oct 10, 2013 4:55 pm

Hi Whoami, thanks for your post. I've been referred to a Rheumatologist, just have to wait till the end of November for the appointment. My symptoms are all still the same, and I've been put on Amitriptyline. Hopefully I will get something positive from this upcoming appointment :)
And it's good to know it can come on very quickly, it certainly did with me.
geo
UKFM Member
 
Posts: 24
Joined: Mon Jul 15, 2013 4:32 pm


Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 2 guests

cron