Hi all, just diagnosed

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Hi all, just diagnosed

Postby Kwerkee » Fri Sep 13, 2013 12:22 pm

Hi all, hope you're all as well as can be!

I'm Keeleigh, 25, from sunny Yorkshire, live with my boyfriend and our 2 cats and I study with the OU.

For over a year I've been having random aches and pains, but after myself neglecting the GP as "Maybe it is stress?", "Don't know...Maybe it's blah blah", I finally went after telling myself in Jan this would be my year and I need to sort these problems out, I tried and got met with "Its anxiety" every time, didn't even check anything and was rudely dismissed, even though I tried CBT, psychology, distraction and so forth. Don't get me wrong I do have anxiety and depression, but I knew deep down this wasn't the problem, does this make any sense!? lol. I even went on fluoxetine which made everything worse. I recently changed GP and now I've finally been diagnosed...Don't know how to explain it? A sense of relief/a sense of "really!?"/no!

I basically for the last year have had - Constant soon as wake up to when I fall asleep horrible pain in my chest (to the point feel as if about to have a heart attack), back pain, leg pain, tingling arm, rest of body feels heavy? Been having a lot of headaches which get worse in supermarkets!?, IBS (although, new GP thinks this is either colitis or bowel cancer :cry: ) Breathlessness, feel tired, don't like my boyfriend hugging me as if he catches a certain point OW, concentration issues, will just zone out, sinus problems and sleep disturbances :(. Anxiety has creeped up a bit more, although this is because when you're in so much pain it's hard to think you're going to be around much longer lol. Is this common for fibro? Sorry, now been diagnosed because of last GP he made me feel as if a hypochondriac I'm telling myself "Maybe you've created these pains" even though I didn't even look up fibro beforehand!? :roll: lol.

Sorry about all this x
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Re: Hi all, just diagnosed

Postby LouLou » Fri Sep 13, 2013 12:33 pm

:wave: kwerkee

Welcome to the forum and the FM club - though not a clubd you really want to be in but you are NOT alone and you are NOT a hypochondriac at all.

Kwerkee wrote:but I knew deep down this wasn't the problem, does this make any sense!? lol.

We all know our bodies better than anyone else does and when something doesn't feel right you just know so that totally makes sense.

What you are feeling right now is believe it or not completely normal. I remember when I was first diagnosed, I'd been having test after test for a year straight and I wished so many times for just an answer, a name, something to show I wasn't losing the plot. Then when I got the diagnosis I remember feeling like "Great a name, I'm not imagining things" then in the next second when it all had sunk in I remember thinking "I don't want to live like this I'm still young I want to do things"

Just take your time, what with only just being diagnosed. Let things sink in and do a bit of reading up. I personally find reading things written by people with FM more beneficial as they feel what you feel. This forum is a fab place for info - take a look at the "Help/tips on coping" section. We've posted things that we have found help us and you never know what weird yet wonderful ideas may help you too! The NHS website can be a good source of info too.

Is your new GP a bit more understanding than the first one? It may be worth making a note of any questions you have, info you want to know etc and going back to see them. Usually GP's will confirm the diagnosis and then start you off on painkillers (depending on what you are already on/medical history etc) and may refer you for things like physio/hydrotherapy/pain clinics etc.

It's a long journey and it is frustrating but you will find a way to get round things and limitations. Just be patient.

Welcome again
What doesn't kill you will only make you stronger ;-)
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Re: Hi all, just diagnosed

Postby FluppyPuffy » Fri Sep 13, 2013 8:26 pm

:welcome: to our little sanctuary Keeleigh :cow-wave: :cow-wave:

Wish I could say that route to getting dx'd was an unusual one, unfortunately tho it's a story that we hear all too often on here as there are still far too many healthcare professionals in the system that are still dismissive of FM, which doesn't help when someone is desperately trying to find out what could be affecting them :facepalm: :facepalm: :facepalm: It sounds like you've managed to find a much better GP tho, and now you have that elusive name as well as, hopefully things will soon be moving in a better direction than they had been previously :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed:

Headaches are an associated problem with FM, with them worsening when you are in a supermarket, it could be due to the lighting in there, or any smells or sounds, or even anxiety trying to get in on things, or even a mix of these various things as it's not at all unusual for us to become extremely sensitive to such things. Maybe if you try keeping a note or diary about when they occur, situation, sounds, smells, anything else that you think may be relevant, it might help show if there is a pattern to things. Doing this could also help if you speak to your GP about them as a clearer, overall picture as possible is always helpful when trying to find out things.

Anything that you're wondering about or want to know, don't be afraid to ask, we're pretty friendly on here and will try to help you with an answer :cow-wave: :cow-wave: :cow-wave:
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Re: Hi all, just diagnosed

Postby denys » Fri Sep 13, 2013 10:24 pm

Hi Keeleigh and :welcome: to the forum :cow-wave: :cow-wave: :cow-wave: :cow-wave: :cow-wave:

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Re: Hi all, just diagnosed

Postby dawnpl » Wed Sep 18, 2013 9:15 am

Hi I too have just been diagnosed this week and also had a difficult journey to diagnosis. I was run over by a lorry in 1997 and have suffered pain in various degrees continuously since then. I have been on mess, been to physio, sent to exercise classes with no results. Finally last year a new gp joined our surgery. She hadn't been hearing this from me before so a new set of ears. She sent me for X-rays and found that I had some issues with my spine so sent for an MRI and referred me to the pain clinic. The MRI showed severe arthritis throughout my spine. The pain clinic have got me on diclofenac, gabapentin and epidural injections in my neck and lower back. These give some relief but I am still in a lot of pain. This week my appt at the pain clinic with a different consultant who specialises in fibromyalgia confirms the reason for the rest of the pain along with un restful sleep, poor memory, sensitivity to sounds, sever headaches and multiple migraines, constant aching all over, inability to concentrate sometimes, and much more. Ia m so pleased that you too found a good good gp and let's hope that together with the help of this forum we can go on a journey of improvement and better management as of course there is no cure.
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