In denial

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In denial

Postby pugwash265 » Thu Sep 19, 2013 2:20 pm

Good afternoon, its taken me a few months to pluck up the courage to say hello as I still don't know what to make of it all. I am a 33 year old male 3 years ago i was very fit and healthy until I suffered a small back injury which basically never got any better and more and more symptoms came apparent. Eventually I was discharged from the armed forces because of it. I was quite early on told by a civilian rhumy Dr that it was fibro this was dismissed and ignored by every military Dr I saw. I managed to get another job straight away and now work offshore in a fairly hands on manual job that I am really struggling with physically. I was again told by a completely new Dr at the beginning of this year that it was fibro. Like you all I have good days and bad but I still cant except that I can't do everything I used to, I still manage to play rugby which at the time is fine (once warmed up) but after I feel like I have been hit by a train for a few days! I was sent home from my shift a week early last time as i had what I presume to be a flare up.

I know we are all different and deal with things in our own way and we are all on different meds and stuff. Some have Drs that as far as I've read are more supportive. I went to a half day fibro group that the rhumy dr sent me to and I felt so out of place I didn't ask any questions. I am wondering at what point to you have to tell your employer? I can't afford not to work and my job isn't ones where adjustments can be made to make it more FMS friendly. Also does anyone believe their fibro was caused by an incident? My former employer is denying all knowledge of it even tho they admitted liability for a "back sprain" which both diagnosing Drs have said is highly likely the cause.
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Re: In denial

Postby Flash » Fri Sep 20, 2013 12:57 am

Hi and :welcome: :welcome:
I am sure mine started after glandular fever and a car accident about 17 years ago. I also have had arthritis in the spine for many years, also neck and other places but I'm sure the back and neck are contributory factors.

I worked in very demanding jobs, building and renovation where I used a pneumatic drill, and farming as well as car valeting and body repairs. I was very active, canoeing, cycling, horse riding, running, hiking etc.

This condition has been very gradual over the years and bit by bit I have had to give things up. I brought up two children alone who I also encouraged to be active but my cost has been great.

I finally had to volunteer in several places as I could no longer hold down a full time job. as with everything else, this was a gradual process. Last year, I was forced to leave a position in a complementary therapy centre as they wanted to get rid of the 'lame ducks'.

Now, I am not doing anything although I do want to volunteer again somewhere. My mind is still very active, in between the fibro fog moments, but I am not well enough to obligate myself to set days and times.

Sometimes I can walk to town to get shopping, I may be able to walk several miles with my dog. But then as you say, I feel as if I have been hit by a train. This is lasting longer and longer each time. My body is taking less before it's had enough.

Other times, I am unable to move for seemingly, no reason. I am confined to bed or the settee.

Some people can go for years in a full time job while others have to suddenly give up. Some are floored within months of being diagnosed with FM while again, others can go for years before slowly grinding to a halt.

Yes we are all different with one awful thing in common.

I hope you can find answers you need and that you are able to work without paying too high a price. Take care and good luck.

Sue. X
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Re: In denial

Postby FluppyPuffy » Fri Sep 20, 2013 2:31 pm

:cow-wave: :cow-wave: and :welcome: to the forum. As I'm typing I've got the theme from Captain Pugwash running thru my head :lol: :lol: :lol: :lol: :lol: :lol:

You're right in thinking that we're all different in how we deal with FM, and telling an employer about it is one of those areas. With you saying that you're finding things a struggle physically tho, and needed to be sent sent home early from a shift, it sounds like it might be necessary for you to inform your employer sooner rather than later. At least then, if you find that things are flaring while on duty/shift and you're struggling, they will know why. Even tho you say there aren't any adjustments that could be made to make it more suitable for you, there may be some sort of policy/procedure in place to accommodate employees who have a disability/condition/illness, along with the cover provided by The Equalities Act. HR or Occy Health type peoples should be able to provide you with info about this. Maybe trying to find out more about what may be in place could help you decide when could be the best time to let them know about FM.

A good number of us believe that there was an incident, or number of things that happened over time that may well have been the trigger for FM to start appearing. It's difficult to definitively say what was the actual event/time that triggered it off tho as there is so much still not known about it. In my case, possible triggers include a car accident that left me with a broken neck, an abusive relationship and increasing pressures and constantly moving targets when I was working. If you feel that it was a particular incident that occurred whilst you were employed by the previous employer who
pugwash265 wrote: is denying all knowledge of it even tho they admitted liability for a "back sprain" which both diagnosing Drs have said is highly likely the cause.
Then it might be worth contacting Brian Barr thru his board on here. He and his team specialise in cases involving FM and may have some advice for you.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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