Hi everyone I'm another newbie here

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Hi everyone I'm another newbie here

Postby Lexus Lawyer » Wed Sep 25, 2013 6:45 pm

Hi everyone,

Just dropped in to formally say hello to you all and nice to meet you. I am 62 yr old male, not retired but unable to work most days and live in North Oxfordshire. I am (was) a company commercial/insolvency/debt/lawyer, I drive an old lexus and hence my screen name Lexus Lawyer...which my colleagues gave me after reading the book and seeing the film Lincoln Lawyer. I not sure that I know what they are getting at other than they consider I am a bit of a street hustler.

Like so many of you on this site...I am on a concoction of pills and painkillers and often in a haze because of these and "the FOG" but still try desperately to retain a sense of humour as regards life in general.

I have just been formally diagnosed with FM and combined ME, this has only taken four years of battling with various GP's and visits to and tests by just about every medical and surgical consultant the NHS has to offer. Trouble was that I had the main underlying symptoms all along such as the exhaustion, joint & muscle pain and ibs to name a few, but then I started getting all manner of medical problems and so kept getting referrals to individual specialists. But none of them ever took the holistic approach and look at everything taken together, because that is not how they work. Heaven forbid there should be any area of cross-over into another area of specialisation...which is then clearly another consultant's territory and they only get paid for work in their own fields of course!

Now I can't particularly fault any of these people or the batteries of tests, xrays and scans, etc, that they ran without any positive results. But it wasn't until my hands were so painful earlier this year and the GP put me on oral morphine (which didn't hack it) that I have recently been to Pain Management and Professor Rheumatology.

Pain Management diagnosed it but was reluctant to confirm it knowing that i was going to see The Prof. Who did confirm and said I was FM and combined ME and after 10 minutes max decided I no longer need to attend his clinic, unless any of the blood I had taken shows up anything any different and in which case I will be sent another appointment.

So it's just carry on....carrying on and here I am throwing myself upon your collective wisdom and render mercies.

In the meantime I have been fighting the DWP for DLA and been turned down twice...now going down the route of the appeal process, but understand that takes forever to get a tribunal hearing date...but more on that no doubt another time.

Looking forward to speaking with you in due course.
Lexus Lawyer
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Re: Hi everyone I'm another newbie here

Postby FluppyPuffy » Wed Sep 25, 2013 7:52 pm

:cow-wave: :cow-wave: and :welcome: to our little escape from it all :bear-dancing: :bear-dancing:

There are a few of us on here with both the FM and CFS/ME tags, so you're in good company. I hope your experiences and encounters in the legal world weren't quite as :yikes: :yikes: :yikes: :yikes: :yikes: as those of Mickey Haller :lol: :lol: :lol:

I wish I could say that your 4 year battle to get answers and a dx was unusual. Unfortunately it seems to be more of the norm in a lot of cases, and having other problems appearing at the same sort of time certainly doesn't help :facepalm: :facepalm: :facepalm: There's no doubt that if the various departments, specialists and other staff made that little bit of effort needed to cross~communicate and update each other, things would work that little bit better, both for us and them. Your experience with "The Prof" is very similar to what a good number of us have experienced with the rheumies we have seen as well :facepalm: :facepalm: :facepalm: I was dx'd in 2004. I went to see the rheumy, was poked and prodded in some very uncomfortable places, and when I had been scraped off the floor, ceiling and walls, was told that I have FM, given a leaflet about the condition and told I needed to lose weight, then unceremoniously ushered out :shock: :shock: :shock: :shock:

There is a HHHUUUUUUGGGGEEEEE backlog of appeals waiting to be heard thanks to the standard of decisions that have been made based on the fantasy stories that Atos and other such minions write and claim to be true, and this in turn has created the lengthy waits for a date to have your appeal heard :too-upset: :too-upset: :too-upset: :too-upset: :too-upset:

Hopefully being part of our FibroFamily will be all nice and fluffy and supportive :teddy-bear: :teddy-bear: :teddy-bear: We play very gently these days as we all know how much things can hurt, so you should be fine with us. Either that or you'll end up as far round the twist as the rest of us are :crazy: :crazy: :crazy:

Think I've waffled at you for long enough now :oops: :oops: :oops: Anything you're wondering about and want to ask, all you need to do is post it and we'll try to help you with it :cow-wave: :cow-wave: :cow-wave:
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Re: Hi everyone I'm another newbie here

Postby Lexus Lawyer » Thu Sep 26, 2013 12:54 am


Thanks for your warm and informative welcome. Not quite up to the wild exploits of Mickey Haller...but the good old British legal profession does have its moments sometimes :pull-hair:

You're so right about Prof Rheumy, I forgot to mention being handed the booklet and given the weight lecture :crazy: they must all receive the same customer service training.

You will probably tend to find me active on the forum overnight as never sleep much then other than a 10 minute nod over the laptop, until the pain grabs me somewhere else :scream-1: :scream-1: eventually when I have consumed enough dope to down an elephant I go to bed between 7 - 9 am and if nothing on or appointments will fitfully snooze on/off through till about 2pm. But in and out every hour or so for the toilet as the heart medication I now take has a built in diuretic (oh what joy) if it's not the pain it's the need to pee :lol:

Talk to you again soon no doubt....cheers for now
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