Hello

Introduce yourself and find fellow sufferers in your area or who share the same interests.

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Hello

Postby loulou1 » Sun Dec 01, 2013 11:36 am

Hi,

Gosh trying to introducce myself, didn't think it would be this difficult, not sure where to start!

I'm married, 2 older children & work full time (shifts), 2 cats & 1 dog, living in the highlands of Scotland.

Told by GP on wednesday that I have Fibromyalgia. She gave me a leaflet & told me to come back when i've decided what meds I want to go on! OMG I was stunned, shocked, confused & upset. There is soooo much information out there that I don't know where to start. What works for one may not work for another.

The incredible feeling of overwhelming tiredness all the time with the pain & stiffness, disturbed sleep..... I could go on the list is endless.

No one to talk this through with that will understand. Iv'e no idea where to start with medication/alternative therapy before going back to the doctor! :-?
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Re: Hello

Postby FluppyPuffy » Sun Dec 01, 2013 3:40 pm

:welcome: to our little FibroFamily loulou1 :cow-wave: :cow-wave: :cow-wave:

Lots of info and advice across the boards, incl things about meds, treatments and therapies. Maybe start by having a look at the Treatments and Medications board to see what types can be used in trying to manage FM. This Linky also has info that may be useful to you. I have to admit, that's the first time I've heard of a GP saying to a patient that they should go away and decide what meds they want to go on :yikes: :yikes: :yikes: :yikes: As you say, there are many different types, and what may help one may not be suitable for another :shock: :shock: :shock: Plus, it's not unusual to find that a cocktail of things are needed to make things more manageable, which takes time to sort out as different things will be tried to see what is suitable for you and what isn't.

If you're on things at the moment and they don't seem to be helping much, you could tell us what they are, and we could see if we can come up with any suggestions that you could then go back to your GP with and find out if they could be suitable for you to try :teddy-bear: :teddy-bear: :teddy-bear:

Things are overwhelming at first, and it makes it seem that there is no way out of it. With you finding us tho, there's usually someone around who can help with something you're wanting to know about, or to bounce different ideas around with. Whilst we all tend to start with the similar basics, as we learn more about how FM affects us, we each start to add our own little twists and ways to managing our conditions, which we often share with others in the hope that there will be something in it that can help them in some way too :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Hello

Postby loulou1 » Sun Dec 01, 2013 5:29 pm

Thankyou for the welcome, I will have a look at the treatment & medication board & the linky.

Currently I am taking co-codamol 30/500, Levothyroxine (underactive thyroid) & Sertraline 100mg. The doc suggested Amitriptyline, but I thought it maybe too much with the Sertraline.

Looks like I have a lot of reading & learning to do. I have occupational health through work on the 16th Dec, where I hope they are supportive. I have yet to let work know. I have to as it's affecting my work which is stressful at times. I've no idea what reaction I am going to get, think that's the bit I am dreading the most.

Looking forward to chatting on the forum & getting to know you all :-)
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Re: Hello

Postby debsmith » Sun Dec 01, 2013 8:33 pm

Hia lou1lou1
I too can't believe what ur gp said go and think about what drugs u should b on I call that unaceptable they are the dr,s! Not us but then I guess we all know quite a bit about them have u asked to b refered to some 1 who specalizes in fibro? Or ask for referal to a rhumi may b? Personaly I'm on burans patches 30mg,anatriptiline,pregablin,meloxicam,co-codimal it takes edge of but not all every body,s body is differant hun in begining I was started on anatriptiline now on 75mg crikey enough I could open my own pharmacy! Is there a gp in ur practise who u get on well with? If so book a double appt with them?
And dr,s flipping know stress agrivates fibro so BOOOO!!!! 2that awful gp u should b ashamed! Good luck hun I did a lot of reading at 1st but it blew me away do a bit literaly bit by bit hope u find the right medz sending hugs debbie xxx
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Re: Hello

Postby loulou1 » Sun Dec 01, 2013 10:57 pm

Thanks Debbie :-) It's so good knowing I'm not alone. This site is fantastic :-)

Doctor did say the Rhumi does not deal with folk with Fibro & I would only be referred back to the GP. I will ask next time (which will be soon) about someone that specialisies in Fibro or if there is a Doc in the practice that does.

A lot to come to terms with, it will just take time xx
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Re: Hello

Postby debsmith » Sun Dec 01, 2013 11:08 pm

Hia hun u are most definatly not on your own here such lovely people on here it sure is a lot to take in I still can't get over ur doc saying that OMG!! What a BEEP BEEP! I'm seeing a rhumi in january I mentioned to my gp who refered me there do I still have to go as painclinic diagnosed me most definatly he said so I will go I don't quite know what to expect tbh I'd defo re: book with a differant dr as that's just not right lazyness on ur gp,s part I guess a non believer some dr,s are many times years ago I begged them please help me something is wrong but no 1 did!!!! Til new doc came and also very pleasing on the eye LOL!!!!! Well u have to have a giggle sometimes he he he :) its not on that u have to choose drugs it should b on there advise+experiance good luck where in uk are u from? Xxx
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Re: Hello

Postby FluppyPuffy » Mon Dec 02, 2013 10:51 am

In most areas, it is the rheumy that sees people with FM, it can also be something that another consultant/specialist deals with, such as a neurologist, for example. So if you feel that a referral to the relevant specialist would be beneficial, then keep asking about it.

Amitriptyline is often one of the first meds tried when FM is dx'd as it can help with pain and sleep issues, and for some it can make a difference in things. And altho it may seem a bit of overkill taking 2 anti~ds, it actually isn't that unusual, esp when trying to manage a condition such as FM. The dosages used for FM are low compared to when amitriptyline is used to treat depression.

Co~codamol can also be helpful, but like all meds, the body can become used to it, so it becomes less effective. Tramadol tends to be one that is tried when co~codamol becomes unhelpful, so may be something to ask your GP about suitability for you to try. With Tramadol, adding paracetamol in acts as a type of booster for the effects of Tramadol, which can be helpful for a good number of FMers.
loulou1 wrote:Looks like I have a lot of reading & learning to do. I have occupational health through work on the 16th Dec, where I hope they are supportive. I have yet to let work know. I have to as it's affecting my work which is stressful at times. I've no idea what reaction I am going to get, think that's the bit I am dreading the most.

Wrt work and your employer, once you have been dx'd with a condition that comes under the definition of a disability as used in The Equalities Act 2010, and advise your employer of it, am employer is legally obliged to work with the employee to make "reasonable adjustments" so that the employee can carry on working. What is classed as a reasonable adjustment varies, dependant on the job and the needs of the employee. For some it could be a change in days/hours worked, for others it could be the addition of more ergonomic equipment like a keyboard and/or mouse, different desk and/or chair. This is where Occy Health type peoples can help as they tend to have ideas, info and advice about ways to possibly help. Hopefully, once you have told your employer, and things are starting to help make you feel more comfortable, you will find that it all helps have a more positive effect on your work :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Hello

Postby FluppyPuffy » Mon Dec 02, 2013 10:53 am

debsmith wrote:I mentioned to my gp who refered me there do I still have to go as painclinic diagnosed me most definatly he said so I will go I don't quite know what to expect

You may find this Linky helpful in giving you an idea of what could happen when you go and see the rheumy :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: Hello

Postby loulou1 » Mon Dec 02, 2013 10:36 pm

Thanks FluppyPuffy & Debbie. | I'm making an appointment with the doc tomorrow, see how it goes, especially now that I have a few questions for her!

The Dr did suggest CBT which I am interested in trying. However I also will be asking questiones re meds & for an appointment with a rhumi/specialist.

I'm on the waiting list for physio as they have a hydro pool here which was recommended.

Thankyou for the info re work FluppyPuffy, interesting :-) I told a collegue today about Fibro, her reaction was 'you need to get back to shift as your confidence is low'. :yikes: lol if only she knew the half of it! But does make me wonder how the bosses will react....

Debbie I live in the highlands of Scotland, North of Inverness :-D
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Re: Hello

Postby debsmith » Mon Dec 02, 2013 10:48 pm

Hia WOW scotland I've always wanted to go there! I bet its gorgeous there but do u have harsh winter,s? "Keep warm" hun sorri but what is a cbt? Whatever it is I hope it works 4u hun I hope u get on better at this appt I wrote things down as my words don't seem to come out as I'd like them too LOL!!!!!!! It helped me even 2day said hello bla bla he just reached out 4my notes pmsl!!! I need a exray grrrrrr re: knee so guna do that @ same time as pysio can't b going up that place twice in a week! He said umm hope they don't find a nasty arthritis! But other week he said think u have rhumatoid arthritis :banghead: :bricks: oh deary me! i hope ur boss listens to whats being said and support u i know if they dont thats a very thin line they r walking! i just cant say to mine as im a chef it wont go down well! xxx
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Re: Hello

Postby loulou1 » Mon Dec 02, 2013 11:06 pm

Harsh winters, no, I love the snow & cold crisp sunny mornings.

Cognitive behavioural therapy (CBT) is a talking therapy that can help you manage your problems by changing the way you think and behave. CBT has been shown to be particularly helpful at tackling problems such as anxiety, depression, post-traumatic stress disorder (PTSD), eating disorders and drug misuse.

CBT can also be used to treat people with long-term health conditions, such as arthritis and irritable bowel syndrome (IBS). CBT cannot cure the physical symptoms of these health conditions, but can help people cope better with them.

Yeh, I can sympathise with having to write things down, I do it all the time.

I hope it's not Rhumatoid Arthritis, You could ask to see your xrays once they are taken, it's interesting seeing your own bones!
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Re: Hello

Postby denys » Tue Dec 03, 2013 2:20 pm

Hi Loulou :welcome: to the forum :cow-wave: :cow-wave: :cow-wave:
Denys

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Re: Hello

Postby loulou1 » Tue Dec 03, 2013 7:40 pm

Thanks Denys :cow-wave:
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