possible diagnosis and a few questions?

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possible diagnosis and a few questions?

Postby katiexlou » Thu Dec 26, 2013 10:15 pm

Hi there!

Firstly sorry if this is in the wrong section or its a bit lengthy.

I've had lots of health problems over the last 18 months and finally got a new doctor who has suggested he thinks i have fibro after a tender spot test and looking back through my records. He gave me a few pages of information on it (which has a lot of my symptoms on it) and prescribed me zapain after i said the naproxen i was on didn't do anything at all for the pain. I'm not sure if this counts as a diagnosis or not, but im making another appointment to see him in the next few weeks as i dont find they do a lot for the pain either.

I am currently working part time as im at uni (which sadly after a year and a half of good grades im failing because i just cant seem to concentrate or bear sitting at the computer for a long time). I spoke to my manager at work last weekend and theyve asked for a fit to work note so they can make reasonable changes. But im not sure how to go about this with my doctor? Ive said i dont want two shifts in a row or really long shifts (i work in a cinema on the ice cream counter, which may sound easy but scooping REALLY hurts my arms some days and all the cleaning and so on from a shift can take me down for a day or two after on bad occasions). With the stress of uni, work, missing so many social things and feeling so awful most days im really not sure what to do. I want to stay working, ideally in a different job, and i want to finish uni but thats not looking possible for this year and i may have to go back in October and redo the entire year. So im feeling so frustrated at knowing what exactly i need to do... for everything and its making my head spin!

I know i need to introduce some gentle exercise and thinking of asking my docs for amitrptilin (spelling, sorry!) and possibly changing my pain killers again but other than that i feel like im stuck.

Sorry for the ramble.

If anyone has any tips, suggestions or advice they can give me that would be amazing

x
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Re: possible diagnosis and a few questions?

Postby whoami » Thu Dec 26, 2013 11:10 pm

I would suggest you go in and have a word with your Dr. Let him know work needs a note, explain what your job is and your inability to do it. He will likely write an appropriate responce.

Also, some Dr's don't like patients telling them what to prescribe. Let him know your meds aren't working and what does he suggest, Good Luck!
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Re: possible diagnosis and a few questions?

Postby FluppyPuffy » Thu Dec 26, 2013 11:16 pm

:welcome: to our little sanctuary katiexlou :cow-wave: :cow-wave:

I've jiffled you over into here as it's the best place with this being your intro topic.

If you're unsure as to whether you have a definite dx or not, then you need to clarify things with your GP. Has there been any mentions of you needing to see anyone else wrt being dx'd?? With your employer asking for a Fit Note, it means you need to see someone any way, so you could use the appt to get things straight regarding the question of a definite dx, or not.

Meds~wise, whilst co~codamol can be effective for some, it's not unusual to be on a number of meds to try and manage things, this Linky tells you about some of the types used. maybe have a looky and then talk to your GP about what might be suitable for you to try.

For your uni studies, have you advised your tutors of your dx?? If not, then it could be worth doing when you go back after the hollibobs. Your uni should have a student disability adviser/officer type person whoi can advise and work with you and your tutors to put things into place for you to carry on with your studies taking your condition into account. This could be things like extra being granted for completing assignments, access to equipment to help during lectures, such as a way of recording a lecture for you to refer back to later, and other things that you may find helpful.

Being unable to do things for extended periods of time is part of the FM experience I'm afraid, it affects a good number of us and is a real pain in the :girl_moon: :girl_moon: :girl_moon: :girl_moon: :girl_moon: It's something that we need to learn to live and work with tho. As you find more out about what your capabilities are with FM, you'll be able to determine your baseline for doing various things, incl how long you're able to use your pooter for, and find ways to work within them to get things done.

For gentle exercise, a stretching routine can be somewhere to start. A big of hunting online should throw up some suggestions, and your GP should be able to refer you for/tell you how to access things like physio in your area. You could also ask about Pain Management facilities/clinics as they can often give you access to other services and treatments that could be helpful.

There are also ways to help make yourself feel a little more comfortable. Applying heat to particularly affected areas can bring a little relief, a lot of us have a collection of the wheaty bags that can be zapped in the mikey for this purpose. And for larger areas, a good old hottie bottie can help. Soaking in a warm bath can be relaxing, esp with some nice smellies in it, and with the relaxing, a little easing can follow as well. There is a Hints/Tips For Coping board that is full of different things members have found makes things a little more manageable for them, so having a look on there might give you some ideas to try out.

Think I've waffled at you for long enough tonight :oops: :oops: :oops: :oops: :oops: Anything else you're wondering about, all you need to do is ask about it, and we'll try and help you with it :cow-wave: :cow-wave: :cow-wave:
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Re: possible diagnosis and a few questions?

Postby katiexlou » Thu Dec 26, 2013 11:36 pm

@fluffypuppy Thank you so much for all the info!

I'll be getting an appointment asap to talk things through with him again, he mentioned last time about possibly referring me somewhere (annoyingly, i can't really remember exactly what was said) so hopefully i can get some clarification on that and a diagnosis. Im also going to go and speak to someone at uni in the next few weeks, i should of done it sooner but got a bit annoyed because my tutor was no help at all trying to talk to her, so i'll find the student support part and speak to someone else.

Thanks for the heat pack tip (thanks for all of them really!), i'd never thought of that! I'll nab mums oatie pack thing she uses for her shoulder as that could help with my neck and arms hopefully. I've found hot baths really helpful and got some aromatherapy oils to try and make them relaxing or uplifting when i need them. Im gunna have a good read through the forum tomorrow if i can as im absolutely shattered tonight and see if i can pick up some more tips.

@whoami yeah i was a little bit worried about that too. Just from what ive read it seems like thats a popular treatment for it, but i'll wait and see what he suggests. I'm just happy to finally have a doctor that is listening to me!

Thank you both of you for the advice. <3
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Re: possible diagnosis and a few questions?

Postby FluppyPuffy » Thu Dec 26, 2013 11:58 pm

When dealing with a new/different GP, I've found that saying something along the lines of I've been reading up on meds, treatments etc that have been mentioned on NHS Choices site (the linky in my pp) and was wondering if a specific med/treatment might be suitable for me to try. With NHS Choices being a site that no healthcare professional can dispute as being credible, it tends to bring about a more favourable and honest answer as, altho it shows I have been looking into things, I'm not saying what I want to be prescribed with.
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Re: possible diagnosis and a few questions?

Postby FluppyPuffy » Fri Dec 27, 2013 12:06 am

katiexlou wrote:@fluffypuppy Thank you so much for all the info!
I'll be getting an appointment asap to talk things through with him again, he mentioned last time about possibly referring me somewhere (annoyingly, i can't really remember exactly what was said) so hopefully i can get some clarification on that and a diagnosis.

It could have been a referral to a rheumatologist that was mentioned as they tend to be the specialists/consultants that deal with FM. In some areas tho, it can be someone else, such as a neurologist for example, who specialises/has an interest in such conditions.

Amitriptyline is often one of the first meds tried for managing FM as it can help with pain and sleep issues, so is worth asking about as it could bring you some relief.
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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