New on here

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New on here

Postby 1Scorpion » Thu Jan 02, 2014 2:51 pm

Hi all my name is Karen I had been diagnosed with prolapsed discs 25 years ago which also bought my hypo mobility and the osteo arthritis. but this past year I seem to have got worse and was sent to a specialist who has said I have severe fibromyalgia. I came away from the meeting feeling extremely confused, I sometimes think he mis diagnosed it then I found this site and read other peoples problems and it was like reading about myself so I'm finally trying to accept it. I'm made worse with also being told last year after an attack that I now have angina.

I have my husband who is fab and 2 sons one of 29 and one of 18 who help me with things that would be normal for others to do but really hard for me. my tiredness is really strange it just hits me like a brick and over Xmas I made myself go out 3 times to have family time in a lovely friendly pub who all looked out for me but it's all caught up with me today even my husband said this morning he has never seen me look so tired before.

I think the most annoying thing is in my mind I can see me doing things, but in reality I have no chance which really frustrates me as I use to be very active. I use to go jogging ,weight training , dancing, working 80 hours a week and being a single parent bringing up 2 kids. now here I sit on my sofa most of the day. my lovely hubby bought me a mini I pad becUse I couldn't sit at the computer anymore. but as you all know we all stick a smile on our faces and try to be normal thanks for letting me get this off my chest it's great to not feel so alone :-).
Last edited by FluppyPuffy on Thu Jan 02, 2014 3:05 pm, edited 1 time in total.
Reason: Split large paragraph into smaller ones and a bit of punctuation twiddling for easier reading
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Re: New on here

Postby FluppyPuffy » Thu Jan 02, 2014 3:29 pm

:welcome: to our little FibroFamily Karen :cow-wave: :cow-wave: :cow-wave: I've split your post off from where you had originally made it, and made it into topic of its own so that when you get some replies, they won't get lost in amongst ones being made in reply to the starter of the other one. I've also split your post into smaller paragraphs as quite a lot of us on here find reading larger blocks of text difficult, whereas smaller ones mean we can keep a track of where we have read and what is coming's one of the delights FM likes to give out to us :facepalm: :facepalm: :facepalm:
1Scorpion wrote:I think the most annoying thing is in my mind I can see me doing things, but in reality I have no chance which really frustrates me as I use to be very active.

This is something that a lot of us struggle with, so you're in good company. It's extremely frustrating, esp when it involves something that used to give a lot of pleasure. With a little patience in finding things to help tho, it may be possible to start doing a little of something that you did previously, or it could lead you to finding something new to do that helps make you feel a little more :bear-dancing: :bear-dancing: :bear-dancing: It may not be at the same rate or for the same length of time, but it is possible to reclaim a little of that which FM has tried to take from you :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed: :fingerscrossed:

Glad you feel a bit better for being able to get things off your chest. And you're very definitely not alone now you've joined us :bear-dancing: :bear-dancing: :bear-dancing: There is lots of info and advice across the boards, as well as support and understanding and a sense of fun as well, all to help with getting thru the FibroDays, so anything you want to know about, all you need to do is ask and we'll try and help you with an answer fairy_dust
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: New on here

Postby vonneyrose » Thu Jan 02, 2014 5:10 pm

Hi Karen
Reading your post really struck a chord with me.

I am also new on here and my biggest hurdle is the frustration of seeing myself doing things that others take for granted, as I did earlier in life. Then I try and I can't. My head says one thing and my body says another. And some days it's the fog in my head and the confusion that stop me. Some friends encourage me to go out but the knock on effect, even when they do all they can, is huge. Although I'm so glad I have them.

I am hoping to try and find a way of reclaiming somethings. Don't know how yet but hopeful. :-D

I am glad you have been able to put out here what's happening for you.
I hope this reply helps, even just to you're not alone.

Warm wishes Jo
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