[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/bbcode.php on line 488: preg_replace(): The /e modifier is no longer supported, use preg_replace_callback instead
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4780: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4782: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4783: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
[phpBB Debug] PHP Warning: in file [ROOT]/includes/functions.php on line 4784: Cannot modify header information - headers already sent by (output started at [ROOT]/includes/functions.php:3898)
The UKFibromyalgia Forums • View topic - Introducing myself ((xx))



Introducing myself ((xx))

Introduce yourself and find fellow sufferers in your area or who share the same interests.

Moderators: perseus, *Lisa*, FluppyPuffy

Introducing myself ((xx))

Postby Hesh » Wed Jan 08, 2014 9:23 pm

Hello,

My name is Hesh, I'm 24 and was diagnosed with FM officially at the age of 23. I also have Hypermobility and dyspraxia, which, while it doesn't cause physical pain, isn't the best thing to have on top of everything else. I'm also dyslexic so I apologise in advance.

I'm not too sure what to put in this post, everyone's seems to be a mix, so I'll just put it all out there and see what happens if that's ok?

I was originally diagnosed with stomach migraines when I was around 5 years old. There didn't seem to be anything anyone could do, so it was left to its own devices.

Everything was ok generally until I was 16. It was while I was at college, I got a pain so severe I was taken to the doctors by a friend who thought I had appendicitis. The GP sent me to A&E where I had examinations, appendix were fine, so was tested for ovarian cysts.

I was then investigated by the gynaecology department over the next few years until I was 19, during which time I have investigatory surgery and placed on numerous diets to rule out things like ceoliac.

I was discharged from gynaecology and things came to a stand still. I had huge problems with my Dad, which have led to me now being his primary carer.

I was backwards and forwards to the doctors, but only for quick fixes as I simply did not have the time to sit down with someone.

The pain started to get so severe it was clear I was going to be fired for the amount of sick days, so I took the opportunity to go to University. I struggled throughout and had to resit my first year, so did 4 years in total. Looking back now I have no idea how I even managed to get the pathetic degree I did get. I could never concentrate and was so drugged up on pain and depression medication, the majority of the 4 years passed me by. I wasn't diagnosed with dyspraxia until the last term either which didn't help.

After I graduated, I decided while I was used to being a poor student, I would follow my dream, so I decided to go to college to train to be a vet nurse. It was here I was diagnosed with dyslexia. It was 2 days a week, one of which was a full day on a working farm. I was there for 2 months before it got to be too much for me and I had to quit. This was the first time my pain had stopped me doing something I really wanted to do and because it had taken away what I had dreamed of becoming my career, I realised I had to start fighting for some real answers so I could get this under control.

I started to work full time, a desk job, which was perfect, and I'm still there. I started to really press for answers from any doctor or specialist I saw, and after 8 years of being told "IBS", "just stress" or my favourite "yes, you have a sore tummy, you'll be fine" my GP said "I'm happy to finally diagnose you with fibromyaglia" after explaining that so many doctors are reluctant to diagnose people with it as they use it as an excuse not to work.

I felt better having an answer, and accepted that there wouldn't be much anyone could do, it would just be a case of learning to manage it.

I've come here because I don't feel like I'm managing. I came off my anti depressants because I was sick of not being able to feel anything. Catching up with friends I hadn't seen for a year didn't make me feel anything, and I thought the fog I was in before the tablets, was no different to the fog I was in when I was on them. I also put on 3 stone in what seemed like 24 hours, going from a size 6 to a 14.

My depression has been absolutely fine, really haven't struggled with that at all, until the past few weeks where I feel like it's creeping back, but purely because of the pain.

I've been going to a pain clinic every 6 weeks, and was initially put on Gabapentin. I was gradually increased to the maximum dose, but spent a good 2-3 hours a day vomiting, which isn't ideal when you're at work, and it was making no difference to the pain.

I've just changed to Pregabalin, 75mg twice a day. I had a little sickness the first few days, but none since. They haven't helped the pain but it's only been about 4 weeks.

I'm now so aware of every movement. I've been given Tramadol, but they don't help, they don't even make me drowsy. I'm reluctant to take anything stronger.

I don't sleep. I can only ease the pain slightly by lying in a foetal position. I can't lie like that more than 15 minutes because it aggravates the Hypermobility which affects my hips, and I have to be careful where I place my arm; I've broken it 9 times and am awaiting for surgery. I get painful pins and needles at the slightest bit thing.

I can't concentrate at work. I can't sleep. I cannot stand for more than 3 or 4 minutes. If I try to go out for the day, I now have to use a wheelchair (on loan from my brother) as I can't walk for more than 10- 15 minutes without feeling like I've done a marathon.

I had the company of my 3 year old god daughter a few weeks ago, and she is the most delightful little girl and not at all difficult. I was ruined for 2 days afterwards and it terrified me. I'm 24 years old. If I can't have her for a few hours, how will I cope with my own children? My boyfriend and family are amazing, but what kind of mother would I be if I didn't have the strength to take my children to the park for an hour?

I'm trying not to get stressed about these things, but I'm at a loss. I've decided I need to start looking for more support to help myself before this gets any worse.

I will not go back on anti depressants, I want to do this myself, and not use medication. But I don't know where to start. I've asked the council to change my wet room into a normal bathroom with a bath, as I can't stand long enough to have a decent shower. I was turned down for this and it's knocked me.

I know there are things like bus passes I could maybe apply for, and I've seen a handle to help me get on and off the toilet, but I don't even know if the council would let me put something like that up?

I'm new to this, I'm just starting out in the process of asking for assistance.

I thought this would be a good place to start.

I'm sorry if this is too long, or in the wrong place, but I wasn't sure where to start with this website either.

Overwhelmed I think.

Thank you for your patience if you were kind enough to take the time to read this.


Hesh x
This too, shall pass
Hesh
UKFM Newbie
 
Posts: 1
Joined: Tue Dec 10, 2013 10:54 pm

Re: Introducing myself ((xx))

Postby FluppyPuffy » Thu Jan 09, 2014 2:31 pm

:welcome: to our little sanctuary Hesh :cow-wave: :cow-wave:

I've split your post off from where you had originally made it. It wasn't in the wrong place and there isn't anything amiss with what you have said, I've done so with it covering a number of different things, and made it into a stand~alone topic so that any replies that you get won't get lost in with replies to other new members who have also posted on the "Introduce Yourself" thread.

You're in good company on here as we all understand what each other is going thru, and we try to offer as much support and understanding as we can, as well as sharing advice and experiences in the hope that it may be of use to someone else. Hopefully we'll be able to do this for you as I think we've all been in our own little place, similar to where you now find yourself.

The blackness does like to try and creep back in whenever it gets the chance, which does make you feel you are being overwhelmed at times :facepalm: :facepalm: :facepalm: There are little glimmers in it tho, which become brighter and brighter as you start to find your way out of the oppressiveness. The first ones can be quite tricky to find tho, but with you joining us, hopefully a few suggestions on here will be useful to you. And with support and help from your GP, getting away from it can sometimes be a little easier to do.

For some, when Gabepentin doesn't suit them, Pregabalin can be more effective. It does need that time to get hold of things tho, which can be up to 3 months for some. Hopefully you'll start to feel some real benefit from it over time and with your dosage being increased along the way, a similar thing to what is done with Gabapentin.

I can understand why you have come off your anti~ds with how they were making you feel. In the earlier days of my FibroQuest, I was on a couple of different ones that did absolutely nothing for me. Like you, I said I would never go back to taking them. However, a few years further along the yellow brick road, I found myself in one of my dark places again, and was so bad my OH had to literally and physically make me get in the car and go and see my GP. I was persuaded to try one that was completely different to previous ones I'd tried. Starting off on a very low dose, it was actually helpful for once, and became more so as my levels increased. Plus some anti~ds have been found to help with sleep and pain issues at lower dosages, and are often used in managing FM, proving to be quite helpful for some. Rather than going with the "never again" flow, maybe consider them as a possibility if other possible options turn out to be of little help.

Altho the council have declined your request to reconvert your wet room, you may be able to have a referral to your area's Occupational Therapy~type peoples. They will come and assess you to see if aids may be of help for you. This could include a chair for using in the shower, rails to help with getting yourself up and down from bed, loo etc and other things that might be helpful to you. Your GP should know what needs to be done to refer you to them.

There are many, many things that others have found helpful mentioned on the Tips/Help With Coping board, maybe have a bit of a looky thru some of the stuff on there and see what there is.

Anything else thst you're wondering about, just ask about it and we'll see how we can help you with it :cow-wave: :cow-wave: :cow-wave: :cow-wave:


If your dog doesn't like someone, then you probably shouldn't either
User avatar
FluppyPuffy
SITE ADMIN
 
Posts: 12719
Joined: Mon Jun 08, 2009 11:25 am
Location: Living Life On The Edge.......Of The Norty Step!!!

Re: Introducing myself ((xx))

Postby yves173 » Mon Jan 13, 2014 1:17 am

Welcome hesh!

Sent from my KFAPWI using Tapatalk
yves173
UKFM Member
 
Posts: 19
Joined: Mon Dec 30, 2013 3:37 pm

Re: Introducing myself ((xx))

Postby denys » Tue Jan 14, 2014 1:09 am

Hi Hesh and :welcome: the the forum :cow-wave: :cow-wave:
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
User avatar
denys
UKFM Veteran
 
Posts: 11901
Joined: Tue Feb 09, 2010 10:05 pm


Return to Where to Say Hello

Who is online

Users browsing this forum: No registered users and 5 guests