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The UKFibromyalgia Forums • View topic - New and in lots of pain. Fibro?



New and in lots of pain. Fibro?

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New and in lots of pain. Fibro?

Postby Gamesamui » Tue Jan 14, 2014 5:27 pm

Hello, I have just joined as I think I have got fibromyalgia, although not diagnosed yet. I have stopped working nearly two years ago, I had my own tree surgery business and I used to do all the climbing work, hard work which kept me fit until, firstly I have had compressed vertebrae in my neck from a motocross bike accident 13 years ago, this I worked through for ten years, then my left arm went numb and tingly, this then spread to my other arm, legs,shoulders and back. All over pain now, mostly tight, cramped muscle pain in legs and arms, painfull neck, shoulders and spine.

I have never experienced so much pain in my life, I was booked in for a double vertebrae fusion on my neck, but a year later was turned down, saying it was too risky! I paid for my own MRI scan, had loads of x rays and blood tests, visited a rheumatologist, physio, massage and acupuncture, all with no relief. Eventually I was put on morphine as nothing else worked, now this has stopped being as effective, so I am on tramodol which does help but I feel spaced all day!

I have visited my doctors dozens of times, sometimes while in obvious severe pain, I am now awaiting a pain management course next month at my hospital, then if no good the doctor said she will book me in with a specialist. I seem to be always waiting for appointments that have not yet relieved my constant pain, constipation, depression and never ending restless nights sleep.

I have told the doctors that I am convinced its fibro or maybe wells disease as I have spent a lot of time in forestry, where ticks are found? My social life has stopped and I spend nearly all my time in varying degrees of pain. I find this site helpfull and hope someone on here can advise me what to do next, as far as getting diagnosed is concerned, I think it would help if I knew what was wrong with me. The doctors seem afraid of giving me a diagnosis/label.

Any suggestions or ideas would be appreciated. Thanks, Richard.
Last edited by FluppyPuffy on Tue Jan 14, 2014 8:18 pm, edited 1 time in total.
Reason: Split large paragraph into smaller ones for easier reading.
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Re: New and in lots of pain. Fibro?

Postby whoami » Tue Jan 14, 2014 6:14 pm

Richard, your story has so many similarities to others here.

I am sorry to hear that you are suffering and seem to be at a loss as where to turn. First you need to find a Dr who can diagnose you with something. Testing for fibro is basically done by process of elimination. You will have numerous tests and blood work done to eliminate other illness that share the same symptoms. It seems like a lot of this has been done.

I am surprised that the rheumatologist did not diagnose fibromyalgia. I would go back to your Dr and insist that if he does not have an answer, he refers you to someone who can help you. Your symptoms need to be treated. Treating those symptoms could help with a diagnosis.

Richard, you may have to change your Dr yourself. Does the surgery have other Dr's? Could you talk to the surgery manager and let them know you are not happy and are in need of another opinion.

Richard, I have been dealing with fibro for 25 years. It took 15 of those years to through trial and error to find the right pain medication and antidepressant that is what works for me. I had tried every type of pain med out there. Now for the past 10 I am comfortable. Yes still having pain but I can live with it. It really doesn't matter what your diagnosis could be, just having a name to put to it is a relief. Then you can start to treat it.

Keep pushing for an answer, Lorraine
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Re: New and in lots of pain. Fibro?

Postby FluppyPuffy » Tue Jan 14, 2014 8:56 pm

:welcome: to the forum Richard :cow-wave: :cow-wave:

I've split you post up into smaller, easier~to~read paragraphs as quite a few of us on here find it difficult to read larger blocks of text.

I'm sorry to hear how things are for you, not knowing what is behind the symptoms and problems you're experiencing is incredibly frustrating :facepalm: :facepalm:

As Lorraine has said, arriving at an FM dx happens after whatever tests, scans etc, that the dx~ing doc feels are necessary, have come back showing that all other possibilities have been excluded. It does take time to get to this point, but it is possible to get those answers you're looking for.

One thing that people have done a good number of times is keep a diary of their symptoms and problems. They include things such as times and situations that have triggered things off, activities that they have been doing and how it has affected them, sleep patterns/issues and anything thing else they feel will help go towards creating that overall picture needed to help with determining what the cause of their problems is.

Also, printing up info from reputable sites such as NHS Choices or the main UKFM site, then going thru and highlighting symptoms that you have, as well as adding notes about other issues experienced is something that is often used as it can help show why you may think FM is what you are experiencing.

There is lots of info across the boards, incl what others have experienced when being dx'd, so have a bit of a read and a look around, you may come across some more ideas you can use to help you get things moving in a better direction for you.


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Re: New and in lots of pain. Fibro?

Postby denys » Thu Jan 16, 2014 3:23 am

Hi Richard and :welcome: to the forum
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As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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