New to Fibromyalgia, not new to the pain

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New to Fibromyalgia, not new to the pain

Postby Storm » Tue Feb 11, 2014 3:51 am

I'm Storm, female, 23 from the UK.

I was diagnosed today by a GP after I sought diagnosis and information and such about it, after I was complaining on Facebook (as we all do) that I was in so much pain all the time for so many years, since I was about 11, so tired, headaches, light sensitivity, TMD, IBS, difficulty sleeping, you name it, and my friend linked me to an information page out of nowhere last Thursday on Fibromyalgia. It ticked all the boxes.
Friday morning I couldn't get an appointment, but I did today (Monday) and the GP felt it was unnecessary to refer me to any kind of specialist, as I clearly show all the signs, and there's no proper way to treat it anyway except painkillers.

I've been told by the same friend that I should look into taking Magnesium Malate supplements, but I have no idea what it is, and what the difference is between all the other different Magnesium supplements. I don't trust ordering online with medication and stuff, so I can't get it.
My only alternative is health stores and supermarkets. I checked if they sell it in Holland and Barrett, no luck.
I guess I'll look for more advice on Magnesium in the other subsections, but for now, hello :)

Hope I'll be welcome here and that I pick up the rules quite quickly ^^
Storm
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Location: South England

Re: New to Fibromyalgia, not new to the pain

Postby *Lisa* » Tue Feb 11, 2014 10:13 am

:welcome: Storm :-D

Thats not exactly correct in what your GP says about "just pain meds" theres lots of other help you can try like therapies:

Physiotherapy
Massage
Chiropractor
Oesteopath
Hydrotherapy
Accupunture
Pilates
Stretching exercises
Pain injections
Lignocane infusions

ALSO

A healthly diet and exercise (even if its just a slow short walk daily)
Cut down on things like sugar/caffeine

Theres lots of info and advce around the forum.

It is a juggle to what your body likes and respondes to and like me it took many years to find a way to help control some symptoms.

Magnesium malate is the right one for fibro but unsure where you can buy it from. If you have a search up the top of the page you may come accross some topics on Magnesium malate that will help you and possibly find a place to buy it from.
As a Public Moderator & Admin of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia...Lisa
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Re: New to Fibromyalgia, not new to the pain

Postby debsmith » Tue Feb 11, 2014 8:49 pm

Hia

Re: your GP tutt tutt!! There is other places u can go for support like pain clinic could u see a differant GP and ask to b refered?? I don't think gp can refuse tbh I have also had pysio it helps sum but it wasn't 4me this website it FAB!! I was diagnosed last sept and was quite a shock!! I was glad I'd finaly had diagnosis but felt out of my depth I spoke to guys on here + they realli helped me put mind at rest,I also suffer from lots of joint prob,s and under rhumatoligyst aswell sorri can't spell that LOL!!!!

Welcome to this wonderful site :welcome: :hugs: xxx
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Re: New to Fibromyalgia, not new to the pain

Postby Storm » Wed Feb 12, 2014 1:22 am

Yeah my GP is really unhelpful. Wouldn't prescribe me things like Gabapentin to try or anything, even though I've had it before for nerve pain (had a blood test and nurse hit a nerve).

I guess I will have to manage the pain myself until I can find a new doctors surgery, because this one is absolute rubbish now.
Storm
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Posts: 38
Joined: Mon Feb 10, 2014 9:35 pm
Location: South England

Re: New to Fibromyalgia, not new to the pain

Postby Lipgloss- junkie » Wed Feb 12, 2014 8:17 am

I think a referral to a specialist is needed rather just your gp's say so just to cover yourself for the future like sick pay and benefits etc etc. it throws more weight when your diagnosis is done by a specialist. Sounds like you need to go to a new gp, a one that understands what fibro is. I always ask a medical professional do you know what fibro is? As many have heard of it but not actually dealt with someone that actually has it.. Good luck x
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Re: New to Fibromyalgia, not new to the pain

Postby denys » Wed Feb 12, 2014 2:16 pm

Hi Storm and :welcome:
Denys

As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.
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