New to forum, my story

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New to forum, my story

Postby Caz34 » Wed Feb 26, 2014 11:55 pm

Hi all I'm new to this forum. I have not been diagnosed with fibromyalgia but I believe I could have this as have most of the signs. I'd like to share my story to see if anyone else has gone through the same or similar to me.

I'm 34 years old. I have always been a sickly child ( as my nan use to say) was under child consultant as from age around 10 to 14, pains in the stomach, aches in legs and pain in the knees, put down to growing pains. Feeling tired no energy told by GP it was all in my head. Suffered with my back about 11 had accident on skates and they found I had small defeat in middle of one of my vertebrates. Later on in my teens back (low back) flared up again had steroid injections and physio & corset made.

19 I had my son who was born with his bowels on the outside & arteries to his heart are the wrong way round. I Suffer heavy and painful periods, ring in the ears. Had few gynaecological problems. Back pain started to worsened and pain was now in middle of my back, reaching or sudden movement it felt like sharp electrical pain and would stiffen up. Low back pain right side constant ache, pain walking and sitting would go to my bum. Constantly feeling cold hands and feet bluey/purple. Weight up and down with poor appetite, dry skin, feeling tired and no energy,getting run down, cough and colds last months, not sleeping well.

I suffer depression and PTSD from being sexually abused throughout my childhood. I Have been around a lot of family politics! My son had emotional and social problems due to my step dad. Getting help for my son was a nightmare and my mental state was pushed to its limits. All my symptoms worsened and new ones came, migraines started, eyes sensitive to bright lights, diagnosed with blepheriasis ( small abscess in eye lid, itchy, dry scaly skin on eyelashes) Always sweated from early 20's but really started sweating underarms.

All over aches and pains started getting pain in right hip then legs and feet at 29 diagnosed with peripheral vascular disease affecting both legs left side narrowing right side blocked. Loads of tests and scans, thought I had takaysus then others diseases it looks like a vasculitus but it's not. Went in for a infusion, that helped for a little while for vascular but other symptoms still there, feeling tired and no energy got worse, it was like I'd have flare up as some days I could do stuff and others I couldn't.

Doctors don't listen properly as they don't really know what the problem is my consultant said my body doesn't make sense! I see a vascular and rheumatology consultant. Have had recent operation on arm( shortening of the bone) that is not healing so well, they said my vascular wouldn't be a problem, but now that's why it's not healing any excuse! Constantly feeling tired now, aches and pain draining, co codimol & tramadol when really bad, fed up and defiantly feel old before my time. Sorry if I have bored you :-D
Last edited by FluppyPuffy on Thu Feb 27, 2014 12:25 am, edited 1 time in total.
Reason: Split paragraph into smaller ones for easier reading.
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Re: New to forum, my story

Postby FluppyPuffy » Thu Feb 27, 2014 12:51 am

:welcome: to our little sanctuary Caz :cow-wave: :cow-wave: :cow-wave:

I've split your post up into smaller paragraphs to make it easier to read as quite a few of us on here struggle when it comes to reading larger blocks of text.

I hope you'll appreciate that we can't say if what you have described is FM. Whilst a lot of what you have experienced could be related to FM, due to it's vast range of symptoms that are also shared with a number of other conditions, it needs to be a doctor/consultant/specialist that determines what the reason for your symptoms and problems is.

When someone things they may have FM, what we normally suggest they initially do is raise the possibility with their GP. To help show why you feel it could be FM, if you compile a list of your various symptoms and problems, then print up some info about FM from a suitable and reliable source such as from UKFM or NHS Choices and use it to show where the similarities are, hopefully it will set things moving in a more helpful direction for you :fingerscrossed: :fingerscrossed: :fingerscrossed:

In the meantime, have a bit of a looky and a read around the boards. They're packed with all sorts of info and advice and suggestions, some of which you may find useful :cow-wave: :cow-wave: :cow-wave:
As a Public Moderator of this forum my opinions/views expressed are personal and are no more valid than those of other members and not necessarily those of UKFibromyalgia.

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Re: New to forum, my story

Postby Caz34 » Thu Feb 27, 2014 10:25 am

Thank you for your relp and I will have a look on the forum, good idea about making a list of symptoms :-D x
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